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Sometimes I like wearing a mask in public, especially in medical settings, because I clearly make people uncomfortable. Oh no! Am I reminding you that we’re in an on-going pandemic that is still disproportionately impacting disabled people like me? How inconsiderate of me 🫠

I’m so tired even my teeth are exhausted

If youre doing disability-related advocacy work in person, without wear a N95, and you can safely wear a mask to protect others, then I have real questions about the depths of your solidarity, the quality of your research, and your foundational understanding of disability rights

I scheduled time to go through documents to collect for my lawsuit against my former employer today. There’s just so much I need to collect that it’s going to take hours to days. I also know it’s going to be really emotionally and mentally draining. But I ate some bad food this

Recently launched professional Threads and Instagram accounts and it is very disheartening to see how little disability activists in those spaces seem to care about COVID or masking at their various events and gatherings. I guess disabled solidarity ends where photo ops begin.🫠

Healthcare is so inaccessibly expensive that after I was hit by a car and barely conscious lying on the ground post concussion, I tried to refuse the EMTs taking me to the hospital. I couldn’t walk or even stand and I was worried about the cost even while half conscious and

Anyone else TRYING to use the blue place but struggling? What am I missing about how to make it work? How to see content I want? How to find people I like? I don’t know if it’s the feed, the format, the appearance, or whatever else, but I just can’t get into using it regularly.

Did you know that the reason most physicians don’t mask is because they are immune to long COVID? Wild, right? It’s just us lowly patients who succumb to it — especially the disposable ones. 🫠

I have facial pain so I went to a glasses place to try on some lightweight frames to see if they might allow me to wear my glasses without my face feeling like it’s on fire. Well, the light frames seemed like they’d work, but they were about $350 AFTER insurance and without the

When I had my hysterectomy, I was told recovery would be quick because I was young, fit & otherwise healthy. They were wrong. The surgeon made an error and despite signs of post op bleeding, discharged me & went on vacation. When I returned to the ER, I was ignored & gaslit 🧵

“Difficult” patients aren’t difficult, you’re just bad at your job.