Exactly this - we need a lot more focus on the right to live well, not just to die well.

Today marks the beginning of UK Disability History Month💥 For us, this is an opportunity to look back on our long struggle for autonomy, against paternalism and pity. How could we not start with the Disabled People's Direct Action Network (DAN)?

As someone who had a DNR without my consent during critical illness I know there are many pressures of coercion. It was expected a DNR was acceptable. Thankfully I was surrounded by loving friends who demanded it was removed. And here I am... #AssistUsToLive

Penny Pepper It was depressing AF to have to put together a dossier proving my "economic value" for my family in case I got seriously ill with COVID, as removing the non-consenual DNR applied simply b/c I'm on the learning disability register, took a long time.

To mark #DisabilityHistoryMonth2024 The King's Fund Library has launched a new online exhibition that delves into The King’s Fund’s archives to explore our work with and for disabled people over the past 80 years. Explore it now: features.kingsfund.org.uk/ordinary-life-…

#AssistUsToLive Dignity In Dying spent £194,000 on Facebook adds to promote their campaign from August to November. I spent £3.50p. On A4 printed piece of paper, A4 piece of card and sellotape and string holding it all together.

I did a video🙈! But I'm so proud of this exhibition. As a researcher w/personal experience of disability & LTCs, I'm passionate about inclusive disability research. I hope that we can do a lot more The King's Fund in future. #InternationalDayofDisabledPeople #DisabilityRights

"We need to ensure people’s right to live well, too." My latest blog: kingsfund.org.uk/insight-and-an… #AssistedDying #SocialCare #PalliativeCare

'The 18-week target is an important hospital milestone, but it is not a milestone for our overall health service,' says Sarah Woolnough, responding to the Prime Minister's speech on its Plan for Change and the #NHS waiting list 'milestone'. Read more: kingsfund.org.uk/insight-and-an…

An absolutely fascinating thread. Definitely would hate some of this (community participation in diagnosis?!) but a window in a very different way to run healthcare

Great blog for @thekingsfund from Dr Deborah Fenney, the assisted dying debate has helped shine a light on palliative and social care.

In other words, somebody claiming PIP (or the old DLA, which somehow I'm still personally on) can work full time and have savings and still claim. Indeed this is not a bad thing, in many cases, it's essential, the support that some disabled people get through PIP...3

Pleased to share a new blog exploring trans🏳️‍⚧️ healthcare by my excellent colleague, Frank The King's Fund #TransHealth #NHS kingsfund.org.uk/insight-and-an…

Really important evidence being given by Fazilet Hadi here - the medical model of disability is extremely influential in health care and it's vital medics have an understanding of the social model too, to support and value disabled people's lives. #AssistedDying

This thread has comments from people who are desperate and suicidal at the news of the latest 'crackdown' on benefits. These kinds of changes are always much more harmful than helpful. It feels like 2010/11 again but worse, because things have already been cut to the bone.

We condemn in the strongest terms the arrest of my friends Mahmoud Muna and Ahmad Muna, Palestinian booksellers and owners of Jerusalem’s Educational Bookshop, by Israel’s occupation authorities. The arrests of Mahmoud and Ahmad is a stark reminder of the ongoing campaign to

📣 We’re looking for case studies for our Digital health and care conference on 15 July that showcase how digital innovation and technology are transforming health and care. Email [email protected] by Sunday 30 March outlining your case study and why you want to take part.

The #NHS recently announced a review into the health of LGBT+ people. While this is a welcome development, says Deborah Fenney in her blog, the review will need to lead to specific measurable actions. Read more ⬇️ kingsfund.org.uk/insight-and-an…

My Thames Water 💧 bill is now higher than my gas and electricity - combined! - after TWO bill increases since March. I contacted them to ask and explain flatmate has moved out and all they said was i can apply for a refund if needed later on. How is this OK Martin Lewis?