What is one piece of advice you would give someone newly diagnosed with a UCD? #ucd #ureacycle #ureacycledisorder #ureacycledisorders #raredisease #rarediseases #metabolicdisorders #geneticdisorders

Medical Advisory Board member Andrea Gropman, MD, is ALL IN on metabolic disorders. Read the full article here: stjude.org/research/progr… #metabolicdisorders #metabolicdisorder #metabolic #health #ureacycledisorders #ureacycle #ureacycledisorder #childrenshealth #nucdf

We want to hear from you to help us shape our upcoming virtual conference. Take the survey here: nucdf.org/conference-top… #nucdf #virtualconference #ureacycle #ureacycledisorder #ureacycledisorders

Your body hears everything your mind says. <3 #wisewords #inspiration #nucdf

Clinicians, it’s not too late! You still have time to sign up for the next session in our ECHO series, “Urea Cycle Disorder ECHO: The Essentials,” scheduled for Tuesday, July 1, 5-6:30 pm ET. Details here: nucdf.org/about-ucd/echo…

Happy Friday! Have a wonderful weekend. #weekend #weekendvibes #friday #nucdf

Hello, July! #july #nucdf #newmonth #summertime

If you haven’t joined our private UCD support group yet, we invite you to join and be a part of the community. Ask questions, interact with other UCD families, share stories, and provide support. Join here: facebook.com/groups/1820629…

Become a member of the National Urea Cycle Disorders Foundation and help us in our fight against UCDs. Join here: nucdf.org/about/donate/

Happy Independence Day! <3 #independenceday #fourthofjuly #july4 #america

We love hearing from you. If you’d like to share images of you and your family enjoying the summer or celebrating a special life event, send them our way so we can share them (with your permission, of course) in our e-newsletter or on our social media. nucdf.org/about/tell-you…

Resources from NUCDF’s second session in the new clinician education series, Urea Cycle Disorders ECHO: The Essentials, are now available! Find everything here: nucdf.org/echo #teleecho #echo #nucdf #ureacycle #ureacycledisorder #ureacycledisorders

How are you today? #checkin #nucdf #howareyou

It’s hard to believe we’re talking back to school already, but it’s nearing that time! School can be a nerve-racking place and time for children with UCDs (and their parents). We’re here to support you. See our back-to-school resources here: nucdf.org/resources/ucd-…

Time is running out to register for the 2025 Virtual Conference! Register here so you don't miss out: nucdf.org/news-and-event… #virtualconference #nucdf #ureacycle #ureacycledisorder #ureacycledisorders #metabolicdisorders #geneticdisorders #raredisease #rarediseases

Have you become an official member of NUCDF yet? Your annual membership directly helps us fulfill our mission of supporting those with UCDs and continuing research/education with the ultimate goal of a cure for UCDs. Become a member: nucdf.org/about/donate/n…

Information is now available from the second session of our TeleECHO series. You can find recordings and other details here: nucdf.org/about-ucd/echo… The next session will take place on September 16. Register at the link above.

We’re proud to share that PNRI postdoc Shradha Suyal, PhD has received the 2025 Cynthia Le Mons Fellowship from @NUCDF! 🎉 Her #research in Dr. Aimée Dudley’s lab is uncovering how genetic changes cause arginase 1 deficiency, a rare #ureacycledisorder. Thank you NUCDF! 💙