ENDO1000 (@endo1000project) 's Twitter Profile
ENDO1000

@endo1000project

UK-wide project that will gather data from apps, smartwatches, healthcare records & biospecimens from 1000 people with endometriosis #TALKEndo๐Ÿ’ญ

ID: 1567436866739212289

linkhttps://linktr.ee/endo1000 calendar_today07-09-2022 08:58:11

186 Tweet

264 Followers

71 Following

Rajini Vaidyanathan (@bbcrajiniv) 's Twitter Profile Photo

A year ago I didnโ€™t even know what endometriosis was - now Iโ€™m taking part in a scientific research project with the University of Edinburgh as an ambassador, to help find out more about this chronic, painful condition. If youโ€™re a sufferer and want to get involved info here ๐Ÿ‘‡๐Ÿฝ

Andrew Horne (@horne_research) 's Twitter Profile Photo

Fantastic talk from Dr Lucy Whitaker from Centre for Reproductive Health at University of Edinburgh at #wce2025 presenting work from our PhD student Katherine Edgley on use of wearable technology in #endometriosis EXPPECT Edinburgh ENDO1000 WES

Fantastic talk from Dr Lucy Whitaker from Centre for Reproductive Health at University of Edinburgh at #wce2025 presenting work from our PhD student Katherine Edgley on use of wearable technology in #endometriosis <a href="/exppect/">EXPPECT Edinburgh</a> <a href="/ENDO1000project/">ENDO1000</a> <a href="/WorldEndoSoc/">WES</a>
Andrew Horne (@horne_research) 's Twitter Profile Photo

What a day! Incredible energy & inspiring conversations at the #wce2025 joint WES/WERF #Endometriosis Interdisciplinary Research Directions Workshop. So much momentum - and so much important work ahead WES ENDO1000

What a day! Incredible energy &amp; inspiring conversations at the #wce2025 joint WES/WERF #Endometriosis Interdisciplinary Research Directions Workshop. So much momentum - and so much important work ahead <a href="/WorldEndoSoc/">WES</a> <a href="/ENDO1000project/">ENDO1000</a>
ENDO1000 (@endo1000project) 's Twitter Profile Photo

Yesterday our runners took on the Edinburgh Marathon Festival relay, tackling rain, wind, hail, before finishing with sunshine as they crossed the finish line and collected their medals ๐Ÿ… So far they have raised an incredible ยฃ1,580, donate at the link in our bio!

Yesterday our runners took on the Edinburgh Marathon Festival relay, tackling rain, wind, hail, before finishing with sunshine as they crossed the finish line and collected their medals ๐Ÿ…

So far they have raised an incredible ยฃ1,580, donate at the link in our bio!
ENDO1000 (@endo1000project) 's Twitter Profile Photo

It's been a week since the Edinburgh Marathon Festival! ๐Ÿƒ Dayna, who professes herself as 'not a natural runner', speaks about why she chose to join the marathon relay for ENDO1000. Head to our website for more about fundraising & donate at the link in our bio!

It's been a week since the Edinburgh Marathon Festival!  ๐Ÿƒ

Dayna, who professes herself as 'not a natural runner', speaks about why she chose to join the marathon relay for ENDO1000. Head to our website for more about fundraising &amp; donate at the link in our bio!
ENDO1000 (@endo1000project) 's Twitter Profile Photo

Ever had people ask 'what is endometriosis anyway?' because we definitely have! ๐Ÿฉธ We're hear to #TALKendo and breakdown a bit more about endometriosis and why we're researching it. If you want to read more about endometriosis, or our project, head over to our website

Ever had people ask 'what is endometriosis anyway?' because we definitely have! ๐Ÿฉธ

We're hear to #TALKendo and breakdown a bit more about endometriosis and why we're researching it. If you want to read more about endometriosis, or our project, head over to our website
ENDO1000 (@endo1000project) 's Twitter Profile Photo

Meet the ENDO1000 team! Doug Gibson, Lead in Discover Science, explains what is happening in some of our research behind the scenes ๐Ÿ”ฌ Interested in staying up to date with research like this? Sign up to our mailing list and keep an eye on our website (links in our bio!)

ENDO1000 (@endo1000project) 's Twitter Profile Photo

Did you know we have a newsletter? ๐Ÿ“จ If you want all your updates in one place (and exclusive first-looks at things we have coming up) make sure to head to our website and sign up (link in our bio)! Our first edition is coming soon.

Did you know we have a newsletter? ๐Ÿ“จ

If you want all your updates in one place (and exclusive first-looks at things we have coming up) make sure to head to our website and sign up (link in our bio)! Our first edition is coming soon.
ENDO1000 (@endo1000project) 's Twitter Profile Photo

Our survey around endometriosis and brain fog is still open ๐Ÿง  Think this relates to you? Take 15-20 minutes to help us in our research ๐Ÿ‘‡

ENDO1000 (@endo1000project) 's Twitter Profile Photo

Did you know we take donations big and small? The price of your morning takeaway drink could make all the difference! Those regular, small donations are helping us to reach our target. Find out more about how to donate at the link in our bio โค๏ธ

Did you know we take donations big and small? 
The price of your morning takeaway drink could make all the difference! Those regular, small donations are helping us to reach our target. 

Find out more about how to donate at the link in our bio โค๏ธ
ENDO1000 (@endo1000project) 's Twitter Profile Photo

Weโ€™re so excited work with Jessica Knappett for her live recording of the Perfect Day podcast, and you can get tickets RIGHT NOW from the link in our bio ๐ŸŽŸ๏ธ Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.๐Ÿฉธ

Weโ€™re so excited work with <a href="/jessicaknappett/">Jessica Knappett</a> for her live recording of the Perfect Day podcast, and you can get tickets RIGHT NOW from the link in our bio ๐ŸŽŸ๏ธ

Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.๐Ÿฉธ
ENDO1000 (@endo1000project) 's Twitter Profile Photo

We already have a few people walking for ENDO1000, why not join them and raise money for endometriosis research? Link in our bio for our fundraising kit ๐Ÿƒ๐Ÿผโ€โ™€๏ธโ€โžก๏ธ

ENDO1000 (@endo1000project) 's Twitter Profile Photo

Our Co-Director Andrew Horne recently visited Professor Renรฉ Wenzl at the University of Vienna, delivering a lecture on innovative approaches to managing endometriosis as part of his Adjunct Professor appointment. ๐Ÿค

Our Co-Director Andrew Horne recently visited Professor Renรฉ Wenzl at the University of Vienna, delivering a lecture on innovative approaches to managing endometriosis as part of his Adjunct Professor appointment. ๐Ÿค
ENDO1000 (@endo1000project) 's Twitter Profile Photo

Welcome to our new series 'What's that?' Wednesday! Every Wednesday we're going to #TALKendo by answering and de-mystifying questions you might have about endometriosis. First up, what are the three different types of #endometriosis?

Welcome to our new series 'What's that?' Wednesday! 

Every Wednesday we're going to #TALKendo by answering and de-mystifying questions you might have about endometriosis. 

First up, what are the three different types of #endometriosis?
ENDO1000 (@endo1000project) 's Twitter Profile Photo

Meet the ENDO1000 team! Lucy Whitaker is our Lead for Clinical Studies, ensuring confidence, clarity and support for our patients as they help us develop our studies.

ENDO1000 (@endo1000project) 's Twitter Profile Photo

ENDO1000 supporters come in all shapes and sizes ๐Ÿพ Want to make our day paw-fect? You can pop us a little donation at the link in our bio. Every penny will help us recruit more participants for our research into #endometriosis ๐Ÿฉธ

ENDO1000 supporters come in all shapes and sizes ๐Ÿพ

Want to make our day paw-fect? You can pop us a little donation at the link in our bio. 
Every penny will help us recruit more participants for our research into #endometriosis ๐Ÿฉธ
ENDO1000 (@endo1000project) 's Twitter Profile Photo

Did you catch our ambassador Rajini Vaidyanathan on BBC Radio 2 talking about her experience with endometriosis? We were delighted for the shout out and hope that the open conversation educates and raises awareness for endometriosis๐Ÿ’› You can catch up on the conversation on BBC sounds

Lucy Whitaker (@drlucywhitaker) 's Twitter Profile Photo

Really looking forward to this workshop weโ€™re hosting on diagnosis in #endometriosis at the Edinburgh Futures Institute. Bringing together patients, clinicians and researchers to discuss current and future diagnosis in endometriosis. See you there! EXPPECT Edinburgh Institute for Regeneration and Repair ENDO1000

Really looking forward to this workshop weโ€™re hosting on diagnosis in #endometriosis at the <a href="/UoE_EFI/">Edinburgh Futures Institute</a>. Bringing together patients, clinicians and researchers to discuss current and future diagnosis in endometriosis. See you there! <a href="/exppect/">EXPPECT Edinburgh</a> <a href="/EdinUni_IRR/">Institute for Regeneration and Repair</a> <a href="/ENDO1000project/">ENDO1000</a>