🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

🔖New paper, thanks to this great international collaboration: Do germline genetic variants influence surgical outcomes in drug-resis... sciencedirect.com/science/articl…

New paper about CHD2-RD in adults, led by @marlenerong in AGE Program - Adult Genetic Epilespy's lab, describing 14 adult CHD2 pts with seizures, behavioral challenges, gait issues, and other comorbidities impacting their sleep, eating and pain responsiveness. Congrats! neurology.org/doi/10.1212/NX…

We couldn’t have done it without your help, Coalition to Cure CHD2! Thanks to all families and our collaborators. Congratulations @marlenerong !

Great minds focused on how to cure #DEEs! Ana Mingorance SynGAP Research Fund (SRF) American Epilepsy Society #AES2024

Happy to meeting good friends, learn and share what we’ve learned American Epilepsy Society #AES2024 Quratulain Zulfiqar Ali (she/her) Victor Lira Ángel Aledo-Serrano Rikke S. Møller Andreas Brunklaus Allan Bayat, associated professor Kette Valente Ingo Helbig Orrin Devinsky Stéphane Auvin

Happy to share this workshop with Ingo Helbig and Lacey Smith. We’ll share pearls of genetic testing and how to avoid pitfalls 🧬🧬 American Epilepsy Society Krembil Brain Institute @#AES2024

1st Symposium of the Pediatric Commission of the International League Against Epilepsy Online and In-Person March 21-24, 2025 cursoslbe.com.br Julia LeVan, MD Elaine Wirrell Helen Cross Rima Nabbout Prof Ingrid Scheffer

Mark your calendars for the 1st Pediatric Commission Symposium of the International League Against Epilepsy !🗓️ 📅 When: March 21-24, 2025 📍 Where: In-Person or Online – your choice! 🔗 Learn more and register here: lnkd.in/dTD2Us9x

Looking forward to sharing insights on Ageing with Dravet Syndrome and Psychosis in Adults at the European DS Conference in Madrid! Important conversations as more individuals with #DravetSyndrome reach adulthood. Fundación Síndrome de Dravet Dravet Syndrome Foundation Dravet Syndrome Foundation Spain @

Today is #purpleday for #epilepsy #awareness! Join #CLAE in increasing epilepsy awareness worldwide!

Thank you to everyone for celebrating #PurpleDay and raising awareness about epilepsy at University Health Network’s Toronto Western hospital! Thanks to donor support, UHN has the largest epilepsy program in Canada 💜 Krembil Brain Institute Neuron To Brain Lab jaideep bains Thomas Forbes Dr. Valiante CRANIA

Dravet syndrome: From neurodevelopmental to neurodegenerative disease? pubmed.ncbi.nlm.nih.gov/40034086/ Since publishing, several families came up saying they also see these features in their adults with DS. We just scratched the surface. Fundación Síndrome de Dravet Dravet Syndrome Foundation

Parkinsonism is common in adults with #DravetSyndrome, in addition over 10% screen positive for #dementia. We need to better understand this "not-only pediatric" disease. pubmed.ncbi.nlm.nih.gov/40034086/

🎉Grant Celebration!🎉 Led by Holland Bloorview, the Adult Genetic Epilepsy Program at UHN's Krembil Brain Institute, supervised by AGE Program - Adult Genetic Epilespy, has been selected for the Canadian Precision Health Initiative Pillar 1 grant in collab with SickKids Foundation! 🔗: linktr.ee/krembil

Neuralink Hey SynGAP Research Fund (SRF) Mike Graglia 🌻 Virginie McNamar we need to get every Syngap patient over 18 registered here! cc: AGE Program - Adult Genetic Epilespy 👀

🚨 Only 1 day left to apply for the #CLAEJazz Awards! Finalist will pitch live at #CLAE2025. Trainees & early-career DEE researchers - your deadline is June 13 🧠🏆 #MedicalResearch #FundingOpportunity #EpilepsyResearch 🔗 claegroup.org/Awards

CACNA1A-related hemiplegic migraine—the big unknown | Beyond the Ion Channel ...we just published out blog post on the longitudinal trajectory of hemiplegic migraines in CACNA1A-related disorders. epilepsygenetics.net/2025/06/13/cac…

Great job,I ngo!