CurePSP (@curepsp) 's Twitter Profile
CurePSP

@curepsp

To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.

ID: 28383203

linkhttps://linktr.ee/curepsp calendar_today02-04-2009 17:50:31

3,3K Tweet

3,3K Followers

1,1K Following

CurePSP (@curepsp) 's Twitter Profile Photo

Continuing the theme of #HopeInAction for #CurePSPMonthOfAwareness, we proudly represented at #MSACongress2025 this past weekend, led by our partners at Mission MSA. We were honored to sponsor the poster session and connect with researchers, clinicians and community members.

Continuing the theme of #HopeInAction for #CurePSPMonthOfAwareness, we proudly represented at #MSACongress2025 this past weekend, led by our partners at <a href="/MissionMSA/">Mission MSA</a>. We were honored to sponsor the poster session and connect with researchers, clinicians and community members.
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AI is a powerful tool that has the potential to revolutionize PSP, CBD & MSA research. Dr. John Crary from Icahn School of Medicine at Mount Sinai at Mount Sinai Health System explains how machine learning is accelerating progress exponentially, from early diagnosis to protein structure prediction. #HopeInAction

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Turning hope into action starts with small steps. From starting a legacy fund to raising awareness for PSP, CBD and MSA, every effort, big or small, makes a difference. Together, we're building a stronger, more hopeful future.❤️ #HopeInAction Donate here: curepsp.org/donate

Turning hope into action starts with small steps. From starting a legacy fund to raising awareness for PSP, CBD and MSA, every effort, big or small, makes a difference. Together, we're building a stronger, more hopeful future.❤️ #HopeInAction

Donate here: curepsp.org/donate
CurePSP (@curepsp) 's Twitter Profile Photo

Join our Ask the Expert webinar on June 5 to learn about CurePSP's advocacy wins and how you can help turn awareness into action! Hear from Julie Balasalle, Nisha Quasba, and Jessica Shurer, MSW, LCSW on our legislative efforts. Register: psp.org/events #AskTheExpert #Advocacy

Join our Ask the Expert webinar on June 5 to learn about CurePSP's advocacy wins and how you can help turn awareness into action! Hear from Julie Balasalle, Nisha Quasba, and <a href="/JessicaShurer/">Jessica Shurer, MSW, LCSW</a> on our legislative efforts. Register: psp.org/events #AskTheExpert #Advocacy
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May is CurePSP’s Month of Awareness! 🌟 We're offering 20% OFF all merch all month long, because every item you wear helps spread awareness and fuels support for families impacted by PSP, CBD and MSA. #HopeInAction 🛒 Start shopping: curepsp.myshopify.com

May is CurePSP’s Month of Awareness! 🌟

We're offering 20% OFF all merch all month long, because every item you wear helps spread awareness and fuels support for families impacted by PSP, CBD and MSA. #HopeInAction

🛒 Start shopping: curepsp.myshopify.com
CurePSP (@curepsp) 's Twitter Profile Photo

Through shared experiences, we find strength, support and the drive to keep fighting for a cure. ❤️ #HopeInAction Donate today: curepsp.org/donate #CurePSP #MonthOfAwareness

Through shared experiences, we find strength, support and the drive to keep fighting for a cure. ❤️ #HopeInAction

Donate today: curepsp.org/donate

#CurePSP #MonthOfAwareness
CurePSP (@curepsp) 's Twitter Profile Photo

The #CurePSP Center of Care at BCMHouston is advancing research, treatment and support for those living with PSP, CBD and MSA, bringing hope and care to the community every day. #HopeInAction #CurePSPCenterOfCare

CurePSP (@curepsp) 's Twitter Profile Photo

For this family, hope became action—through raising awareness, finding community and sharing their journey with CBD. We're honored to share their voice. Donate today: curepsp.org/donate #CurePSP #HopeInAction #MonthOfAwareness

For this family, hope became action—through raising awareness, finding community and sharing their journey with CBD. We're honored to share their voice. 

Donate today: curepsp.org/donate

#CurePSP #HopeInAction #MonthOfAwareness
CurePSP (@curepsp) 's Twitter Profile Photo

🧠 Cedars-Sinai is part of the #CurePSP Centers of Care network, offering multidisciplinary care for individuals living with PSP, CBD and MSA. Their team is also collaborates statewide to expand provider education and improve access to care! #HopeInAction #MonthOfAwareness

CurePSP (@curepsp) 's Twitter Profile Photo

CurePSP continues its collaborative momentum by awarding the latest Pathway and Pipeline Grants, totaling approximately $400,000: psp.org/news/details/a…

CurePSP (@curepsp) 's Twitter Profile Photo

Our next Ask the Expert webinar is June 5 on CurePSP's Capitol Hill impact! Featuring Elizabeth Cooper (policy expert), Julie Balasalle, Nisha Quasba & Jessica Shurer, MSW, LCSW discussing our wins. Register: psp.org/events #AskTheExpert #Advocacy

Our next Ask the Expert webinar is June 5 on CurePSP's Capitol Hill impact! Featuring Elizabeth Cooper (policy expert), Julie Balasalle, Nisha Quasba &amp; <a href="/JessicaShurer/">Jessica Shurer, MSW, LCSW</a> discussing our wins. 

Register: psp.org/events 

#AskTheExpert #Advocacy
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The Tau Global 2025 Lived Experience Panel, featuring Paul, Beth & Linde (living with PSP, CBD & FTD family history), deeply moved 500+ researchers. “It touched my heart,” said Dr. Min, a CurePSP grantee. It was a powerful connection that we’ll keep fostering. ⭐

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Help us spread PSP awareness at the federal level! Use our toolkit to contact your members of Congress to cosponsor the 2025 House Resolution recognizing May as PSP Awareness Month, reintroduced by Rep. Suhas Subramanyam. Advocate with CurePSP! mstr.app/ad4fc29d-fca8-…

Help us spread PSP awareness at the federal level! Use our toolkit to contact your members of Congress to cosponsor the 2025 House Resolution recognizing May as PSP Awareness Month, reintroduced by Rep. Suhas Subramanyam. Advocate with CurePSP! mstr.app/ad4fc29d-fca8-…
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During #MayAwarenessMonth, we’re proud to highlight the CHUM #CurePSP Center of Care, now also a Mission #MSA Center of Excellence. ⭐ Their team is making a real impact for people living with #PSP, #CBD and #MSA through expert care, research & education. #HopeInAction

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As our May Month of Awareness comes to a close, we want to take a moment to spotlight a special event that kicked off the month: our inaugural Run for Hope 5K & 1 Mile Walk. Over 100 community members gathered at the Detroit Riverwalk, bringing no shortage of energy!#HopeInAction

As our May Month of Awareness comes to a close, we want to take a moment to spotlight a special event that kicked off the month: our inaugural Run for Hope 5K &amp; 1 Mile Walk. Over 100 community members gathered at the Detroit Riverwalk, bringing no shortage of energy!#HopeInAction
CurePSP (@curepsp) 's Twitter Profile Photo

Now that May has come to a close, we’re filled with gratitude.❤️ Thank you to families, care partners, advocates, medical professionals & researchers who helped raise awareness for PSP, CBD & MSA during #HopeInAction.

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CurePSP is investing in tomorrow’s breakthroughs today: Our Urso and Jim Atwood Neuroscience Student Fellowship Grants are empowering the next generation of scientists to continue unlocking the mysteries of PSP, CBD and related diseases: psp.org/news/details/c…

CurePSP (@curepsp) 's Twitter Profile Photo

People travel hours from multiple states for expert care in Salt Lake City. We visited our CurePSP Center of Care co-directed by Dr. Paolo Moretti & Dr. Guillaume Lamotte at University of Utah. They're building comprehensive care for PSP, CBD & MSA patients. #CurePSP #BecauseHopeMatters

People travel hours from multiple states for expert care in Salt Lake City. We visited our CurePSP Center of Care co-directed by Dr. Paolo Moretti &amp; Dr. Guillaume Lamotte at <a href="/UUtah/">University of Utah</a>. They're building comprehensive care for PSP, CBD &amp; MSA patients. #CurePSP #BecauseHopeMatters