🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Apply Now for the EURORDIS 2025 Open Academy Trainings! erica-rd.eu/apply-now-for-…

⚠️EMA has recommended suspending the marketing authorisation for the sickle cell disease medicine Oxbryta. This measure is taken as a precaution while a review of emerging data is ongoing. Doctors and patients are invited to read the recommendations: ema.europa.eu/en/news/ema-re…

Abstract submission deadline extended till 15th October!

🚨Exciting news! 📢ERDERA is pre-announcing its 2025 Joint Transnational Call for Proposals on Rare Disease Therapies! Read more here: loom.ly/-YEsh3Y #RareDiseases #Research #JTC2025 #ERDERA Bildungsmisererepublik Deutschland - BRDigung

Representatives from the European Rare Disease Research Coordination and Support Action consortium (ERICA), in which all 24 European Reference Networks (ERNs) take part will be attending the World Orphan Drug Congress (#WODC2024) Europe 2024 in Barcelona!

⌚13-14 November, c4c is looking forward to the next steps for this network during the c4c international symposium. ✅Interested to learn about our accomplishments and vision for the future? The event is invite-only so register your interest here! conect4children.org/2024/09/19/c4c…

🌍 Join us on Oct 28 for the launch of #ERDERA! 💡 Learn how we plan to transform the lives of 30M rare disease patients across Europe. Register now 👇 📅 Oct 28, 2024 ⏰ 14:00-16:15 CET 🔗loom.ly/roZC5QM #RareDiseases #Innovation #Healthcare

Representing ERICA and ERN research collaboration World Orphan Drug Conference in Barcelona #WODC2024

🥁#conect4children is getting ready! In 2 days, we will be celebrating our journey and look towards a bright future during the c4c international symposium. ✨We are looking forward to seeing you there!

Together for Rare Diseases & ERICA Webinar about ERNs for Industry partners. The goal of this series is to showcase how industry can support the research ERNs and industry (can) perform together on rare diseases! 📆Mo2 Dec 🕔5-5:45 pm CET Info and Registration: erica-rd.eu/event/together…

Already upcoming Monday 2 Dec! Please share and Invite your ERN (Industry) partners to join this forum!

Upcoming Mo-2Dec!: Together for Rare Diseases & ERICA Webinar about ERNs for Industry partners: erica-rd.eu/event/together…

⁦ERICA⁩ ERN Research Conference has started hosted by ⁦MetabERN⁩ Maurizio Scarpa opening words by ⁦Alberto M Pereira⁩ ERICA coordinator ⁦

📸 Highlights from the ERICA conference! Lorena Casareto, Ines Alves, & Davide Scognamiglio presented: 📝 Insights from the 2023 ERN BOND ePAG workshop. 📝 A success story on empowering rare bone disease patients during healthcare transitions. #ERNBOND #EU4Health

Thank you all for making the ERICA ERN Research Conference such a success! Grazie MetabERN for hosting it in Udine and all the Poster presenters and speakers. Presentations soon available erica-rd.eu/event/erica-ga…

#ERNs‼️📆Thu16 Jan | 🕔 5:00-5:45 pm. Upcoming Together4RD & ERICA Webinar: Industry brings resources and knowledge beyond funding, an articulation of the contribution of the private sectors in public-private partnerships in rare disease research.: erica-rd.eu/event/together…

Starting Soon! Together for Rare Diseases & ERICA Webinar. You can still join (also to receive recording): erica-rd.eu/event/together…

🚨 Call for experts: IRDiRC seeks experts to support 5 new activities in rare diseases research : 🔹Preventive Medicines 🔹Regulatory Convergence 🔹Youth Engagement 🔹Stigma 🔹Bridging Diagnostics & Therapies 📅 Apply by Feb 9, 2025 For details : irdirc.org/call-for-membe…

If you missed it, you can still review it : erica-rd.eu/event/together…