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Excited to be at ACNS in Orlando. Dr. Agnieszka Kielian and I presenting on quantitative EEG (persyst) as part of Multimodal Neuro monitoring in the ICU for cerebral edema in a patient with an undiagnosed metabolic disorder Boston Children's Boston Children’s Child Neurology & NDD Residency Harvard Medical School National Organization for Rare Disorders (NORD)

Was an absolute pleasure to host you Marlene Scheffold

Leaving the US after an incredible research year for my medical doctoral thesis. Immensely grateful to the Ebrahimi-Fakhari_Lab at Boston Children's/Harvard Medical School and to Darius Ebrahimi-Fakhari for his unwavering support, great mentorship and for being an inspiring role model.

Join us as we kick off our 'Conversations with' series for Harvard&Hospital-affiliated members! In celebration of Women's History Month, we're hosting inspiring Women in Science on Thursday, March 14th, from 4:00 to 5:30 PM. Register via the link below! …al-postdoc-association.ticketleap.com/harvard-medica…

The final lecture in our teaching series w/ Vicente Quiroz & Darius Ebrahimi-Fakhari Boston Children's , in partnership with UTH Children’s Hospital Lusaka, Zambia 🇿🇲 The benign and transient #movementdisorders of early childhood are important to recognize both in neuro and gen peds 🌍

Optimizing genetic testing strategies for congenital anomalies in Iran nature.com/articles/s4143…

Three poster presentations at the symposium of the Tom Wahlig Foundation from our team at the Ebrahimi-Fakhari_Lab by @JEAlecu, Cedric Böger and myself on our research at Boston Children's/Harvard Medical School. It was inspiring to learn about interdisciplinary advances in rare disease research.

Cuento norteamericano sobre epilepsia infantil realiza reconocimiento al Hospital Carlos van Buren - Hospital Carlos Van Buren - Hospital Carlos Van Buren hospitalcarlosvanburen.cl/cuento-norteam… via Gobierno de Chile

Thanks to the Wahlig family for bringing us all together to learn about HSP. Another wonderful meeting! #TWS2024 #TreatHSP #raredisease

Hereditary spastic paraplegia: Journey to a treatment - Boston Children's Answers answers.childrenshospital.org/hereditary-spa…

What a way to celebrate #epilepsyday - inspiring as always Darius Ebrahimi-Fakhari! A huge congrats on winning the Blue Skies Pitch Contest EpilepsyFoundationNE Here’s to the ongoing dream of conquering #rarediseases and we all look forward to where this journey takes the team next Ebrahimi-Fakhari_Lab

Outstanding talks at the Kuna Abroms Forum Boston Medical Center by Boston Children's #movementdisorders fellows Vicente Quiroz & Kathryn Yang!! Great to see the NE child neurology community (& 150+ from around the 🌍 !!!). We all learned from our patients today. Thank you Alcy Torres

I'm delighted to have received a Springboard award from Academy of Medical Sciences and excited about where it will spring my lab to! 🪺 Watch this space for a research technician position supporting #iPSC #raredisease modelling and #proteomics!

Was a pleasure to collaborate with my former PhD supervisor, Scottie Robinson The CIMR, on this fantastic paper, just out in Journal of Cell Biology. 40 years after Scottie discovered the #clathrin adaptor AP-1, she is still revealing surprises about its function! doi.org/10.1083/jcb.20…

Thrilled by this incredible team's hard work in creating a crucial framework for managing children with #statusdystonicus. A huge thanks to MDS for amplifying our research! Movement Disorders Journal The Hospital for Sick Children (SickKids) Boston Children's doi.org/10.1002/mds.29…

Recommendations for management of acute dystonia: This is a team effort paper built on all the excellent existing literature and our clinical experience. There remains lots of work to do in the future on this, but I'm so happy to be building this foundation with a wonderful team!

#PNCRG #NeuroPICU

Thoroughly enjoyed this session co-presenting with Darius Ebrahimi-Fakhari at UCLA Pediatric Neurology ‘s noon conference, delving into both present-day clinical practices and the exciting future of #movementdisorder therapies 🧠💡 Boston Children's

An amazing guest presentation from Kathryn Yang and Darius Ebrahimi-Fakhari from Boston Children's on the exciting wolrd of pediatric #movementdisorders! Thanks for coming to chat with our division! Meeryo Choe Chris Giza Maya C. Ayoub, MD EdM

An absolute joy and privilege having Carolina Gorodetsky join us at Boston Children's - what a day, packed with insight into #deepbrainstimulation ⚡️Darius Ebrahimi-Fakhari The Hospital for Sick Children (SickKids) Boston Children’s Child Neurology & NDD Residency