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A3: A perfect day would involve a truly all-terrain (including water) wheelchair, a beach on a warm but not too hot day, and my dog Beacon. Plus yummy food, a wheelchair-accessible beachfront hotel/motel room, and no schedule except for what feels good. #SpoonieChat

A4: Overheating and feeling wobbly, thanks POTS. Not being heard, respected, or taken seriously. #SpoonieChat

@dawnmgibson.bsky.social @spooniechat.bsky.social A3: TBH, what you just said would apply to me, too! I'd maybe add sidewalks that are not full of holes and things I can trip over. #SpoonieChat

A1: I hear this down deep. #SpoonieChat

A6: Community. Healthcare, the government, capitalism might not take care of us, but we will take care of each other. #SpoonieChat

A4: The barriers that can make a day miserable: scented products at the front of a business, a chef (back when I ate out) assuming my food allergies aren't real or are "trendy", nowhere to sit down if I need to, fluorescent lights that make me dizzy. #SpoonieChat

A6: I've learned that I'm not alone - that there are so many of us out there; connected to that is the idea that we can be resources and support for each other because often, those things are missing elsewhere in our society. #SpoonieChat

A6: The most important thing that you all have taught me is that any of us can change things by living proudly, openly, and with integrity. #SpoonieChat

A7: I have to get some tests done next week that I’m stressing about. 🤞🏻They go well. See y’all on the flip side - I’m over in the blue place with the same handle. #SpoonieChat

A1: I’m Shannon, very late for #SpoonieChat! #JPsA #hEDS I’m a dog mom restoring a 1911 bungalow with my husband. We have two pups, a #bassethpund + a #minidachshund. I am into legislative advocacy for access to healthcare for #arthritis patients.

@dawnmgibson.bsky.social @spooniechat.bsky.social A2: I lack the spoons to think of anything! What a great question, though! #SpoonieChat

A1: #SpoonieChat

#SpoonieChat, thanks for an amazing 12 years on here! Now it's time to go get it over on the blue place. Starting again isn't easy, but that's okay. We can do hard things. Love you!

A6: The value of community, being seen, and finding other people who share some of your experiences. Not surprising, just affirming. #SpoonieChat

A5: I miss the people who left, as their Twitter selves. The same people (mostly) feel too curated on the blue place—like “no bad vibes allowed.” It isn’t quite toxic positivity but it doesn’t feel like the raw, come-as-you-are energy from OG Twitter. #SpoonieChat