EAHAD (@eahadnews) 's Twitter Profile
EAHAD

@eahadnews

EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.

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linkhttp://www.eahad.org calendar_today17-01-2017 14:51:04

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We're excited to share a new publication from the EAHAD Women and Girl+ with Bleeding Disorders Working Group, exploring the powerful question: Are Women Welcome in Haemophilia Trials? 📰 Read the full open-access article here 👉 onlinelibrary.wiley.com/doi/epdf/10.11…

We're excited to share a new publication from the EAHAD Women and Girl+ with Bleeding Disorders Working Group, exploring the powerful question: Are Women Welcome in Haemophilia Trials? 📰 Read the full open-access article here 👉 onlinelibrary.wiley.com/doi/epdf/10.11…
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🔔Don’t miss our webinar on "Multidisciplinary Model of a Hub Centre for Gene Therapy in Haemophilia"! 🗓️22 May | 18:00 CEST 🎙️Marica Moro explores the key role of nurses in ensuring care continuity, patient trust and safe therapy in haemophilia. academy.eahad.org/eahad/2023/gen…

🔔Don’t miss our webinar on "Multidisciplinary Model of a Hub Centre for Gene Therapy in Haemophilia"!  
🗓️22 May | 18:00 CEST
🎙️Marica Moro explores the key role of nurses in ensuring care continuity, patient trust and safe therapy in haemophilia.
academy.eahad.org/eahad/2023/gen…
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#EAHADVacancy 📣 Are you a nurse active in the field of #haemophilia and bleeding disorders?🩸The EAHAD Nurses Committee is looking for a new member to join! 📅 Term starts: September 2025 🔗 Apply today: eahad.org/call-for-appli…

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The Webinar “Multidisciplinary Model of a Hub Centre for GT in Haemophilia” is just around the corner! 🗓️Tomorrow at 18:00 CEST👉 Register now: academy.eahad.org/eahad/2023/gen…

The Webinar “Multidisciplinary Model of a Hub Centre for GT in Haemophilia” is just around the corner! 
🗓️Tomorrow at 18:00 CEST👉 Register now: academy.eahad.org/eahad/2023/gen…
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The WFH is running a global study to understand how the WFH Shared Decision-Making (SDM) Tool is used and how we can make it even better. 🩺 Take the survey here: survey.zohopublic.com/zs/GAB6uo

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🔴 LIVE #GeneTherapy Webinar today! 🧬 Join us at 18:00 CEST for a deep dive into the multidisciplinary model of a hub centre for gene therapy in haemophilia. It’s not too late, register now: academy.eahad.org/eahad/2023/gen…

🔴 LIVE #GeneTherapy Webinar today! 🧬 Join us at 18:00 CEST for a deep dive into the multidisciplinary model of a hub centre for gene therapy in haemophilia.
It’s not too late, register now:  academy.eahad.org/eahad/2023/gen…
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#EAHADVacancy 🩸 EAHAD is inviting haemophilia specialists to apply for 1 open position on its Glanzmann Thrombasthenia WG for a 3-year term! To strengthen geographic diversity, we especially welcome applicants from Southern Europe. 🔗 Apply today: eahad.org/call-for-appli…

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📢 Join the EHC #ERIN Webinar on Addressing the Needs of People with #ExtremelyRare #BleedingDisorders 🗓️ 10 June 2025 🕕 18:00 CEST 🗣️ EN | RU 💻 Zoom 👥 Patients & HCPs In collaboration w/ EAHAD 🔗 Register now: ow.ly/ASMl50VYGPh

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🎥 Missed our latest #GeneTherapy online session? The full replay is now available on the #EAHADAcademy! Explore the real-world implementation of GT through 3 essential perspectives: liver health, the role of diagnostics, and the contribution of nursing🔗academy.eahad.org/eahad/2023/gen…

🎥 Missed our latest #GeneTherapy online session? The full replay is now available on the #EAHADAcademy! Explore the real-world implementation of GT through 3 essential perspectives: liver health, the role of diagnostics, and the contribution of nursing🔗academy.eahad.org/eahad/2023/gen…
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The EAHAD WG+BD WG has just released the Czech 🇨🇿 version of their booklet for young girls starting their period!🩸 Designed for girls and young people who menstruate, it also helps families better understand and support them on this important journey: eahad.org/eahad-projects…

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🔍Rethink the way you search! Join Wichor Bramer, Biomedical Information Specialist, for a hands-on session on literature searches. A unique collaboration between the Nurses Committees of WFH ISTH and #EAHAD 📺: academy.eahad.org/eahad/2025/nur…

🔍Rethink the way you search! Join Wichor Bramer, Biomedical Information Specialist, for a hands-on session on literature searches. A unique collaboration between the Nurses Committees of <a href="/wfhemophilia/">WFH</a> <a href="/isth/">ISTH</a> and #EAHAD 📺: academy.eahad.org/eahad/2025/nur…
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🩺 Calling all nurses in #haemophilia & bleeding disorders! The EAHAD Nurses Committee is looking for one new member to join for a three-year term starting September 2025! 📅 Don’t wait and apply now: eahad.org/call-for-appli…

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We're thrilled to announce that the Annual Report for 2024 is now live! Take a deep dive into the milestones, initiatives, and impact we've made over the past year, all thanks to the work of our Committees, Working Groups, and dedicated partners! 📘 eahad.org/annual-reports

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The RFP to host the Annual EAHAD Congress 2029 is now open! Are you a clinician dedicated to haemophilia and bleeding disorders and an active #EAHAD member? Put your city in the spotlight and contribute to advancing care for patients across Europe!🌍 eahad.org/request-for-pr…

The RFP to host the Annual EAHAD Congress 2029 is now open! Are you a clinician dedicated to haemophilia and bleeding disorders and an active #EAHAD member? Put your city in the spotlight and contribute to advancing care for patients across Europe!🌍 eahad.org/request-for-pr…
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🎤 Happening today! #EAHAD and EHC_Haemophilia come together for a follow-up webinar in the ERIN series, shining a light on extremely rare bleeding disorders 🩸 📅 Today at 18h CEST 🗣️ English and Russian 🔗 ow.ly/VazN50VIE2M

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What is a Period? ♀️ The EAHAD WG+BD WG has released the Swedish version of their booklet for young girls starting their period!🩸It’s designed for young people who menstruate and to help families better understand and support them. Spread the word: eahad.org/eahad-projects…

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🎥 The e-learning module on Inherited FVII Deficiency, featuring Katharina Holstein and Muriel Giansily Blaizot, is now available on the #EAHADAcademy: academy.eahad.org/eahad/2025/e-l…, with real-world case studies to help contextualise the theoretical content.

🎥 The e-learning module on Inherited FVII Deficiency, featuring Katharina Holstein and Muriel Giansily Blaizot, is now available on the #EAHADAcademy: academy.eahad.org/eahad/2025/e-l…, with real-world case studies to help contextualise the theoretical content.
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#EAHADPodcast 🎧 Can BFR exercise be safe for adults with severe #haemophilia? Daniel C. Ogrezeanu shares insights from his recent pilot study on the acute neuromuscular and perceptual responses to BFR exercise in this population. 🎙️ open.spotify.com/episode/1fLu7l…

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New insights from #EUHASS data 📰 Check the recently published article on RPTH Journal on Inhibitor development in nonsevere hemophilia: data from the European Haemophilia Safety Surveillance (EUHASS) registry 📰 rpthjournal.org/article/S2475-…