🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

We're on the lookout for two passionate and caring individuals to take part in the iconic Brighton Marathon this April. 🏃‍♂️🏃‍♀️ Make every stride count in improving the lives of millions of children who require palliative care globally. 🌍 To secure a place email: [email protected]

📢 NEW C-POS PAPER: '‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition'. Published #OpenAccess 🔓 in Palliative Medicine: doi.org/10.1177/026921… #pedpc 1/6 🧵

Attending the 18th National Current Issues in Palliative Care Conference 2024? Join @LucyCoombes7 in the Paediatric Palliative Care break-out session to find out about outcome measurement in paediatric palliative care #pedpc

@LucyCoombes7 presenting at the POS/IPOS training days Cicely Saunders Institute at King's on the development and validation of the UK C-POS: a novel #PROM/#PCOM for #children & #YoungPeople with #LifeLimiting & #LifeThreatening conditions and their #families

What a wonderful way to end the POS/IPOS training days Cicely Saunders Institute at King's, celebrating the successes of the C-POS (Children’s Palliative care Outcome Scale), with a few of the team (missing those not here!) CYP Research in Palliative Care

Downloaded the #EAPC2024 Conference App? Check out the e-poster gallery ahead of the Conference. Search for Pru Holder's (Cicely Saunders Institute at King's) poster on their 'scoping review of barriers and facilitators to paediatric palliative care referral and interventions to improve access'

Attending #EAPC2024 today? Don't miss the chance to 'Meet the C-POS Team' (Lucy Coombes, Debbie Braybrook (she/her), Hannah Scott) between 12:30-13:15 CEST at the Cicely Saunders Institute at King's stand EAPC VZW

What a milestone! So grateful to all of the committed hospital, hospice and community teams who are helping us recruit children with life-limiting conditions and their parents to this study. Your work is invaluable🌟

The C-POS study held their final steering group meeting. We're really grateful to the sites that have supported recruitment & especially grateful to our #PPI members (DaniellaLogunFoundation (DLF) Fabian's Childhood Cancer Trust). We're in our final week of recruiting families to our study before analysis begins

Delighted to participate in the final CYP Research in Palliative Care C-POS project meeting. Robust. Scientifically complex in leadership. 76 UK sites, over 500 participants, CYP, Parents, HSCPs & commissioners. 20yrs+ of waiting Fabian's Childhood Cancer Trust Lucy Coombes Hannah Scott RichardHarding Debbie Braybrook (she/her)

Excited to share these two short videos (for families & #pedpc professionals), about the potential benefits of C-POS (CYP Research in Palliative Care Cicely Saunders Institute at King's), developed based on findings & recommendations from my #PhD with #PPI Professionals: youtube.com/watch?v=wNeOWq… Families: youtube.com/watch?v=0UMJdS…

An important step in #PCOM development is #cognitive testing to establish comprehensibility, comprehensiveness, relevance & acceptability. Lucy Coombes led a cognitive interview study to test and refine the initial versions of C-POS #pedpc. Full article: doi.org/10.1177/026921…

Exciting opportunity to work with ⁦RichardHarding⁩ and myself on an ⁦National Institute for Health and Care Research⁩ ⁦RCPCH⁩ grant. Please share ⁦The CoLab Partnership⁩ ⁦⁦Together for Short Lives⁩ ⁦The Association for Paediatric Palliative Medicine⁩ ⁦Cicely Saunders Institute at King's⁩ ⁦CYP Research in Palliative Care⁩ #childhealth kcl.ac.uk/jobs/095043-re…

New paper - please stop asking professionals about barriers to #pedpc we need to make changes and evaluate to improve ⁦Cicely Saunders Institute at King's⁩ ⁦RichardHarding⁩ ⁦CYP Research in Palliative Care⁩ ⁦True Colours Trust⁩ ⁦Together for Short Lives⁩ ⁦The Association for Paediatric Palliative Medicine⁩ journals.sagepub.com/doi/10.1177/02…

🌟Paper of the week! A scoping review assessing the extent and type of evidence regarding barriers and facilitators to referral and access to pediatric palliative care, and interventions used to improve access. journals.sagepub.com/doi/full/10.11…

Happy to share that I was successful this week in being appointed as Nurse Consultant for the paediatric palliative care team The Royal Marsden NHS Foundation Trust . Looking forward to continuing to improve the lives of children and young people with palliative care needs. #pedpc

Fantastic monthly mentorship session today as part of the ICPCN and World Child Cancer partnership aiming to support healthcare professionals in Ghana to provide paediatric palliative care. Some fantastic action plans being implemented #pedpc Lizzie Chambers Julia Downing

Quite the honour and quite the surreal experience too. Delighted to find myself awarded an MBE in the 2025 New Year Honours List.