
ERN EuroBloodNet
@erneurobloodnet
ERN-EuroBloodNet aims to improve healthcare and quality of life of patients with Rare Hematological Diseases
ID: 839751476679479297
http://www.eurobloodnet.eu 09-03-2017 08:15:28
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🌟Meet the HemaFAIR Consortium!🌟 The HemaFAIR team comprises leading researchers from institutions across Cyprus, Spain, Italy, and the Netherlands. Together, we aim to enhance the standards and accessibility of data-driven, patient-centered research in RHDs. NeurologyGeneticsCyp



🩸World #Thalassaemia Day! ERN EuroBloodNet supports this global healthcare event to raise awareness, encourage early screening, and highlight the importance of patient-centredd care in the fight against thalassaemia.🌍 eurobloodnet.eu/disease-groups/ #ERNeu #WorldThalassaemiaDay





🎯Are you an ERN EuroBloodNet Member, Affiliated partner or ePAG? #Save the date and register to the ERN-EuroBloodNet Meeting at European Hematology Association Annual Congress in Milan 2025! 📍Friday 13th of June 2024, from 13:00 to 16:00. eurobloodnet.eu/news/644/ern-e… #ERNeu #ERNs #EHA2025








#SYNTHEMA & GenoMed4All will be at #EHA2025 in Milan! Join us on June 13 for the Clinical & Data-Driven Research session by ERN EuroBloodNet, where partners will share insights on AI, data anonymisation & synthetic data for rare blood diseases. 👉Agenda: bit.ly/4dEGoMm


🌍 Historic milestone at #WHA78: For the first time, #RareDiseases are a global health priority for World Health Organization (WHO). 🗣️ “This vote transforms hope into hard policy... across borders, disciplines and sectors,” – Dr Daria Julkowska, #ERDERA 🔗 loom.ly/WHhT-CM #Resolution4Rare