Dravet Syndrome UK (@dravetuk) 's Twitter Profile
Dravet Syndrome UK

@dravetuk

We are dedicated to improving the lives of children and adults living with Dravet Syndrome, a rare epilepsy, through medical research, education and support.

ID: 475120607

linkhttp://www.dravet.org.uk/ calendar_today26-01-2012 18:17:41

4,4K Tweet

2,2K Followers

1,1K Following

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Siblings make a huge difference to the lives of those living with Dravet Syndrome, which is why we celebrate their courage through our annual #DSUKSiblingAwards. 🤩 To nominate a sibling or for more details visit bit.ly/4hFaOjf Closing date is Friday 6th December.

Siblings make a huge difference to the lives of those living with Dravet Syndrome, which is why we celebrate their courage through our annual #DSUKSiblingAwards. 🤩 

To nominate a sibling or for more details visit bit.ly/4hFaOjf

Closing date is Friday 6th December.
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We're looking for corporate sponsorship for #EveryDayInMayForDravet, one of our biggest campaigns of the year, to help make the event bigger and better than ever!✨ If you know a company that may be interested, download our brochure and get in touch! ➡️ bit.ly/3YWhgd9

We're looking for corporate sponsorship for #EveryDayInMayForDravet, one of our biggest campaigns of the year, to help make the event bigger and better than ever!✨

If you know a company that may be interested, download our brochure and get in touch!

➡️ bit.ly/3YWhgd9
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Today the Government has announced the launch of a new UK-wide forum to improve care and support for people affected by neurological conditions. 📣 We’re proud to support this campaign by The Neurological Alliance and look forward to seeing what progress can be made. #BackThe1in6

Today the Government has announced the launch of a new UK-wide forum to improve care and support for people affected by neurological conditions. 📣

We’re proud to support this campaign by <a href="/NeuroAlliance/">The Neurological Alliance</a> and look forward to seeing what progress can be made. 

#BackThe1in6
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Introducing the fifth 'mini-guide' for families living with #DravetSyndrome. This guide includes information about SEND support in mainstream and specialist settings, educational health and care plans, and adult learning. Download here ➡️ bit.ly/3Bcz0Jh

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Come along to the Dravet Syndrome UK Conference in November 2025 to connect with those in the #DravetSyndrome community and hear from top global experts on ground-breaking research, treatments and support available. Stay tuned for registration details in the New Year! 💙

Come along to the Dravet Syndrome UK Conference in November 2025 to connect with those in the #DravetSyndrome community and hear from top global experts on ground-breaking research, treatments and support available. 

Stay tuned for registration details in the New Year! 💙