The EHE Foundation (@ehefoundation) 's Twitter Profile
The EHE Foundation

@ehefoundation

The leading global advocacy and research organization for epithelioid hemangioendothelioma (EHE)

ID: 724256799755517954

linkhttps://fightehe.org calendar_today24-04-2016 15:20:51

679 Tweet

352 Followers

325 Following

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ā¤ļøšŸ’› Happening Tomorrow: EHE Support Group Hosted by Dr. Maeve Baechler, an #EHE patient and psychiatry resident, this free virtual meeting is a chance to share, listen, and support one another in a supportive and private space. Register: fightehe.org/ehe-support-gr…

ā¤ļøšŸ’› Happening Tomorrow: EHE Support Group
Hosted by Dr. Maeve Baechler, an #EHE patient and psychiatry resident, this free virtual meeting is a chance to share, listen, and support one another in a supportive and private space. Register:
fightehe.org/ehe-support-gr…
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At last month's EHE 360 Global Patient Conference, presentations under the theme "EHE Biology & Biomarkers" highlighted the progress being made in understanding EHE cell growth, repression, and the molecular mechanisms at work in endothelial cells. šŸŽ„: youtu.be/nc-iakCrz4w

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Thanks to ongoing funding and collaboration with the EHE Foundation, Drs. Rubin, Pobbati, and the team have been pioneers and catalysts in understanding EHE. Please help us keep the momentum going with a gift that drives discovery and hope. fightehe.org/donate/

Thanks to ongoing funding and collaboration with the EHE Foundation, Drs. Rubin, Pobbati, and the team have been pioneers and catalysts in understanding EHE. Please help us keep the momentum going with a gift that drives discovery and hope. fightehe.org/donate/
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At last month's EHE 360 Global Patient Conference, Dr. Mrinal Gounder of Memorial Sloan Kettering Cancer Center shared limited data showing encouraging results from the VT3989 TEAD inhibitor clinical trial, which includes EHE patients. šŸŽ„ youtu.be/dsUVIcq6MXs #EHE

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In his talk at #EHE360, David Casimir, PhD, JD, shares why finding treatments—and eventually a cure—will take many ā€œshots on goalā€ from everyone across science, advocacy, and fundraising. šŸŽ„ Watch ā€œShots on Goalā€ on YouTube: youtu.be/PA6bkVDGQqg #EHEAwareness #JustLive #EHE

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ā­ļø This National Cancer Research Month, we recognize the incredible impact of the Tanas Laboratory at the University of Iowa. Help us maintain #EHE research momentum with a gift that inspires discovery and hope. fightehe.org/donate/ #epithelioidhemangioendothelioma

ā­ļø This National Cancer Research Month, we recognize the incredible impact of the Tanas Laboratory at the University of Iowa.  Help us maintain #EHE research momentum with a gift that inspires discovery and hope. fightehe.org/donate/

#epithelioidhemangioendothelioma
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This National Cancer Research Month, we recognize the work of Dr. Lorenzo D'Ambrosio at the UniversitĆ  di Torino. Your support is crucial to our ability to identify and support groundbreaking research. Please help us maintain the momentum in EHE research. fightehe.org/donate/

This National Cancer Research Month, we recognize the work of Dr. Lorenzo D'Ambrosio at the UniversitĆ  di Torino. Your support is crucial to our ability to identify and support groundbreaking research. Please help us maintain the momentum in EHE research. fightehe.org/donate/
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For many living with #EHE, active surveillance, or ā€œwatch and wait,ā€ is often the first step in care. But how often should scans happen? And how do those scans guide treatment? Watch ā€œEHE Tumor Monitoring: What is stable? What is progression?: youtu.be/HfTW7px8fDk

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Today, we honor the strength and resilience of everyone living with EHE. #EHE survivors are powerful examples of courage in the face of uncertainty. Their stories fuel our determination to push research forward to find treatments and ultimately a cure for this ultra-rare cancer.

Today, we honor the strength and resilience of everyone living with EHE. #EHE survivors are powerful examples of courage in the face of uncertainty. Their stories fuel our determination to push research forward to find treatments and ultimately a cure for this ultra-rare cancer.
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At EHE 360, Dr. Raj from Miami Cancer Institute / Baptist Health and Cornelius Thiels, DO, from the Mayo Clinic, shared their institutional experiences with surgery, transplantation, and interventional radiological modalities for hepatic EHE. šŸŽ„ youtu.be/LPkMv20xnBU

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The EHE Foundation's community newsletter will be hitting inboxes Friday. Subscribe now to stay up-to-date on the latest developments in the world of epithelioid hemangioendothelioma (EHE)! Subscribe: fightehe.org/subscribe/ #EHE #epithelioidhemangioendothelioma #EHEFoundation

The EHE Foundation's community newsletter will be hitting inboxes Friday. Subscribe now to stay up-to-date on the latest developments in the world of epithelioid hemangioendothelioma (EHE)! Subscribe: fightehe.org/subscribe/

#EHE #epithelioidhemangioendothelioma #EHEFoundation
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Research for #EHE can’t succeed without the voices of those it aims to help. Watch "Patients Driving Research to Improve Outcomes": youtu.be/6sfzLcFr5wg #EHE360 #epithelioidhemangioendothelioma #EHEFoundation #EHEcancer #justlive #patientpoweredresearch #EHEresearch

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If you have ever been treated with a systemic therapy for #EHE, contact us at [email protected]. Every patient experience brings knowledge to the clinical science community to improve care for others with EHE. Together, we can improve outcomes for people diagnosed with EHE.

If you have ever been treated with a systemic therapy for #EHE, contact us at research@fightehe.org. Every patient experience brings knowledge to the clinical science community to improve care for others with EHE. Together, we can improve outcomes for people diagnosed with EHE.
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Watch the live Q&A session, Ask the Expert, from the 2025 EHE 360 Global Patient Conference to learn more about # EHE from a global panel of EHE experts. šŸŽ„ Watch "Ask the Expert": youtu.be/6qBsqThQYT8 #EHE360 #epithelioidhemangioendothelioma

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Each year, the EHE Foundation attends the ASCO Annual Meeting to ensure that the voices and needs of #EHE patients remain on the global agenda and are actively involved in scientific advancements.Ā  Read our recent blog post for much more: fightehe.org/asco-2025-reca…

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Are you newly diagnosed with epithelioid hemangioendothelioma (EHE)? There are some fundamental first steps to take. Visit FightEHE.org/newly-diagnosed for links to get started on these fundamental first steps. #epithelioidhemangioendothelioma

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We are excited to welcome two new members to the EHE Foundation Board of Directors! Hollace D. Leppert, DO, FACOI, and Krista Sheeley, BSN, RN, bring invaluable healthcare expertise and personal passion to our mission. Learn more: fightehe.org/the-ehe-founda… #EHE

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If you have #EHE, your experience is key, whether you’ve had active treatment, no treatment, or no signs of tumors for years. Join the EHE Global Patient Registry and help shape the future of EHE care. Join today: eheregistry.iamrare.org #epithelioidhemangioendothelioma

If you have #EHE, your experience is key, whether you’ve had active treatment, no treatment, or no signs of tumors for years. Join the EHE Global Patient Registry and help shape the future of EHE care.

Join today: eheregistry.iamrare.org

#epithelioidhemangioendothelioma
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A fundamental tool that EHE researchers need is EHE cell lines. These are living EHE tumor cells that can be used to test and develop treatments for EHE. Where can researchers obtain EHE cells for research? The EHE Biobank. Learn more: fightehe.org/EHE-biobank/

A fundamental tool that EHE researchers need is EHE cell lines. These are living EHE tumor cells that can be used to test and develop treatments for EHE. Where can researchers obtain EHE cells for research? The EHE Biobank. 
Learn more: fightehe.org/EHE-biobank/
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The EHE Consensus Paper is an essential resource for people newly diagnosed with #EHE and for those considering treatments, including surgery or other interventions. Learn more: fightehe.org/consensus-pape… #epithelioidhemangioendothelioma #ultrararesarcoma #EHEFoundation #justlive

The EHE Consensus Paper is an essential resource for people newly diagnosed with #EHE and for those considering treatments, including surgery or other interventions. Learn more: fightehe.org/consensus-pape…

#epithelioidhemangioendothelioma #ultrararesarcoma #EHEFoundation #justlive