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🗓️Lisbon, 5-7 June 2024 👉Do not miss the chance to participate in the EpiC2024 Epilepsy Conference 👉EpiC2024 will gather basic and clinical researchers to potentiate collaborations and advance studies on epilepsy and its comorbidities 👉Visit our Webpage epiepinet.imm.medicina.ulisboa.pt/epic2024/

AGE Program - Adult Genetic Epilespy

Great interactions at the European Dravet Syndrome Conference 2024 in Madrid, Spain. Here with my postdoc Jacqueline "Jacqui" Heighway, and Jacqui receiving the award of best oral presentation from the hands of Helen Cross, president of the ILAE. Congrats!

The Dravet Syndrome Foundation Spain organised the 2024 European Dravet Syndrome Conference, on 14th and 15th of March in Madrid. The aim of the meeting was to foster a collaboration between people dedicated to advancing research and understanding of #Dravet syndrome in Europe and around the world.

El #SíndromeDeDravet es una enfermedad neurológica. Provoca crisis epilépticas frecuentes y difíciles de controlar. Afecta a 1 de cada 16.000 nacimientos y no tiene cura. Aprende más sobre la enfermedad en esta charla organizada por Fundación Síndrome de Dravet. ➡️dravetfoundation.eu/webinar-dia-mu…

#dravetbrasil #PurpleDay #abe Dravet Syndrome UK Dravet Syndrome Foundation Spain Fundación Síndrome de Dravet Kette Valente Paulo Liberalesso

Happy #PurpleDay important time to raise awareness about #epilepsy

#Autism reshapes life with lessons of love and kindness. 💙 This #WorldAutismDay, let's strive for equality and celebrate diversity. 🌍 Listen, learn, and embrace inclusivity. 💜 #Inclusion #Diversity #Understanding

🌟 Exciting news: Dravet Syndrome Research Foundation and Querer Foundation have joined forces! 🤝 This agreement boosts research and awareness for neurological diseases. Together, we make a difference. #CollaborationForHope #UnitedForResearch 🧬💜

¡Únete el 19 de mayo a la carrera por el síndrome de Dravet! En el siguiente enlace podrás consultar toda la información 👉 dravetfoundation.eu/carrera-retodr… #sindromededravet #dravetsyndrome

Dravet Syndrome Conference on 14-15 March 2024 in Madrid which was endorsed by the EPNS. "The event was a kaleidoscope of knowledge, collaboration, and hope" Report: epns.info/past-epns-endo…

Our next BSGCT PPE series talk, we have the amazing Prof Nicola Brunetti-Pierri talking on "Liver-directed gene therapy for inherited metabolic diseases" Please register below; forms.gle/SVFcxLgzQgt7pP… UCL EGA Institute for Women's Health @GGM_ICH Great Ormond Street Hospital Charity LifeArc

Did you know #SCN1A mutations can lead to a spectrum of disorders, from migraines to severe epilepsy? 🧠💥 #DravetSyndrome, caused by a SCN1A mutation, causes frequent seizures, developmental delay, and more. 💔 🔬 Support research with just €1/month 👉 teaming.net/dravet

Call to Action! 33 organizations urge the EU HTA Coordination Group to modernize the Joint Clinical Assessment (JCA) for ATMPs. Without suitable methodologies, the JCA will hinder patient access to advanced therapies. Use all clinical evidence, including real-world data. ⚕️🧬

New article out on #Dravet syndrome, highlighting the challenges and advancements in diagnosing and treating Dravet syndrome in Spain. 👉 Read the full article here: onlinelibrary.wiley.com/doi/10.1002/ep… #DravetSyndrome #Research

Key point: Spanish PCPs are generally aware of genetic epilepsy but lack full knowledge of DS and PAGs. doi.org/10.1002/epi4.1… #epilepsy #ILAE #diagnosisdelay #Dravetsyndrome #patientsatisfaction #primarycare #publichealthcareresources International League Against Epilepsy @epilepsiaopen Wiley Neuro

📢 Exciting News! We’ve published a new #research study in Heliyon: “The Social and Emotional Burden of #Dravet Syndrome on Spanish Caregivers” 🧠. 👉 This highlights the significant impact on caregivers’ lives. Read more: cell.com/heliyon/fullte… 💜

⏳ Time is running out! Submit your abstract for the European Dravet Syndrome Conference 2025 by 22 Dec 🌍. Join us in Madrid on 3-4 April to share your research and connect with experts worldwide. 💜🚀 #Dravet #EDSC2025 #ScienceWithImpact #Research #AbstractCall2025

10 days until the European Dravet Syndrome Conference 2025 in Madrid! 🎉💜 Experts, families, and courage united against #Dravet. Big thanks to our sponsors and partners—you make it happen. 🌟 Info: dravetconference.com #DravetStrong #Conference2025

💜 Save the date! 🌟 European Dravet Syndrome Conference 2026, March 19-20, Madrid. Join global experts for #Dravet syndrome breakthroughs. Stay tuned at dravetconference.com 🚀 #EuropeanDravet2026 #Hope #Research