Cystic Fibrosis WA (@cysticfibrosis1) 's Twitter Profile
Cystic Fibrosis WA

@cysticfibrosis1

Our mission is to contribute to the social, physical and emotional well being of those affected by cystic fibrosis and fund critical CF research.

ID: 252380205

linkhttps://www.cfwa.org.au/ calendar_today15-02-2011 02:23:19

515 Tweet

1,1K Followers

304 Following

Cystic Fibrosis Foundation (@cf_foundation) 's Twitter Profile Photo

When you grow up with a sibling who has #cysticfibrosis, you often experience challenges other kids may not face. Katherine Black, who has a teenage sister with CF, opens up about some of those challenges. on.cff.org/2uQ5HXg

Sheffield Children's (@sheffchildrens) 's Twitter Profile Photo

17-year-old Lucy is not letting long hospital stays stop her from pursuing a career she loves. Lucy has cystic fibrosis & juggles hours of treatment with attending college to study hair & media make-up. Read more about Lucy & cystic fibrosis here: sheffieldchildrens.nhs.uk/news/lucys-cys… Cystic Fibrosis Trust

17-year-old Lucy is not letting long hospital stays stop her from pursuing a career she loves. Lucy has cystic fibrosis &amp; juggles hours of treatment with attending college to study hair &amp; media make-up. Read more about Lucy &amp; cystic fibrosis here: sheffieldchildrens.nhs.uk/news/lucys-cys… <a href="/cftrust/">Cystic Fibrosis Trust</a>
The Kids Research Institute Australia (@thekids_au) 's Twitter Profile Photo

Our annual cystic fibrosis research update is coming up soon! Join us on Wednesday 1st May for an evening with CF scientists, featuring lab tours, presentations, and an opportunity to chat with researchers. Cystic Fibrosis WA …ngwithcfscientists2019.splashthat.com

Cystic Fibrosis WA (@cysticfibrosis1) 's Twitter Profile Photo

This Friday 24 May is 65 Roses Day! Help us paint WA with roses for people with cystic fibrosis. cfwa.org.au/65roses #cysticfibrosis #cysticfibrosisawareness #CF #65roses #65rosesday

This Friday 24 May is 65 Roses Day! Help us paint WA with roses for people with cystic fibrosis. cfwa.org.au/65roses  #cysticfibrosis #cysticfibrosisawareness #CF #65roses #65rosesday
Cystic Fibrosis WA (@cysticfibrosis1) 's Twitter Profile Photo

Today we are preparing over 16,000 roses to raise awareness and funds for people with cystic fibrosis (CF)! cfwa.org.au/65roses #cysticfibrosis #cfawareness #65roses #65rosesday

RSM Australia (@rsm_au) 's Twitter Profile Photo

Things picked up pace at the Exchange Tower in Perth when the Spin Charity Challenge kicked in gear! Our cyclists pedalled away to raise money for Cystic Fibrosis WA and The Steve Waugh Foundation. No helmets required!

Things picked up pace at the Exchange Tower in Perth when the Spin Charity Challenge kicked in gear! Our cyclists pedalled away to raise money for <a href="/CysticFibrosis1/">Cystic Fibrosis WA</a> and The Steve Waugh Foundation. No helmets required!
The Kids Research Institute Australia (@thekids_au) 's Twitter Profile Photo

Very exciting to be officially opening our brand new Discovery Centre today! We’ve created this fantastic space for kids visiting Perth Children’s Hospital to learn about health sciences and the research we do here - and it’s all thanks to the generous support of @lotterywest.

Very exciting to be officially opening our brand new Discovery Centre today! We’ve created this fantastic space for kids visiting Perth Children’s Hospital to learn about health sciences and the research we do here - and it’s all thanks to the generous support of @lotterywest.
Mark McGowan (@markmcgowanmp) 's Twitter Profile Photo

The two best MCs I have ever had. Thank you Zyra and Kaide for helping me officially open the telethonkids Institute Discovery Centre at the Perth Children's Hospital Hospital this morning.

The two best MCs I have ever had.

Thank you Zyra and Kaide for helping me officially open the <a href="/telethonkids/">telethonkids</a> Institute Discovery Centre at the <a href="/PerthChildrens/">Perth Children's Hospital</a> Hospital this morning.
R U OK? (@ruokanyday) 's Twitter Profile Photo

'RUOK Mate’ our new Action on Google has scenarios and tips to show you how, when and where to ask #RUOK. Available through any Google Assistant enabled device including Google Home and your smartphone. Say “Hey Google, talk to RUOK Mate” to get started.

Graham Hall (@grahamhall_lung) 's Twitter Profile Photo

It's #WorldLungDay.. so take a deep #breath and relax. Our team is passionate about improving lung health in kids, young people and families. I'm confident we can achieve this. Thanks to Nerolie Bynder for this amazing artwork and inspiration

It's #WorldLungDay.. so take a deep #breath and relax.

Our team is passionate about improving lung health in kids, young people and families.  I'm confident we can achieve this.
Thanks to <a href="/nerolie_bynder/">Nerolie Bynder</a> for this amazing artwork and inspiration
Cystic Fibrosis WA (@cysticfibrosis1) 's Twitter Profile Photo

Exciting news for many Australians with CF this week. Symdecko listed on the PBS and Orkambi listing expanded to include 2-5yo's. More info at the link. tinyurl.com/yytgfqdy

Cystic Fibrosis Trust (@cftrust) 's Twitter Profile Photo

A deal has been done. Finally, people with #cysticfibrosis living in England will have access to #Orkambi and #Symkevi. We thank the community for their support and campaigning to get access to #LifeSavingDrugsNow! More to follow

A deal has been done. Finally, people with #cysticfibrosis living in England will have access to #Orkambi and #Symkevi. We thank the community for their support and campaigning to get access to #LifeSavingDrugsNow! More to follow
Cystic Fibrosis WA (@cysticfibrosis1) 's Twitter Profile Photo

With media reports about Coronavirus (COVID-19) increasing, we are aware that this is a time of concern for many people. The best place for up to date information at this time is the WA Deartment of Health website. ww2.health.wa.gov.au/Articles/A_E/C…

Australian Department of Health and Aged Care (@healthgovau) 's Twitter Profile Photo

Everyone must practise good hygiene to protect those most vulnerable against infection and to help prevent viruses spreading. Learn more at health.gov.au/news/health-al…

Everyone must practise good hygiene to protect those most vulnerable against infection and to help prevent viruses spreading. Learn more at health.gov.au/news/health-al…
Cystic Fibrosis WA (@cysticfibrosis1) 's Twitter Profile Photo

Thank you to sunburntfilms and shan_obstaclerunning_man for putting together the awesome FREE Backyard Bootcamp fitness challenge. . Still time to jump on board, visit link in bio to get started. . #cfawareness… instagram.com/p/CCkxkP5DIqD/…

Cystic Fibrosis WA (@cysticfibrosis1) 's Twitter Profile Photo

The sudden lockdown in Perth has come as a bit of a shock to many. We hope you are all coping ok and remind you that CFWA has support available. More info at cfwa.org.au/news/membersup…

The sudden lockdown in Perth has come as a bit of a shock to many. 

We hope you are all coping ok and remind you that CFWA has support available. More info at cfwa.org.au/news/membersup…