EFA Patients (@efa_patients) 's Twitter Profile
EFA Patients

@efa_patients

We are a federation of 45 associations representing allergy, atopic eczema, asthma and COPD patients in 27 European countries. Our pillars: #InformPreventCare

ID: 1299643704

linkhttps://efanet.org calendar_today25-03-2013 14:16:29

6,6K Tweet

2,2K Followers

1,1K Following

EFA Patients (@efa_patients) 's Twitter Profile Photo

COPD is a leading cause of death and disability, with 49M Europeans at risk by 2025. The good news? It’s preventable 🫁 Early diagnosis, timely care and national #lunghealth plans can reduce the burden. #WorldCOPDDay 🗞️Press release & the new report ➡️ efanet.org/news/news/4402…

COPD is a leading cause of death and disability, with 49M Europeans at risk by 2025.

The good news? It’s preventable 🫁

Early diagnosis, timely care and national #lunghealth plans can reduce the burden. #WorldCOPDDay

🗞️Press release & the new report ➡️ efanet.org/news/news/4402…
Armando Ruiz (@ideasensalud) 's Twitter Profile Photo

This work is truly strategic and the immense work is reflected in excellence. The standards of care for COPD patients in Europe in our perspective. Excellent FENAER PACIENTES in our involvement, and EFA Patients in leadership. Read our press release: lnkd.in/edSVc_FF #ActOnCOPD

European Lung Health Group (@eurolunghealth) 's Twitter Profile Photo

36M Europeans live with #COPD and struggle to #KeepBreathing. #WorldCOPDDay 🫁 We can change this because COPD is preventable. Early diagnosis and #lung testing like #spirometry save lives. 🎯Act upon our call for better #lunghealth policy in the EU: breathevision.eu

36M Europeans live with #COPD and struggle to #KeepBreathing. #WorldCOPDDay 🫁

We can change this because COPD is preventable.

Early diagnosis and #lung testing like #spirometry save lives. 

🎯Act upon our call for better #lunghealth policy in the EU: breathevision.eu
EFA Patients (@efa_patients) 's Twitter Profile Photo

Early diagnosis is critical to prevent #COPD progression and save lives. #WorldCOPDDay Millions go undiagnosed due to limited access to #spirometry and care. #Lung testing and timely care must be routine. Read more in our #COPDStandardsOfCare Report: copd-efanet.org/copd-care-acce…

Early diagnosis is critical to prevent #COPD progression and save lives. #WorldCOPDDay

Millions go undiagnosed due to limited access to #spirometry and care.

#Lung testing and timely care must be routine.

Read more in our #COPDStandardsOfCare Report: copd-efanet.org/copd-care-acce…
EFA Patients (@efa_patients) 's Twitter Profile Photo

#COPD disrupts life, but Joan Alonso (75) stays active to fight back 💪🫁 His story shows how holistic care, pulmonary rehabilitation and emotional support can improve the quality of life. #COPDStandardsOfCare 📺 more #EFACommunity patient stories: copd-efanet.org/quality-of-lif…

#COPD disrupts life, but Joan Alonso (75) stays active to fight back 💪🫁

His story shows how holistic care, pulmonary   rehabilitation and emotional support can improve the quality of life. #COPDStandardsOfCare

📺 more #EFACommunity patient stories: copd-efanet.org/quality-of-lif…
EFA Patients (@efa_patients) 's Twitter Profile Photo

On #WorldCOPDDay, our message is clear: #COPDPatients deserve better care, timely diagnoses & access to treatment. The EU must raise the bar on #COPDStandardsofCare with a strong #lunghealth policy to ensure millions can #KeepBreathing 🫁 #ActOnCOPD ➡️ copd-efanet.org/recommendation…

On #WorldCOPDDay, our message is clear: #COPDPatients deserve better care, timely diagnoses & access to treatment.

The EU must raise the bar on #COPDStandardsofCare with a strong #lunghealth policy to ensure millions can #KeepBreathing 🫁

#ActOnCOPD ➡️ copd-efanet.org/recommendation…
EFA Patients (@efa_patients) 's Twitter Profile Photo

Join us in promoting #LungHealth for kids! If you are a health expert, teacher or policymaker, collaborate with us by joining the #LH4H Community of Practice to share your knowledge and expertise. 🔗 bit.ly/LH4LCoP #RespiratoryHealth #LH4L #EU4Health

Join us in promoting #LungHealth for kids! 

If you are a health expert, teacher or policymaker, collaborate with us by joining the #LH4H Community of Practice to share your knowledge and expertise.

🔗 bit.ly/LH4LCoP
#RespiratoryHealth #LH4L #EU4Health
EFA Patients (@efa_patients) 's Twitter Profile Photo

Safe treats for #foodallergy patients! 🍬✅ At the CAOBISCO Congress, EFA highlighted the need for harmonised EU-wide precautionary allergen labelling #PAL regulations based on science. Clear, reliable food labels are crucial for protecting public #health! 📷Romain

Safe treats for #foodallergy patients! 🍬✅ 

At the <a href="/CAOBISCO_EU/">CAOBISCO</a> Congress, EFA highlighted the need for harmonised EU-wide precautionary allergen labelling #PAL regulations based on science. 

Clear, reliable food labels are crucial for protecting public #health! 

📷Romain
EFA Patients (@efa_patients) 's Twitter Profile Photo

We joined the EU Health Policy Platform annual meeting, inspired by the input from thematic network leaders! EFA calls for stronger support for #allergy & airways disease #patients and looks forward to continuing collaboration with the European Commission. Thank you EU One Health!

We joined the EU Health Policy Platform annual meeting, inspired by the input from thematic network leaders! 

EFA calls for stronger support for #allergy &amp; airways disease #patients and looks forward to continuing collaboration with the <a href="/EU_Commission/">European Commission</a>.

Thank you <a href="/EU_Health/">EU One Health</a>!
EFA Patients (@efa_patients) 's Twitter Profile Photo

EFA community responded to EMA's public consultation on competing interests. 🛠️💬 While we support transparency, stricter rules could limit patient collaboration in research. Patients expertise is vital and deserves fair recognition! Read more: efanet.org/news/news/4405…

EFA community responded to EMA's public consultation on competing interests. 🛠️💬

While we support transparency, stricter rules could limit patient collaboration in research. 

Patients expertise is vital and deserves fair recognition! 

Read more: efanet.org/news/news/4405…
EFA Patients (@efa_patients) 's Twitter Profile Photo

🚨EFA raises concerns over EMA new guidelines on competing interests for #patient experts. Stricter rules may limit patient input in EU #health decisions. Policymakers must protect patient expertise while ensuring transparency. Read more 🔗 efanet.org/news/news/4405…

🚨EFA raises concerns over EMA new guidelines on competing interests for #patient experts. 

Stricter rules may limit patient input in EU #health decisions. 

Policymakers must protect patient expertise while ensuring transparency. 

Read more 🔗 efanet.org/news/news/4405…
EFA Patients (@efa_patients) 's Twitter Profile Photo

New event! 🚨 EFA is organising a key discussion at the European Parliament, hosted by MEPs Romana Jerković Kraljić MEP, András Kulja and Tilly Metz. Join us to raise #COPDStandardOfCare and put #lunghealth at the forefront of Europe’s agenda. 📅 5 Feb, register➡️ community.efanet.org/elementor-test…

New event! 🚨 EFA is organising a key discussion at the European Parliament, hosted by MEPs <a href="/JerkovicRomana/">Romana Jerković Kraljić MEP</a>, András Kulja and Tilly Metz.

Join us to raise #COPDStandardOfCare and put #lunghealth at the forefront of Europe’s agenda.

📅 5 Feb, register➡️ community.efanet.org/elementor-test…
EFA Patients (@efa_patients) 's Twitter Profile Photo

📣 Join us on 5 Feb 2025 at the European Parliament for a discussion on #COPDStandardsofCare! High-level speakers will come together to address early #diagnosis, access to #care and stronger #lunghealth policies for 36M Europeans 🫁 🔗Register by 24 Jan: community.efanet.org/elementor-test…

📣 Join us on 5 Feb 2025 at the European Parliament for a discussion on #COPDStandardsofCare!

High-level speakers will come together to address early #diagnosis, access to #care and stronger #lunghealth policies for 36M Europeans 🫁

🔗Register by 24 Jan: community.efanet.org/elementor-test…
EFA Patients (@efa_patients) 's Twitter Profile Photo

Want to make a big impact on #lunghealth in 2025? Join the #LungHealth4Life Community of Practice to promote lung function testing and health education in schools. 🏫 Sign up now 👉 bit.ly/LH4LCoP #LH4L#EU4Health

Want to make a big impact on #lunghealth in 2025?

Join the #LungHealth4Life Community of Practice to promote lung function testing and health education in schools. 🏫

Sign up now 👉 bit.ly/LH4LCoP
#LH4L#EU4Health
EFA Patients (@efa_patients) 's Twitter Profile Photo

New report on #COPD care & event at the European Parliament! 🚨 Join us on 5 Feb to discuss #COPDStandardsofCare 🫁 MEPs & experts will discuss prevention, care and the urgent need for stronger #lunghealth policy. 📅Register here: community.efanet.org/elementor-test…

New report on #COPD care &amp; event at the European Parliament! 🚨

Join us on 5 Feb to discuss #COPDStandardsofCare 🫁

MEPs &amp; experts will discuss prevention, care and the urgent need for stronger #lunghealth policy.

📅Register here: community.efanet.org/elementor-test…
European Lung Foundation (@europeanlung) 's Twitter Profile Photo

We attended the 'Raising the Standards of Care for COPD in Europe' event today at the European Parliament ! 🫁💬 An important discussion on improving #COPD care! Great to see progress and efforts to put lung health at the forefront! #LungHealth #PublicHealth

We attended the 'Raising the Standards of Care for COPD in Europe' event today at the <a href="/Europarl_EN/">European Parliament</a> ! 🫁💬 An important discussion on improving #COPD care!

Great to see progress and efforts to put lung health at the forefront! #LungHealth #PublicHealth
European Lung Health Group (@eurolunghealth) 's Twitter Profile Photo

Living with a rare lung disease means fighting every day to #KeepBreathing. 🚨 Over 1M patients in Europe face delays in treatments & lack of support. 🫁🌍 On #RareDiseaseDay, we stand with our ELHG communities and call for stronger EU policy on #lunghealth. Support us:

Living with a rare lung disease means fighting every day to #KeepBreathing. 

🚨 Over 1M patients in Europe face delays in treatments &amp; lack of support.

 🫁🌍 On #RareDiseaseDay, we stand with our ELHG communities and call for stronger EU policy on #lunghealth.

Support us:
PHAEUROPE (@europepha) 's Twitter Profile Photo

PHAEUROPE celebrates a historic step for lung health! 🙌📣 At the 78th World Health Assembly, the first-ever global Lung Health Resolution was adopted. This marks a major milestone in improving care, tackling air pollution, and boosting support for lung diseases like PH. ⤵️

PHAEUROPE celebrates a historic step for lung health! 🙌📣 At the 78th World Health Assembly, the first-ever global Lung Health Resolution was adopted. This marks a major milestone in improving care, tackling air pollution, and boosting support for lung diseases like PH. ⤵️
GlobalSkin (@iadpo) 's Twitter Profile Photo

🌍#WorldAtopicEczemaDay is coming up on September 14 & we’re thrilled to launch the 2025 Toolkit - a collaborated effort with EFA Patients! This year’s theme is, “Our Skin, Our Journey,” highlights the lived experiences of people with #atopiceczema: bit.ly/WAED-2025

🌍#WorldAtopicEczemaDay is coming up on September 14 &amp; we’re thrilled to launch the 2025 Toolkit - a collaborated effort with <a href="/EFA_Patients/">EFA Patients</a>! 

This year’s theme is, “Our Skin, Our Journey,” highlights the  lived experiences of people with #atopiceczema: bit.ly/WAED-2025
SANT Committee Press (@ep_publichealth) 's Twitter Profile Photo

🗓️🗓️3/06 - debates in SANT Committee Press 2/2 🇬🇧EU-UK Trade & Cooperation Agreement (amendments) 🫁Lung health & chronic obstructive pulmonary disease EFA Patients ERS 🎥Watch live: multimedia.europarl.europa.eu/en/sant-commit…