EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile
EHC_Haemophilia

@ehc_haemophilia

The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.

ID: 852837687778201600

linkhttps://linktr.ee/ehc_haemophilia calendar_today14-04-2017 10:55:24

3,3K Tweet

2,2K Followers

408 Following

European Patients' Forum (@eupatientsforum) 's Twitter Profile Photo

Are you looking to know more about the #EuropeanHealthDataSpace?🤔 Our upcoming webinar explore the practical changes introduced by the #EHDS, with real-world examples of EHDS literacy efforts! ℹ️Date: 15th May 2025 ℹ️Time: 11:00-12:00 CET Register➡️ bit.ly/42kolpy

Are you looking to know more about the #EuropeanHealthDataSpace?🤔

Our upcoming webinar explore the practical changes introduced by the #EHDS, with real-world examples of EHDS literacy efforts!

ℹ️Date: 15th May 2025
ℹ️Time: 11:00-12:00 CET

Register➡️ bit.ly/42kolpy
EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

🩸 This #WHD2025, we’re shining a light on women & girls with haemophilia & female carriers — too often overlooked & underdiagnosed. 🎧 Tune into the European Patients' Forum podcast with our CEO Olivia Romero Lux on the EHC’s advocacy work. 🔗 ow.ly/8onn50VCfIh

EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

🩸Is haemophilia (fe)male? Women w/ haemophilia & female carriers face delayed diagnosis & limited care. On #WHD2025, explore our new booklet 📘 & listen to a podcast featuring EHC CEO Olivia Romero Lux hosted by European Patients' Forum 🎧 on the topic. 🔗 tinyurl.com/yc6c9ysx

🩸Is haemophilia (fe)male?
Women w/ haemophilia &amp; female carriers face delayed diagnosis &amp; limited care. On #WHD2025, explore our new booklet 📘 &amp; listen to a podcast featuring EHC CEO Olivia Romero Lux hosted by <a href="/eupatientsforum/">European Patients' Forum</a> 🎧 on the topic. 🔗 tinyurl.com/yc6c9ysx
EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

📣 News from our members! 🇵🇹 In Portugal, APH | Associação Portuguesa de Hemofilia Women’s Conference brought together 25 participants to raise awareness on coagulopathies in women—focusing on early diagnosis & youth empowerment. 🔗 ow.ly/st6e50VCSmr

📣 News from our members! 🇵🇹 In Portugal, <a href="/AssociacaoAph/">APH | Associação Portuguesa de Hemofilia</a> Women’s Conference brought together 25 participants to raise awareness on coagulopathies in women—focusing on early diagnosis &amp; youth empowerment. 🔗 ow.ly/st6e50VCSmr
EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

On World Liver Day, we join the call to prioritise liver health for all, especially people with #BleedingDisorders, for whom liver issues remain a major concern. 🎥 Rewatch our expert panel on liver health & ageing: ow.ly/9ahx50VCPMf #WorldLiverDay

On <a href="/WorldLiverDay/">World Liver Day</a>, we join the call to prioritise liver health for all, especially people with #BleedingDisorders, for whom liver issues remain a major concern.

🎥 Rewatch our expert panel on liver health &amp; ageing: ow.ly/9ahx50VCPMf 

#WorldLiverDay
EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

🥦 This World Liver Day, we’re celebrating the power of nutrition! A healthy liver starts on your plate — smart food choices can boost liver function & well-being. 🍽️ Try tasty, liver-friendly meals from the #WorldLiverDay recipe book: ow.ly/hEkQ50VCPR5 #FoodIsMedicine

🥦 This <a href="/WorldLiverDay/">World Liver Day</a>, we’re celebrating the power of nutrition! A healthy liver starts on your plate — smart food choices can boost liver function &amp; well-being.

🍽️ Try tasty, liver-friendly meals from the #WorldLiverDay recipe book: ow.ly/hEkQ50VCPR5 

#FoodIsMedicine
EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

📢 Registration is open for the #NewTech2025! Join us in Ljubljana 🇸🇮 on Oct 31–Nov 2 to explore advances in #BleedingDisorders treatments. 🔬 Limited to EHC NMOs & HCPs—secure your spot early! 👉 ow.ly/KTAS50VFle2

📢 Registration is open for the #NewTech2025! Join us in Ljubljana 🇸🇮 on Oct 31–Nov 2 to explore advances in #BleedingDisorders treatments. 🔬

Limited to EHC NMOs &amp; HCPs—secure your spot early! 👉 ow.ly/KTAS50VFle2
EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

🗣️ Help shape the future of care for people with #ExtremelyRare bleeding disorders & #BDUC across Europe! 🌍 The EHC survey is open—share your experience so no voice is left behind. Take the survey now 👉 ow.ly/NrA850VFqFS #BleedingDisorders #EHCSurvey

🗣️ Help shape the future of care for people with #ExtremelyRare bleeding disorders &amp; #BDUC across Europe! 🌍 The EHC survey is open—share your experience so no voice is left behind. 

Take the survey now 👉 ow.ly/NrA850VFqFS 

#BleedingDisorders #EHCSurvey
EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

📣 Register for the EHC #VWDSummit on 19–21 Sept in Riga! 🇱🇻 We’ll bring together patients & HCPs to explore the latest advancements in #VonWillebrandDisease care. 👥 Contact your NMO—1 rep per country, first come, first served! More info👉 ow.ly/t1OP50VHAbT

EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

📢 Join the EHC #ERIN Webinar on Addressing the Needs of People with #ExtremelyRare #BleedingDisorders 🗓️ 10 June 2025 🕕 18:00 CEST 🗣️ EN | RU 💻 Zoom 👥 Patients & HCPs In collaboration w/ EAHAD 🔗 Register now: ow.ly/fjWK50VIE4c

📢 Join the EHC #ERIN Webinar on Addressing the Needs of People with #ExtremelyRare #BleedingDisorders 🗓️ 10 June 2025 🕕 18:00 CEST 🗣️ EN | RU 💻 Zoom  👥 Patients &amp; HCPs

In collaboration w/ <a href="/EAHADnews/">EAHAD</a>

🔗 Register now: ow.ly/fjWK50VIE4c
EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

🩸🌍 EHC Steering Committee Member Marius Tanase joined experts at the #wfhCCS 2025 in Dubai to tackle key issues in bleeding disorders care — from AI & ageing to joint health & pain. A strong call for more comprehensive, patient-centred care. 📣

🩸🌍 EHC Steering Committee Member Marius Tanase joined experts at the #wfhCCS 2025 in Dubai to tackle key issues in bleeding disorders care — from AI &amp; ageing to joint health &amp; pain. A strong call for more comprehensive, patient-centred care. 📣
EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

📣 For #WHD2025, our Slovenian member held a powerful public exhibition in Ljubljana spotlighting women & girls with #BleedingDisorders. 💬 13 stories, EHC educational content & a message of visibility & empowerment. 💪❤️ More: ow.ly/Pv2550VJypH

📣 For #WHD2025, our Slovenian member held a powerful public exhibition in Ljubljana spotlighting women &amp; girls with #BleedingDisorders. 💬 13 stories, EHC educational content &amp; a message of visibility &amp; empowerment. 💪❤️ More: ow.ly/Pv2550VJypH
EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

📢 Secure your spot at the #EHCLeadership Conference 2025 by 9 May! ✨ 🇧🇪 Join us in Brussels in June to share best practices & shape the future of #BleedingDisorders advocacy. 🗣️EN w/ RU interpretation 🔗 ow.ly/CrNR50VJA9i

EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

🎙️ EHC is on Spotify! From #ERIN Podcast to #WomenAndBleedingDisorders & #ThisWay stories — explore the diverse voices from the European #BleedingDisorders community. 💬 🌍 Follow us & tune in 👉 ow.ly/Hji150VJCQV #EHCPodcast #PatientVoices

🎙️ EHC is on Spotify! From #ERIN Podcast to #WomenAndBleedingDisorders &amp; #ThisWay stories — explore the diverse voices from the European #BleedingDisorders community. 💬 🌍

Follow us &amp; tune in 👉 ow.ly/Hji150VJCQV

#EHCPodcast #PatientVoices