🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

I’m really impressed by the high level of research that was presented at the International ME/CFS Conference 2025 #mecfsconference, organized by the great Carmen Scheibenbogen: events.mecfs-research.org/en/events/conf…. I’ll mention a few (personal) highlights: 1/7

Congratulations to all the authors for this important work 👏🏼👏🏼👏🏼 We thank WE&ME Foundation PolyBio and Carol Cirot Foundation, NIH and HHMI for supporting this work, and for all the patients for heroically donating CSF for our research 🙏🏼 (end)

And #pw LongCOVID please also help me with a brief anon survey. DWP’s response to my FOI request 👇🏽implied that v few #pwLC access PIP DLA and many will lose this with the cuts. To act, I’d first like to understand what’s up… focussing on severe LC. 🙏🏽 forms.gle/YFoK9diPBBVfNJ…

Genuinely think Tessa Munt MP 🔸 is really trying to help pwME here. If you would like to participate she’s looking for info on PIP rates amongst our communities (ME &LC) #mecfs #fundtheplan

Please share my post if you would like to see better hypothyroid care for patients. We need prompt, accurate diagnosis and appropriate treatment, including access to liothyronine, T3 for those who need it. Sorry the article is behind a paywall unless you are a subscriber.

Full article accessible here: rdcu.be/el9CM

'This essay reads like it was written to justify the fatal mistreatment suffered by Maeve at the hands of health care providers who unwittingly bought into the PACE & CBT/GET propaganda. It is a disgraceful display of ignorance, hypocrisy & historical revisionism' davidtuller

Restoring the winter fuel allowance will still leave older people who lose PIP without enough money to survive. 😞 #r4today

🚀Our response to the BMJ & the SIRPA conference is out. 🧠We also examine the deeper forces behind mind-body medicine & how you can recognise it's rhetorical tricks. 👉 Part two of our cognitive therapies series Audio & TL;DR available 👇 longcovidadvoc.com/post/behind-th…

When I finally got diagnosed in 2013, the GP said, "You'll just have to self-manage it now," effectively washing his hands of me. I think about that exchange a lot: how unprofessionally he acted, and how I was too slow to insist that he do his job properly.

Rutgers study examines medical gaslighting and its affects on patients: Researchers analyzed 151 studies, finding that "symptom invalidation" can lead to trauma responses. mycentraljersey.com/story/news/hea…

The (International) Cambridge Symposium on ME/CFS/PVFS (April 1990) occurred a few weeks after Melvin Ramsay died. The proceedings from the conference were eventually published in this book, 2 years later (1992): me-pedia.org/wiki/The_Clini…

International ME Conference Week 2025 Begins tomorrow investinme.org/meconferencewe… #mecfs #research #IMECW2025 #BRMEC14 #IIMEC17 #YEMERG05 Young European ME Research Group #LongCovid European ME Research Group (EMERG)

I really hope this is true. Like many people with M.E., I would struggle to survive financially with the loss of PIP.

For my beautiful friend Evette who died yesterday of very #SevereME after years of unimaginable suffering. How many more young people have to die before this horrific disease is recognised/researched/treated appropriately?🕯️🕯️🕯️🕯️🕯️ #ME #MyalgicE #MEAwarenessHour @memorialME

Does anyone find it bizarre that psychiatry will intentionally call an extremely serious illness “somatoform disorder” or “functional neurological disorder” and put patients in extremely life threatening situations, denying patients care in a coercive setting?

Hey 👋🏼 My name is Tom & l've been living with complex chronic illness for over 15 years. I'm hoping to connect w/ ppl in this community inc. anyone living w/ MECFS, EDS, fibro, PAIS, biotoxin illness including toxic mold chronic Lyme & CIRS, POTS, Vaccine Injured, PSSD & more /1

'Wessely's Words of Wisdom' by Margaret Williams. Explores the ongoing influence of SW on the perception of M.E. Another useful record added to probably the most valuable collection of writing on M.E. in existence. Download and keep as much as you can. oneagleswings.me.uk/margaretwillia…

Enough money for a dozen nuclear submarines but no money for long-term sick and disabled people. 😕 #r4today

Me: Scientists say ME/CFS is a persistent, inappropriate, neuroimmune hypervigilance mediated by T lymphocyte-macrophage interaction but influenced by IgG antibody binding to the gamma interferon-inducible high affinity immunoglobulin receptor FcγRI. GP: Have you tried exercise?