DataSavesLives (@datasaves_lives) 's Twitter Profile
DataSavesLives

@datasaves_lives

A Europe where trustworthy data sharing supports health & scientific research to meet the needs of patients. We support the #datasaveslives movement!
Find us ⤵️

ID: 1125741792597630977

linkhttps://linktr.ee/datasaveslives calendar_today07-05-2019 12:38:53

1,1K Tweet

3,3K Followers

450 Following

DataSavesLives (@datasaves_lives) 's Twitter Profile Photo

It's a wrap for our #DSL5 Anniversary Event. 🛟🎂 We extend our warm thanks to all the panellists and participants for their engaging and insightful discussions on the use of #HealthData and its impact on patients. Join us as we continue this journey! 📸 by Elio Germani

It's a wrap for our #DSL5 Anniversary Event. 🛟🎂

We extend our warm thanks to all the panellists and participants for their engaging and insightful discussions on the use of #HealthData and its impact on patients.

Join us as we continue this journey!

📸 by Elio Germani
DataSavesLives (@datasaves_lives) 's Twitter Profile Photo

With the #DSL5 Anniversary Event freshly in our minds, we want to take a moment to express our gratitude to our sponsors! 🙏 Thanks to your contribution, we created an engaging atmosphere for insightful discussions on the future of #HealthData and patient empowerment.

With the #DSL5 Anniversary Event freshly in our minds, we want to take a moment to express our gratitude to our sponsors! 🙏

Thanks to your contribution, we created an engaging atmosphere for insightful discussions on the future of #HealthData and patient empowerment.
DataSavesLives (@datasaves_lives) 's Twitter Profile Photo

Last month, our #DSL5 event brought together key stakeholders from Europe's health landscape to explore the progress, challenges, and future of responsible #HealthData sharing. Dive into the highlights and discover how #DataSavesLives 👇 bit.ly/4gADisP

DataSavesLives (@datasaves_lives) 's Twitter Profile Photo

Milana Trucl recently joined our colleagues at @EUneurology for the latest episode of the Brain Health Matters podcast. Tune in now at: bit.ly/407xiRL

Milana Trucl recently joined our colleagues at @EUneurology for the latest episode of the Brain Health Matters podcast.

Tune in now at: bit.ly/407xiRL
DataSavesLives (@datasaves_lives) 's Twitter Profile Photo

Can #AI transform health? Join the AIRA webinar for an inspiring discussion on the future of AI in #health, led by experts who will share their insights on rights, innovation & inclusivity for #autistic communities. 📅 21 January ⏰ 12:30–14:30 CET 🌐 forms.gle/ygZgk8Fup95arg…

Can #AI transform health?

Join the AIRA webinar for an inspiring discussion on the future of AI in #health, led by experts who will share their insights on rights, innovation & inclusivity for #autistic communities.

📅 21 January 
⏰ 12:30–14:30 CET
🌐 forms.gle/ygZgk8Fup95arg…
DataSavesLives (@datasaves_lives) 's Twitter Profile Photo

How to facilitate access to #healthcare data and its uses? France Assos Santé explains how their service, in collaboration with the French institution Health Data Hub, will simplify access to #HealthData tailored to the needs of patient associations. ➡️ bit.ly/42kCx3e

How to facilitate access to #healthcare data and its uses?

<a href="/Fr_Assos_Sante/">France Assos Santé</a> explains how their service, in collaboration with the French institution <a href="/HealthDataHub/">Health Data Hub</a>, will simplify access to #HealthData tailored to the needs of patient associations.

➡️ bit.ly/42kCx3e
DataSavesLives (@datasaves_lives) 's Twitter Profile Photo

The #EHDS Regulation is expected to come into force in April, empowering patients with access to their #HealthData & enabling its use for research, among other purposes. An analysis by the European Patients' Forum highlights the implications for patients ➡️ bit.ly/3Q89Nnd #DSL

The #EHDS Regulation is expected to come into force in April, empowering patients with access to their #HealthData &amp; enabling its use for research, among other purposes.

An analysis by the <a href="/eupatientsforum/">European Patients' Forum</a> highlights the implications for patients ➡️ bit.ly/3Q89Nnd

#DSL
DataSavesLives (@datasaves_lives) 's Twitter Profile Photo

🆕 Our #DSL toolkits are now available in English, Dutch, French, Greek, Italian, Polish, Romanian and Spanish! ➡️ Explore the toolkits here: datasaveslives.eu/toolkit 💡 What’s next? A brand-new toolkit on the European Health Data Space (#EHDS) - stay tuned! #HealthData

🆕 Our #DSL toolkits are now available in English, Dutch, French, Greek, Italian, Polish, Romanian and Spanish!

➡️ Explore the toolkits here: datasaveslives.eu/toolkit

💡 What’s next? A brand-new toolkit on the European Health Data Space (#EHDS) - stay tuned! 
#HealthData
European Patients' Forum (@eupatientsforum) 's Twitter Profile Photo

Imagine spending a summer in Brussels with young advocates, learning how #AI & #DigitalHealth can drive patient-centred innovation. This isn’t a dream - it’s #STYPA2025! 📍Brussels & online 📅June–Oct 2025 👥 Young patients (18-30) from Europe Apply now: bit.ly/4hn1hwN

Imagine spending a summer in Brussels with young advocates, learning how #AI &amp; #DigitalHealth can drive patient-centred innovation. This isn’t a dream - it’s #STYPA2025!

📍Brussels &amp; online
📅June–Oct 2025 👥 Young patients (18-30) from Europe
Apply now: bit.ly/4hn1hwN
DataSavesLives (@datasaves_lives) 's Twitter Profile Photo

The #EHDS Regulation is expected to come into force in April, empowering patients with access to their #HealthData & enabling its use for research, among other purposes. But how can Member States & the European Commission ensure a successful implementation? ➡️ bit.ly/3Q89Nnd

The #EHDS Regulation is expected to come into force in April, empowering patients with access to their #HealthData &amp; enabling its use for research, among other purposes.

But how can Member States &amp; the <a href="/EU_Commission/">European Commission</a> ensure a successful implementation? ➡️ bit.ly/3Q89Nnd
European Patients' Forum (@eupatientsforum) 's Twitter Profile Photo

Let's keep patient perspectives central in #HealthData initiatives! 🤝 On 6 March, imi_H2O, in collaboration with DataSavesLives, hosts its 3rd patient engagement event - bringing together patients, patient orgs, HCPs & partners to ensure patient-centred engagement in H2O.

Let's keep patient perspectives central in #HealthData initiatives! 🤝

On 6 March, <a href="/imi_h2o/">imi_H2O</a>, in collaboration with <a href="/DataSaves_Lives/">DataSavesLives</a>, hosts its 3rd patient engagement event - bringing together patients, patient orgs, HCPs &amp; partners to ensure patient-centred engagement in H2O.
DataSavesLives (@datasaves_lives) 's Twitter Profile Photo

Feeling nostalgic? Last November, we hosted our 5-year anniversary event in Brussels. It provided an opportunity to reflect on our journey of empowering #health communities through #data literacy. Check out our 🆕 report for all the highlights: bit.ly/420vcUT #DSL5

Feeling nostalgic?

Last November, we hosted our 5-year anniversary event in Brussels. It provided an opportunity to reflect on our journey of empowering #health communities through #data literacy. 

Check out our 🆕 report for all the highlights: bit.ly/420vcUT

#DSL5
European Patients' Forum (@eupatientsforum) 's Twitter Profile Photo

Are you looking to know more about the #EHDS? 🤔 Our upcoming webinar will help you understand the practical changes introduced by the EHDS. You'll also hear about real-world examples of EHDS literacy efforts! Register here bit.ly/42kolpy #DataSavesLives

Are you looking to know more about the #EHDS? 🤔

Our upcoming webinar will help you understand the practical changes introduced by the EHDS. You'll also hear about real-world examples of EHDS literacy efforts!

Register here  bit.ly/42kolpy
#DataSavesLives
European Patients' Forum (@eupatientsforum) 's Twitter Profile Photo

Are you looking to know more about the #EuropeanHealthDataSpace?🤔 Our upcoming webinar explore the practical changes introduced by the #EHDS, with real-world examples of EHDS literacy efforts! ℹ️Date: 15th May 2025 ℹ️Time: 11:00-12:00 CET Register➡️ bit.ly/42kolpy

Are you looking to know more about the #EuropeanHealthDataSpace?🤔

Our upcoming webinar explore the practical changes introduced by the #EHDS, with real-world examples of EHDS literacy efforts!

ℹ️Date: 15th May 2025
ℹ️Time: 11:00-12:00 CET

Register➡️ bit.ly/42kolpy
DataSavesLives (@datasaves_lives) 's Twitter Profile Photo

🆕 Blog alert! In this article, Sascha Marschang from the European Hospital and Healthcare Federation (HOPE) explores the need for greater protection and investment against #cybersecurity threats. Read more 👉 bit.ly/4jYN8XX #DataSavesLives #HealthData

🆕 Blog alert!

In this article, Sascha Marschang from the European Hospital and Healthcare Federation (HOPE) explores the need for greater protection and investment against #cybersecurity threats.

Read more 👉 bit.ly/4jYN8XX

#DataSavesLives #HealthData
DataSavesLives (@datasaves_lives) 's Twitter Profile Photo

Do you want to know more about the #EuropeanHealthDataSpace? 🤔 Don't miss our webinar next week! It will explore the practical changes introduced by the #EHDS, with real-world examples of EHDS literacy efforts. Register ➡️ bit.ly/42kolpy #HealthData #DataSavesLives

Do you want to know more about the #EuropeanHealthDataSpace? 🤔

Don't miss our webinar next week! It will explore the practical changes introduced by the #EHDS, with real-world examples of EHDS literacy efforts.

Register ➡️ bit.ly/42kolpy

#HealthData #DataSavesLives
European Patients' Forum (@eupatientsforum) 's Twitter Profile Photo

New survey on patients’ perspectives on the use of #AI in healthcare! (available in 25 languages) Your input will play a crucial role in ensure the future of AI in healthcare remains ethical, safe, inclusive, and truly patient-centred. ➡️bit.ly/4mh8P6S

New survey on patients’ perspectives on the use of #AI in healthcare! (available in 25 languages)

Your input will play a crucial role in ensure the future of AI in healthcare remains ethical, safe, inclusive, and truly patient-centred.

➡️bit.ly/4mh8P6S
DataSavesLives (@datasaves_lives) 's Twitter Profile Photo

In May, the European Patients' Forum hosted a webinar about the key aspects of the European Health Data Space (#EHDS). The webinar also marked the launch of our new EHDS toolkit. 📺 Missed it? Watch the full recording now: youtube.com/watch?v=VZqC0k… #EuropeanHealthDataSpace #HealthData

In May, the <a href="/eupatientsforum/">European Patients' Forum</a> hosted a webinar about the key aspects of the European Health Data Space (#EHDS).

The webinar also marked the launch of our new EHDS toolkit.

📺 Missed it? Watch the full recording now: youtube.com/watch?v=VZqC0k…

#EuropeanHealthDataSpace #HealthData
DataSavesLives (@datasaves_lives) 's Twitter Profile Photo

Have you read the part 4⃣ of our toolkit? It's specifically for patients and patient organisations, and breaks down the key features of the #EuropeanHealthDataSpace. 🔗 datasaveslives.eu/toolkit #DataSavesLives #EHDS #HealthData #DigitalHealth

Have you read the part 4⃣ of our toolkit?

It's specifically for patients and patient organisations, and breaks down the key features of the #EuropeanHealthDataSpace.

🔗 datasaveslives.eu/toolkit

#DataSavesLives #EHDS #HealthData #DigitalHealth