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The PCD patient conference 2024 will take place online on Friday, November 29, 2024 from 2:00 to 6:00 pm (CET). Registration and program are available on our website: beat-pcd.squarespace.com/events/2024/11…

We are delighted to announce the appointment of a Treasuer! Welcome to the Team Temitope. ciliopathyalliance.org/news-and-events

Looking forward to being part of this event BEAT-PCD (ERS CRC) Helping patients better understand PCD beat-pcd.squarespace.com/events #pcd #raredisease #cilia

The program and translated slides are being uploaded as soon as available on our dedicated patient conferences page: beat-pcd.squarespace.com/patientconfere…

Great clear information from Amelia Shoemark for BEAT-PCD (ERS CRC) patient meeting. #cilia #pcd #raredisease

Exciting plans for Cilia27 meeting in Milan #cilia #rarediseases #pcd #rp #pkd #usher #bbs #alstrom

Great strategy meeting today - thanks to all the researchers, scientists, patients and clinicians that are helping us. #cilia #ciliopathies #alstrom #bbs #pkd #pcd #rp #jeune #joubert #usher

We're excited to once again be joined at our conference by Professor Phil Beales! Prof Phil Beales is a world renowned researcher into Bardet-Biedl syndrome (BBS), ciliopathies and rare diseases. If you haven't already, make sure to book by visiting our website:

We're also very excited to welcome back Dr Elizabeth Forysthe to the #BBSUKConference2025! Dr. Elizabeth Forsythe is a leading expert in Bardet-Biedl syndrome (BBS) She will be providing an update on the Setmelanotide clinics If you haven't already, book on our website!

Join us next month when our experts Hannah Mitchison and Mafalda de Almeida Gomes tell us what's new in genetics for #PCD diagnosis. To register 👉beat-pcd.squarespace.com/events BEAT-PCD (ERS CRC) @Mineyuksel33 ERS Early-Career Members UCL

Exciting new trials for inherited sight loss bbc.com/news/articles/…

📢Looking for guidance on how to best manage Polycystic Kidney Disease (PKD)? Join us at our Leicester Information & Support Day, hosted by Kidney Specialist Dr Osasuyi Iyasere. Attendance is free to patients, family members and healthcare professionals, including lunch and

Good to get to chat with 2nd year medical students about our family genetics - raising awareness of PCD, RP and Lynch Syndrome Ciliopathy Alliance PCD Support UK Retina UK Lynch Syndrome UK #ciliopathies

A great opportunity findaphd.com/phds/project/f…

Great opportunity for a project role in patient and public involvement in rare respiratory disease. elxw.fa.em3.oraclecloud.com/hcmUI/Candidat… #pcd #raredisease #ppi

Join us for a webinar to learn more about skeletal ciliopathies, importance of a genetic diagnosis and the value of support groups #cilia #ciliopathies ciliopathyalliance.org/news-and-event…

Here's our latest news - mailchi.mp/045d072a909e/h…

We have an open #ERC funded PhD position to work on #cilia #mitochondria #PKD and #matabolism Deadline July 7th. Look forward to welcoming a talented PhD student to our lab in beautiful Milan 👇

Thanks to Kerry for spreading the word about our strategy UK Cilia Network #cilia #rarediseases #alstrom #pkd #pcd #rp #jeune #joubert #bbs

Join us online on Friday to learn more about skeletal Ciliopathies and the importance of support groups #retina #rp #cilia #jeune #joubert #raredisease ciliopathyalliance.org/news-and-event…