🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

#DystoniaUK support group meetups are a brilliant way to connect with others living with #Dystonia & share your experiences with people who truly understand 🩵 Take a look at the list below to see our group get-togethers coming up in May. #NeurologicalCondition #Community

When Chinny developed symptoms of whole body #Dystonia she became determined to break down barriers, persisting with her education, channelling her pain into art & showing what it means to be “dystonic & fabulous”. Read Chinny’s story here - dystonia.org.uk/chinnys-story #DystoniaUK

Join thousands of our supporters & become a #DystoniaUK member today! Sign up for as little as £1 a month & you'll get editions of our Dystonia Matters magazine, a 10% discount on our merchandise & exclusive notice of our events. Register now - dystonia.org.uk/forms/join-or-… #Dystonia

Neck dystonia is the most common type of #Dystonia, affecting an estimated 18,000 adults in the UK. It is characterised by muscle contractions which cause abnormal, often painful, repetitive movements of the neck & head. Learn more - dystonia.org.uk/Pages/FAQs/Cat… #DystoniaUK

Our Director of Operations & Development Victoria Wareham has had 2 fantastic days representing #DystoniaUK at Association of British Neurologists Annual Meeting! It was a great opportunity to speak to lots of neurologists about ways of working together in the future to support people living with #Dystonia.

Spring into action this May & sign up for a UK race to support #DystoniaUK! From iconic city landmarks to stunning parks, make every mile matter & help thousands of people living with #Dystonia across the country. Choose your challenge & register today at dystonia.org.uk/Pages/Events/c…

Our awesome #DystoniaAnimated characters show us their lives to help children & adults understand #Dystonia. In Episode 2, we get to know Charlie & his family as he goes to the hospital & shows us his home life. Catch up on all episodes here - dystonia.org.uk/pages/category… #DystoniaUK

Unleash your imagination & organise a fundraiser for #DystoniaUK! Whether you fancy hosting a bake sale, shaving your head or something else, you can raise vital funds & awareness for #Dystonia. Request a free fundraising pack to kickstart your journey - dystonia.org.uk/forms/diy-fund…

Meet the wonderful Jason! In this episode of the Dystonia Matters Podcast, Jason talks about the challenges of living with #Dystonia & how he finds hope in alternative treatments, transforming his attitude towards the condition. Listen here - dystonia.org.uk/episode-3-jaso… #DystoniaUK

Do you have #Dystonia or know someone living with the condition? We’d love to see you at one of our #DystoniaUK support group meetups! 🩵 Connect with others & spend time with people who understand. Check out the list below to see our meetings coming up in the months ahead!

Our ‘What is dystonia?’ information booklet is here to help you understand #Dystonia & explain the condition to others. It covers topics including symptoms, known causes, the different forms & types of dystonia, & more! Get your free copy - dystonia.org.uk/forms/what-is-… 💙 #DystoniaUK

On your marks, get set, go…& take on a UK race for #DystoniaUK! Grab your running vest, lace up your trainers & make a difference for the #Dystonia community. We have a range of epic races & spaces are going fast so don’t miss out! Sign up today - dystonia.org.uk/Pages/Events/c…

Have you checked out our #ReachOutReachAll webinars? In this kids, carers & families edition, we spoke to Dan Lumsden & Jon Ellenbogen who answered your questions about the best way to support young people living with #Dystonia. Watch more - dystonia.org.uk/your-questions… #DystoniaUK

Have you taken part in the Neuro Life Now May-June survey? Share your experiences of participating in research focussed on the neurological community & help influence how neurological services are delivered. Have your voice heard - neurolifenow.org #Dystonia #DystoniaUK

Julia worried about how pregnancy would affect her #Dystonia & botulinum toxin injections, however her consultant helped develop a plan to manage both her pregnancy & her dystonia so that she could safely welcome her baby. Read Julia’s story - dystonia.org.uk/julias-story #DystoniaUK

Skydive from 10,000 feet or wing walk at 120mph for #DystoniaUK! You can experience the ultimate adrenaline rush whilst supporting people living with #Dystonia on various dates at different locations throughout 2025. Visit dystonia.org.uk/leap-for-dysto… to find out more & sign up!

Eye dystonia affects around 7000 adults in the UK, with symptoms usually appearing between ages 50 & 70. It's characterised by muscle contractions which cause repetitive, abnormal & painful movements in one or both eyes. Learn more - dystonia.org.uk/Pages/FAQs/Cat… #Dystonia #DystoniaUK

Quick! Only 1 month left to secure your spot for the Great North Run 2025! Join Team Dystonia UK in Newcastle on 7 September for the biggest half marathon in the world & make your miles count for the #Dystonia community. Sign up today - dystonia.org.uk/great-north-run #DystoniaUK

Meet the incredible Beccy! In this episode of the Dystonia Matters Podcast, Beccy shares her story with unflinching honesty, from being diagnosed with hemi-dystonia in her 30s to being a 2012 Olympic torch bearer. Listen here - dystonia.org.uk/episode-2-becc… #Dystonia #DystoniaUK

Are you looking for support & info about #Dystonia? Then head to the #DystoniaUK website! From news & guidance, to resources & stories, our website has a range of pages to help you understand & feel part of the community. Start browsing & learn more - dystonia.org.uk