🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

NATURAL HISTORY STUDY STARTS! This is a huge milestone on our journey toward the clinical trial and a treatment for Talia and others with CMT4J. The natural history study is essentially the "Part 1" of a clinical… instagram.com/p/B0I9c8Mgvnh/…

And we're off to Dallas with Patient #2 of our CMT4J Natural History Study...Talia! Before our plane took off we traded butterfly wings for plane wings with our captain! :-) #curecmt4J #hope #raredisease #ruduffenough

Day 1 of CMT4J Natural History Study: This girl rises to every occasion. After a super-long day full of testing, Tal perked up when she finally got to meet our friend, Kinley, who also has CMT4J--an incredible… instagram.com/p/B0TIXWnAye-/…

Day Two CMT4J Natural History Study: After another day jam-packed with testing, it's a wrap and we are home! See you in six months, Dallas! As usual, Talia's glue-like ability to draw people to her and to each other… instagram.com/p/B0YVXFqg-aj/…

TONIGHT! AT 6pm, NBC10 Boston’s Abbey Niezgoda shares the latest on Talia and our continued path to clinical trial. Thank you for continuing to share our story, Abbey! #curecmt4j #raredisease #ruduffenough #rareparent.org

In case you all were wondering what was sooooo funny! Thanks again Abbey Niezgoda NBC10 Boston! ❤️

ICYMI - Here is the amazing story by Abbey Niezgoda NBC10 Boston. Please watch for an exciting update about our path to clinical trial! #CureCMT4J #RareDisease #RUDuffEnough

May this Easter bring you joy, love, happiness, faith and hope. Have a blessed and peaceful day. 💙

Ipswich is aflutter to support CureCMT4J! Where will the butterflies land next? instagram.com/p/COe_PPuJLZx/…

TY to JCI for sharing our long-awaited CMT4J GT research. Enormous gratitude to The Jackson Laboratory and the rest of our research team. Need to get into humans! JCI - AAV9-mediated FIG4 delivery prolongs life span in Charcot-Marie-Tooth disease type 4J mouse model jci.org/articles/view/…

Winthrop School got fluttered! Thank you, Principal McAdams, for supporting CureCMT4J! #curecmt4j #ruduffenough #raredisease #movetheflutter!

The Grand Finale Flutter! Nearly $3,000 raised! Thank you SO much to all those who helped to keep Moving the Flutter so we can keep Moving the Science! curecmt4j.org/donate #CureCMT4J #movetheflutter #raredisease #community

We're thrilled to announce our research partnership in Drug Repurposing! RC Modellbau Delis "gets" rare disease--the need to find treatments FAST. From CEO James Doyle: "We value disease-specific expertise from CureCMT4J--we can't develop treatments without them!" modelis.ca

What happened in Afghanistan: What we know about evacuations after Taliban takeover usatoday.com/story/news/pol… via USA TODAY & Joey Garrison

Dust off your wings...Chase the Butterfly 3-miler is back! Come run, walk, or roll to the finish through beautiful Bradley Palmer State Park, in Topsfield, MA. Register here: eventbrite.com/e/chase-the-bu…

THEY'RE BACK! Not greenheads, or killer hornets, or even those 6" blue spiders--the CureCMT4J Move the Flutter is back! THE FLUTTER FINDS YOU! You can't request it. Donate to curecmt4j.org/donate to get it moved. All proceeds go to treatment-focused research. Look for 'em!

CHASE THE BUTTERFLY 2022! Just 4 days left to register before May 1st to get your free CureCMT4J T-shirt! Help us make history in bringing the first treatments forward for a devastating, rare disease! Sun, May 15 @ beautiful Bradley Palmer State Park. eventbrite.com/.../chase-the-…...

September is Charcot Marie Tooth (CMT) Awareness Month. Help us move mountains! #curecmt4j #ruduffenough #cmt #RareDiseases curecmt4j.org/donate

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CHASE THE BUTTERFLY 2023!!! SUNDAY, MAY 21ST Registration is open! Help us get treatments out of the labs and into the people who need them! Can't join us on the 21st? Donate at curecmt4j.org eventbrite.com/e/chase-the-bu…