EKPF (@ekpfpatients) 's Twitter Profile
EKPF

@ekpfpatients

European Kidney Patients' Federation official account.

ID: 1359793901243158530

linkhttp://www.ekpf.eu calendar_today11-02-2021 09:18:48

593 Tweet

335 Followers

113 Following

EKPF (@ekpfpatients) 's Twitter Profile Photo

☕️✨ Join us for an IgAN Friends Coffee & Chat on April 29th at 3:00 PM CEST! A relaxed virtual meet-up to introduce the #IgANFriends community and get to know each other better! 🤝💬 🗓️ April 29th | ⏰ 3:00 PM CEST | 📍 Online 🔗 eventbrite.be/e/igan-friends… #KidneyHealth #IgAN

☕️✨ Join us for an IgAN Friends Coffee & Chat on April 29th at 3:00 PM CEST!

A relaxed virtual meet-up to introduce the #IgANFriends community and get to know each other better! 🤝💬

🗓️ April 29th | ⏰ 3:00 PM CEST | 📍 Online
🔗 eventbrite.be/e/igan-friends…
 
#KidneyHealth #IgAN
EKPF (@ekpfpatients) 's Twitter Profile Photo

Don't forget to join us for an IgAN Friends Coffee & Chat on April 29th at 3:00 PM CEST! A relaxed virtual meet-up to introduce the IgAN Friends community and get to know each other better! 🤝💬 🗓️ April 29th | ⏰ 3:00 PM CEST | 📍 Online 🔗 eventbrite.be/e/igan-friends… #IgAN

Don't forget to join us for an IgAN Friends Coffee & Chat on April 29th at 3:00 PM CEST!

A relaxed virtual meet-up to introduce the IgAN Friends community and get to know each other better! 🤝💬

🗓️ April 29th | ⏰ 3:00 PM CEST | 📍 Online

🔗 eventbrite.be/e/igan-friends…

#IgAN
EKPF (@ekpfpatients) 's Twitter Profile Photo

Join the ESOT Webinar on The Patient Journey around Infectious Diseases 🦠 📅 April 24 | 17:30–18:30 CEST 💬 Talks from patient advocates 🌍 AI subtitles in your language 🔗 Register & more info here: virtual.esot.org/esot/2025/webi… #PatientEmpowerment #InfectiousDiseases

Join the ESOT Webinar on The Patient Journey around Infectious Diseases 🦠

📅 April 24 | 17:30–18:30 CEST

💬 Talks from patient advocates

🌍 AI subtitles in your language

🔗 Register & more info here: virtual.esot.org/esot/2025/webi…
#PatientEmpowerment #InfectiousDiseases
EKPF (@ekpfpatients) 's Twitter Profile Photo

‼️The first IgAN Friends Coffee & Chat is right around the corner! Whether you want to learn more about the community, connect with fellow IgANers, share experiences, or just be a part of the conversation - You are welcome!! Sign up with the link below 👇

EKPF (@ekpfpatients) 's Twitter Profile Photo

It's tomorrow!! Come join us for a Coffee & Chat April 29th at 3PM ✨☕️ Sign up with the link in the text below👇

EKPF (@ekpfpatients) 's Twitter Profile Photo

Today is the day!! Get your coffee brewing and join our chat at 3PM CEST ☕️ Sign up with the link in the text below - once you have signed up you will receive a zoom link! See you there✨

EKPF (@ekpfpatients) 's Twitter Profile Photo

Jan has been living with IgAN for almost 40 years. He started dialysis 25 years after his initial diagnosis, leading to drastic lifestyle changes, and two kidney transplants. For 9 years now, he's living normally.💙💪 Learn more stories at IgAN Friends: iganfriends.org/your-stories/

EKPF (@ekpfpatients) 's Twitter Profile Photo

📢Tomorrow is European Patients' Rights Day 2025! A conference will be held in the European Parliament, discussing EU health data governance, benefits of data sharing, real-world initiatives, and much more! Watch the event live here at 14:30 CEST -- lnkd.in/dBC3JxHH

EKPF (@ekpfpatients) 's Twitter Profile Photo

#WKCD2025 is officially one month away! #WorldKidneyCancerDay raises awareness about kidney cancer globally, educates the public, and supports those affected by the disease. Visit the IKCC's website for more information! IKCC Kidney Cancer

EKPF (@ekpfpatients) 's Twitter Profile Photo

An IgA Nephropathy (IgAN) diagnosis can feel overwhelming -but you’re not alone💚 📚 Find trusted info on lifestyle, diet & pregnancy: iganfriends.org/living-with-ig… 🤝 Join IgAN Friends to connect with others who get it: iganfriends.org/join-igan-frie… #IgAN #KidneyHealth

An IgA Nephropathy (IgAN) diagnosis can feel overwhelming -but you’re not alone💚

📚 Find trusted info on lifestyle, diet & pregnancy: iganfriends.org/living-with-ig…

🤝 Join IgAN Friends to connect with others who get it: iganfriends.org/join-igan-frie…

#IgAN #KidneyHealth