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This Christmas, Sam is most excited about opening his presents and his advent calendar every morning before school! 🎁 Help us #EndDuchenne and secure the future for boys like Sam by donating this #Duchenneber. duchenneuk.org/donate #giftofhope #fundraising #charity

Here are Ben and Zak. They're excited about seeing their family for Christmas meeting their nephew. They love how it's a time to be together and enjoy with those who are most special to them. Give the gift of hope by donating to our #Duchenneber appeal duchenneuk.org/donate

We've been informed of Deflazacourt shortages in areas in the UK. We would recommend stocking up so that you don’t run out over the holiday period when pharmacies are closed For information and guidance on what to do in an emergency, download our ICE App: duchenneuk.org/dmd-emergency-…

We want to say a huge thank you and well done to our Family and Friends Fund, Henry’s Hills, who held a gala dinner last month and raised an incredible £16,000! Thank you!

Joe is 11 and has a twin sister called Jess. He is looking forward to spending Christmas with his family most of all. Donate to our #Duchenneber appeal and help fund research into new drugs and treatments to help boys with DMD, like Joe. duchenneuk.org/donate

Dexter loves all the lights and decorations at Christmas time. He is most looking forward to all the new cars Santa is going to bring him and playing with his big brother. Join our fight against Duchenne and help secure the futures of boys like Dexter: duchenneuk.org/donate

Here is Jacobi with the golf trophy that he won this year. This Christmas, Jacobi is most excited to play Christmas Day Golf with his Dad. Help find a cure for boys with DMD like Jacobi by supporting our #Duchenneber appeal. duchenneuk.org/donate

Isaac was diagnosed in April this year with DMD and he's just turned 4. He is very excited for Christmas this year and can't wait to open his presents on Christmas day. He has also loved the cheeky elves and seeing what they have done every day! duchenneuk.org/donate

Jensen is 4 yrs old and has DMD a rare disease that causes muscle wasting. This festive season he is most looking forward to a big Christmas dinner! Donate and help fund life-saving research that will secure the lives of boys with DMD just like Jensen. duchenneuk.org/donate

Mac, who is 10 years old, is most looking forward to the panto with his grandparents, going to Santa’s grotto at Honister Slate Mine and seeing his cousins.  Give hope to boys with DMD, like Mac, by donating to #Duchenneber. duchenneuk.org/donate

Joshua is 10 and his little brother Oliver is 8. They both have a devastating muscle-wasting disease called DMD. This Christmas, we're asking you to give boys with DMD, like Joshua and Oliver, the most important gift of all, hope. duchenneuk.org/donate

Nihaal has just turned 8. This festive period, he's most looking forward to spending some quality time at home with his family and being able to make his Lego sets. Give the gift of hope to boys with DMD by donating to our #Duchenneber appeal: duchenneuk.org/donate

This is Charlie. This year he says he has been a little bit naughty and a little bit nice so 🎅 will still come. By donating to our Duchenneber appeal you're helping fund research to help boys with Duchenne muscular dystrophy, just like Charlie. duchenneuk.org/donate

❄️🎄 Duchenneber 🎄❄️ Remi is 3 and is looking forward to eating chocolate and spending time with his daddy at Christmas. Share the festive cheer and give boys with DMD the gift of hope this Christmas by donating to #Duchenneber: duchenneuk.org/donate

This is Freddie who is 3 and will be 4 on 27th December. Say happy birthday to Freddie! 🥳 Freddie is most looking forward to Father Christmas coming and singing Christmas songs. Donate to #Duchenneber: duchenneuk.org/donate

Merry Christmas! 🎄🎅🎁 That's a wrap for #Duchenneber2024. Thank you to all the gorgeous boys who took part this year!

Our Family and Friends Funds, is a simple way for families to raise money under their own banner without the headache of setting up their own charity. Since 2016, almost 60 families have set up their own funds and raised a total of over £3.9 million! duchenneuk.org/family-and-fri…

Make sure you never miss out! Did you know that you can get the latest news on DMD research, drugs and treatments, upcoming events and ways to get involved all in one handy email? Sign up to receive our monthly newsletter: duchenneuk.org/get-support/

Happy New Year! Look at what we achieved together in 2024. We look forward to going faster and further with you in 2025.

GOSH have changed their mind following a meeting with our CEO - and they will take part in the EAP for givinostat. Click here to read more about GOSH's announcement 👇 duchenneuk.org/change-of-mind…