🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Help us to build on the existing CHAMP programme of research by coming to do a PhD with us! This is such a great opportunity to focus on paediatric pain research for 4 years with a fantastic team🎉🥳 Centre for Epidemiology Versus Arthritis UoM Biology, Medicine and Health

👇Funded PhD opportunity with Dr Rebecca Lee Sarah Peters and me .. helping children and young people with chronic MSK pain - building on work from champ-study.co.uk Prof Dr Lyvonne Tume RN Professor Jane Coad RN FRCN @josephcmanning Claire Jennings Dr Marie Marshall MBE

Carers of a YP with DMD we need YOU to help with this survey to develop national guidance on nutrition & weight mgmt. Duchenne UK Joining Jack Action Duchenne Muscular Dystrophy UK @DuchenneFSG Pathfinders Neuromuscular Alliance

Delighted to be part of this study funded by Brittni Spedding led by Lucy Bray with Prof May Ng OBE 吳 诗 梅 Sally T & others with the aim to develop UK standards of education of AI Addison's Disease Self-Help Group (ADSHG) The Pituitary Foundation Child Growth Foundation XXXXXXX

Greater awareness and understanding of Duchenne muscular dystrophy (DMD) would mean that people with DMD and their families wouldn’t have to explain what it is all the time. You can read about what it’s like to live with DMD in our new report: duchenneuk.org/transformingou… #WDAD2024

📢 We would love the help of children and young people aged 7-25 years with Duchenne and their parents to develop a nutritional resource for families 📝💻📱 Thank you Duchenne UK for funding this piece of work working with Jarod Wong Dr Danielle Mountain and a fab team 😊⬇️

📢We would love to hear from children and young people aged 7-25 with #Duchenne #DMD and their parents to develop a nutrition resource for families🧑‍🍳 💻There are different ways you can share your views💬 surveymonkey.com/r/TheNutrition… 💫Thank you to Duchenne UK for funding this work!

Great discussion of our work lead by Dr Danielle Mountain and Daniela Ghio on the interplay between #pain, #disease and perception of #control This work is currently under peer-review so hopefully out soon! #PReS2024

Work in a school or college? Interested in developing inclusive school environments for young people living with rheumatic conditions such as arthritis? Sign up for our webinar tomorrow night. Amazing set of speakers. Small changes make a big difference 💖

📣We would love to hear from young people aged 7-25 with Duchenne and their parents to develop a nutrition resource for families🧑‍🍳 There are different ways to take part: 🤳Quick survey 💬Interview 🎨Activity pack Please 📧[email protected] or click ⬇️ surveymonkey.com/r/TheNutrition…

We are developing national standards of education of a YP with adrenal insufficiency & need the voice of parents/YP. Particularly looking for those who will take part in the focus groups Addison's Disease Self-Help Group (ADSHG) The Pituitary Foundation Child Growth Foundation BSPED Duchenne UK

Delighted that Danielle Mountain was awarded best poster at #BSPED2024 #Glasgow & Sarah McCarrison runner up at CME day case presentation BSPED Well done to all trainees & students who presented! You all did a superb job! Lucy Bray

After a week of celebrations it was a lovely surprise to finish the week with being awarded best poster at #BSPED2024 🎉 🙏 Thank you so much to BSPED and to Stichting Duchenne for funding this work Lucy Bray Jarod Wong

Just no note that Lucy Bray will present some results of the opinion of YP with DMD/parents/clinicians on use of bisphosphonate in DMD before fracture Action Duchenne conference in Nov 2024 Thanks to Stichting Duchenne for the funding. Hope to see many families there!

🗓️ Last week ⏰ We would still love to hear from young people aged 16-25 years with additional needs in North-west England about accessing health care 🏥 🦷 💊 surveymonkey.com/r/YPaccesstohe… Thank you to the young people at GMYN #YoungPeopleCan and Sefton CVS for advising us!

Stanford Study Evaluates the Social Impact of Chronic Pain Managing chronic pain isn’t just about reducing pain or improving physical function. It also impacts social life and mental health. Pain treatment should focus on social well-being as much as on pain relief. Why it

🌟New paper 🦴 🏥 The prospective acceptability of preventative IV bisphosphonate therapy prior to fracture: Perspectives of young people with Duchenne muscular dystrophy, parents and health professionals. journals.plos.org/plosone/articl…

After delaying graduation as little one was due, yesterday I finally celebrated completing my PhD 🎓 thank you to all who helped me get here- lucky and grateful don't begin to cover it! Daniela Ghio Sarah Peters Dr Rebecca Lee Lis Cordingley & Janet McDonagh MCHP Centre for Epidemiology Versus Arthritis