Desmoid Foundation ONLUS - Italia (@desmoidi) 's Twitter Profile
Desmoid Foundation ONLUS - Italia

@desmoidi

Desmoid Foundation ONLUS is a non-profit org that connects patients with desmoid and Gardner's syndrome with the competent scientific community.

ID: 1067859191740674049

linkhttp://www.desmoidfoundation.org calendar_today28-11-2018 19:14:05

237 Tweet

536 Followers

299 Following

Desmoid Foundation ONLUS - Italia (@desmoidi) 's Twitter Profile Photo

** π‚π€πŒππ€π†ππ€ π’πŽπ‚πˆ 𝟐𝟎𝟐𝟐 ** Sono aperte le iscrizioni soci per la Desmoid Foundation ONLUS, a supporto dei pazienti affetti da tumore #desmoide e Sindrome di Gardner❀️ Per saperne di piΓΉ, visitate il nostro sito web: desmoidfoundation.org #desmoid #RareDisease

** π‚π€πŒππ€π†ππ€ π’πŽπ‚πˆ 𝟐𝟎𝟐𝟐 ** 

Sono aperte le iscrizioni soci per la Desmoid Foundation ONLUS, a supporto dei pazienti affetti da tumore #desmoide e Sindrome di Gardner❀️

Per saperne di piΓΉ, visitate il nostro sito web: 
desmoidfoundation.org

#desmoid #RareDisease
Desmoid Foundation ONLUS - Italia (@desmoidi) 's Twitter Profile Photo

Thanks to Dr. Chiara Colombo and Dr. Costanza Figura for their participation at the 12th annual conference SPAGN.It was a meeting full of important informations and updates for #desmoid tumor. Thanks to Christina, Michi and all SPAGN staff for organizing it!

Thanks to Dr. Chiara Colombo and Dr. Costanza Figura for their participation at the 12th annual conference <a href="/sarcomapatients/">SPAGN</a>.It was a meeting full of important informations and updates for #desmoid tumor.
Thanks to Christina, Michi and all <a href="/sarcomapatients/">SPAGN</a> staff for organizing it!
Desmoid Foundation ONLUS - Italia (@desmoidi) 's Twitter Profile Photo

3 December - International Day of Persons with Disabilities We are close to all patients with invisible disabilities, as all patients with #cancer. #desmoid #tumor is a rare disease and it's often an invisible #disease. But no one has to be let alone. Let's be kind always!

3 December - International Day of Persons with Disabilities

We are close to all patients with invisible disabilities, as all patients with #cancer.
#desmoid #tumor is a rare disease and it's often an invisible #disease. But no one has to be let alone.

Let's be kind always!
Chirurgia dei Sarcomi INT (@chirsarcomi_int) 's Twitter Profile Photo

✏️NovitΓ : dal 15 gennaio anche i Pazienti presi in carico dalla Chirurgia dei #Sarcomi potranno usufruire del servizio di #telemedicina πŸ–₯️ Per maggiori informazioni in merito: istitutotumori.mi.it/pagina-articol… Istituto Tumori Alessandro Gronchi Marco Fiore, MD, FACS, FEBSh #ChiaraColombo Stefano Radaelli Dario Callegaro

Desmoid Foundation ONLUS - Italia (@desmoidi) 's Twitter Profile Photo

Thank you to Italian Sarcoma Group to invite us to join more than 60 specialists in #desmoid tumor to speak about #cryoablation, systemic #therapies and #patient perception, #pregnancy and #nirogacestat. We sincerely thank each of these doctors! #df #isg #RareDisease

Alessandro Gronchi (@alegronchi) 's Twitter Profile Photo

And after the successful day of the consensus meeting of desmoid tumor working group, today is the Italian desmoid patients’ day at ⁦Istituto Tumori⁩ ⁦Chirurgia dei Sarcomi INT⁩ Pregnancy, Surveillance, Cryotherapy, New drugs and more. ⁦CTOS⁩ ⁦⁦Desmoid Foundation ONLUS - Italia⁩

And after the successful day of the consensus meeting of desmoid tumor working group, today is the Italian desmoid patients’ day at ⁦<a href="/IstTumori/">Istituto Tumori</a>⁩ ⁦<a href="/ChirSarcomi_INT/">Chirurgia dei Sarcomi INT</a>⁩ Pregnancy, Surveillance, Cryotherapy, New drugs and more. ⁦<a href="/ctosociety/">CTOS</a>⁩ ⁦⁦<a href="/DesmoidI/">Desmoid Foundation ONLUS - Italia</a>⁩
Desmoid Foundation ONLUS - Italia (@desmoidi) 's Twitter Profile Photo

Special thanks to Pamela Musaio for the book explaining Rare tumors and inclusivity to kids in the schools and thanks to Sarcoma UniTo lab for the fantastic work carried out with passion and excellence! πŸ‘πŸ‘πŸ‘