CureDuchenne (@cureduchenne) 's Twitter Profile
CureDuchenne

@cureduchenne

We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.

ID: 34830477

linkhttp://www.cureduchenne.org calendar_today24-04-2009 03:18:07

5,5K Tweet

6,6K Followers

519 Following

CureDuchenne (@cureduchenne) 's Twitter Profile Photo

Meet #Ibelin—a young man whose journey embodies resilience, courage, and the power of community. Written by Hawken Miller for the OCBJ this powerful piece highlights how determination can overcome immense challenges and create lasting impact. ocbj.com/oc-homepage/oc…

CureDuchenne (@cureduchenne) 's Twitter Profile Photo

EARLY BIRD ALERT! FUTURES 2025 registration is OPEN!🎉 Don't miss your chance to connect, learn, and be part of an extremely impactful Duchenne event. Secure your spot now! 🔗 REGISTER NOW web.cvent.com/event/3d756dbc… #CureDuchenne #togetherwewillCUREduchenne #dmd #FUTURES2025

EARLY BIRD ALERT! 
FUTURES 2025 registration is OPEN!🎉
Don't miss your chance to connect, learn, and be part of an extremely impactful Duchenne event.
 Secure your spot now!

🔗 REGISTER NOW 
web.cvent.com/event/3d756dbc…

 #CureDuchenne #togetherwewillCUREduchenne #dmd #FUTURES2025
CureDuchenne (@cureduchenne) 's Twitter Profile Photo

What an incredible Saturday night in Louisville! Families and caregivers came together for a night of connection, support, and hope. Our sponsors make these events possible. THANK YOU! Find an event: cureduchenne.org/events/categor… #Duchenne #Becker #DMD #MuscularDystrophy #Cure

What an incredible Saturday night in Louisville!

Families and caregivers came together for a night of connection, support, and hope. Our sponsors make these events possible. THANK YOU!

Find an event: cureduchenne.org/events/categor…

#Duchenne #Becker #DMD #MuscularDystrophy #Cure
TREAT-NMD® (@treat_nmd) 's Twitter Profile Photo

🌟 Amazing news! CureDuchenne & CHOC are opening the CureDuchenne Clinic—making expert care & new treatments easier to access for Duchenne families! 💙 📍 At CHOC’s Neuromuscular Program 🔬 Faster access to clinical trials & gene therapy 🏥 A new model for lifelong

CureDuchenne (@cureduchenne) 's Twitter Profile Photo

Our team is back from the 2025 MDA Clinical & Scientific Conference, and we're pleased to share research updates from companies presenting on the latest advancements. Check out their news releases here: cureduchenne.org/research/2025-… #CureDuchenne #DuchenneResearch #MDA #DMD #Duchenne

CureDuchenne (@cureduchenne) 's Twitter Profile Photo

RegenXBio reported new interim data from 2 additional participants in the Phase 1/2 portion of the AFFINITY DUCHENNE trial of RGX-202, an AAV8-microdystrophin gene therapy. #RegenXBio #DMD #CureDuchenne #Duchenne #musculardystrophy #genetherapy cureduchenne.org/general/aav-mi…

CureDuchenne (@cureduchenne) 's Twitter Profile Photo

Nothing feels better than this💙 Join us at FUTURES—where you can make real connections with people who get it. We come together to share community, care, and hope. ✨ Link in bio to register! #FUTURES2025 #CureDuchenne #DuchenneCommunity #DMD #FuturesSanAntonio

CureDuchenne (@cureduchenne) 's Twitter Profile Photo

Missed the Dyne Therapeutics webinar? No worries — you can watch it now! Watch it here: cureduchenne.org/webinars/dyne-… #Duchenne #CureDuchenne #DuchenneAwareness #ClinicalTrials

CureDuchenne (@cureduchenne) 's Twitter Profile Photo

NOW ANNOUNCING: Miranda Lambert and Ryan Bingham have been added to the Jack and Friends 2025 lineup. Grab your tickets today before it’s too late! #EmpowerKids Miranda Lambert Ryan Bingham axs.com/events/847870/… mackjackmcconaughey

NOW ANNOUNCING: Miranda Lambert and Ryan Bingham have been added to the Jack and Friends 2025 lineup. Grab your tickets today before it’s too late! #EmpowerKids <a href="/mirandalambert/">Miranda Lambert</a> <a href="/RyanBingham/">Ryan Bingham</a> 
axs.com/events/847870/…
<a href="/MJMempowerkids/">mackjackmcconaughey</a>
CureDuchenne (@cureduchenne) 's Twitter Profile Photo

Dance Your Heart Out At #FUTURES2025! We’re bringing the energy, the community, and the music — all that’s missing is your DJ request! 🎶 Drop your favorite song, let us know what you want to dance to! #CureDuchenne #FuturesSanAntonio #DMD #Duchenne

Dance Your Heart Out At #FUTURES2025!

We’re bringing the energy, the community, and the music — all that’s missing is your DJ request! 🎶
Drop your favorite song, let us know what you want to dance to!

#CureDuchenne #FuturesSanAntonio #DMD #Duchenne
CureDuchenne (@cureduchenne) 's Twitter Profile Photo

FUTURES Keynote Announcement! All The Things We Didn’t See Robert and Trude Steen, Parents of Mats Steen, from the award-winning documentary “The Remarkable Life of Ibelin” Make sure you are registered for FUTURES to hear them share their story!

FUTURES Keynote Announcement! 

All The Things We Didn’t See

Robert and Trude Steen, Parents of Mats Steen, from the award-winning documentary “The Remarkable Life of Ibelin”
 
Make sure you are registered for  FUTURES to hear them share their story!
CureDuchenne (@cureduchenne) 's Twitter Profile Photo

Have questions about FUTURES? We’ve got answers. Whether you're wondering what to pack, how to register, or what sessions are can’t-miss — ask us anything! #FUTURES2025 #CureDuchenne #DuchenneCommunity #TogethweWeWillCureDuchenne #DMD #FUTURESCureDuchenne #FuturesSanAntonio

Have questions about FUTURES? 

We’ve got answers.

Whether you're wondering what to pack, how to register, or what sessions are can’t-miss — ask us anything! 

#FUTURES2025 #CureDuchenne #DuchenneCommunity #TogethweWeWillCureDuchenne #DMD  #FUTURESCureDuchenne #FuturesSanAntonio
CureDuchenne (@cureduchenne) 's Twitter Profile Photo

Today on #NationalSiblingsDay, we’re celebrating the unbreakable bonds, endless support, and fierce love between siblings in the Duchenne community. #CureDuchenne #DuchenneCommunity #TogetherWeWILLCureDuchenne #SiblingsDay

Today on #NationalSiblingsDay, we’re celebrating the unbreakable bonds, endless support, and fierce love between siblings in the Duchenne community.

#CureDuchenne #DuchenneCommunity #TogetherWeWILLCureDuchenne #SiblingsDay
CureDuchenne (@cureduchenne) 's Twitter Profile Photo

🎉 The #FUTURES2025 Agenda At-A-Glance is here! From welcome receptions to BBQs, science sessions to Sunday brunch — it's all happening May 22–25 in San Antonio! More exciting details coming soon bit.ly/3xMMnOD #CureDuchenne #BrightFutures

🎉 The #FUTURES2025 Agenda At-A-Glance is here! From welcome receptions to BBQs, science sessions to Sunday brunch — it's all happening May 22–25 in San Antonio! 

More exciting details coming soon
bit.ly/3xMMnOD

#CureDuchenne #BrightFutures
CureDuchenne (@cureduchenne) 's Twitter Profile Photo

Wishing peace and renewal to all celebrating Easter and the end of Passover. This season reminds us of hope, strength, and new beginnings—values we carry forward in our mission to cure Duchenne. 💙 #Easter2025 #Passover2025 #UntilEveryoneHasACure

Wishing peace and renewal to all celebrating Easter and the end of Passover. This season reminds us of hope, strength, and new beginnings—values we carry forward in our mission to cure Duchenne. 💙
#Easter2025 #Passover2025 #UntilEveryoneHasACure
CureDuchenne (@cureduchenne) 's Twitter Profile Photo

Just one month until FUTURES!! If you haven’t already registered, now’s the time! Secure your spot at the link in bio. Let’s explore what FUTURES has to offer together! #CureDuchenneFutures #CureDuchenne #DMD #Duchenne #FUTURESSanAntonio #SanAntonio

CureDuchenne (@cureduchenne) 's Twitter Profile Photo

FDA to hold an advisory committee meeting for Capricor’s deramiocel as part of marketing approval decision. cureduchenne.org/blog/fda-to-ho… #CureDuchenne #UntilEveryoneHasACure #TogetherWeThrive #Becker #duchenne #MuscularDystrophy #exonskipping #genetherapy #FDA #Capricor