🌟Meet the HemaFAIR Consortium!🌟 The HemaFAIR team comprises leading researchers from institutions across Cyprus, Spain, Italy, and the Netherlands. Together, we aim to enhance the standards and accessibility of data-driven, patient-centered research in RHDs. NeurologyGeneticsCyp

🎈 It’s #8May — and the world stands united for #InternationalThalassaemiaDay! Together, we celebrate life, community and care. 💪🌍 Let’s keep patients at the center and progress in motion! #ITD2025 #WeAre1 #PatientsFirst 🔗 internationalthalassaemiaday.org

🩸World #Thalassaemia Day! ERN EuroBloodNet supports this global healthcare event to raise awareness, encourage early screening, and highlight the importance of patient-centredd care in the fight against thalassaemia.🌍 eurobloodnet.eu/disease-groups/ #ERNeu #WorldThalassaemiaDay

🚨​Not yet registered? #TODAY is the last session of the educational program on 𝗖𝗼𝗻𝗴𝗲𝗻𝗶𝘁𝗮𝗹 𝗕𝗼𝗻𝗲 𝗠𝗮𝗿𝗿𝗼𝘄 𝗙𝗮𝗶𝗹𝘂𝗿𝗲 (𝗕𝗠𝗙) 𝗦𝘆𝗻𝗱𝗿𝗼𝗺𝗲𝘀, designed for healthcare professionals! Register here: eurobloodnet.eu/education-2/eh… #ERNeu #ERNs #HealthUnion

🚨​Hiring alert! We are looking for an experienced, motivated and committed 𝗦𝗰𝗶𝗲𝗻𝘁𝗶𝗳𝗶𝗰 𝗱𝗲𝗹𝗶𝘃𝗲𝗿𝘆 𝗰𝗼𝗼𝗿𝗱𝗶𝗻𝗮𝘁𝗼𝗿 to join our dynamic team at VHIR, Barcelona! ​​✒️​Applications: jobs.vhir.org/jobs/5909298-s…

📢Next week don't miss the #ThursdayWebinar session "Indication of splenectomy”! 👉Register now! eurobloodnet.eu/education/thur… #ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure #haematology #EuropeanCommission

🎯​Are you an ERN EuroBloodNet Member, Affiliated partner or ePAG? #Save the date and register to the ERN-EuroBloodNet Meeting at European Hematology Association Annual Congress in Milan 2025! 📍Friday 13th of June 2024, from 13:00 to 16:00. eurobloodnet.eu/news/644/ern-e… #ERNeu #ERNs #EHA2025

📣 ERDERA is happy to announce a new facilitation period for the MOOC: “Diagnosing Rare Diseases: From the Clinic to Research and Back”! 📅 From 12 May – 4 July, get expert support, ask questions & boost your knowledge in #RareDiseases 🔗 More at loom.ly/88Of0Ps

💻​Not yet registered for this week's session? Register now and join us for the #ThursdayWebinar session on "Indication of splenectomy”! 👉Registrations: eurobloodnet.eu/education/thur… #ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure #haematology

Just 3 weeks left! Submit your abstract for #ASCAT2025 by 09 June 2025. Join global experts at the 20th Annual Sickle Cell & Thalassaemia Conference, 1–4 Oct in London, UK 🔗 Details: ascatconferences.com/abstracts #Haemoglobinopathies #SickleCell #Thalassaemia #AbstractSubmission

At #SYNTHEMA we use AI to fill data gaps & improve care for rare blood disorders. Focusing on Sickle Cell Disease & Acute Myeloid Leukaemia, we integrate clinical, genetic & imaging data for improved patient outcomes. 👉synthema.eu #RareDiseases #Haematology

🌍Last week, the ERN-EuroBloodNet participated in 2 key events shaping the future of rare disease care across Europe. ✅​Were crucial opportunities to share best practices, align on strategic goals, and reinforce collaboration among the European Reference Networks #ERNs

#GenoMed4All & SYNTHEMA will be jointly represented at the #EHA2025 Congress in Milan! 🧬 Partners from both projects will be speaking at the session hosted by ERN EuroBloodNet on 13th June, focused on Clinical & Data Driven Research. Find out more: eurobloodnet.eu/news/644/ern-e…

#SYNTHEMA & GenoMed4All will be at #EHA2025 in Milan! Join us on June 13 for the Clinical & Data-Driven Research session by ERN EuroBloodNet, where partners will share insights on AI, data anonymisation & synthetic data for rare blood diseases. 👉Agenda: bit.ly/4dEGoMm

🌍 Historic milestone at #WHA78: For the first time, #RareDiseases are a global health priority for World Health Organization (WHO). 🗣️ “This vote transforms hope into hard policy... across borders, disciplines and sectors,” – Dr Daria Julkowska, #ERDERA 🔗 loom.ly/WHhT-CM #Resolution4Rare