🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

🎓 TODAY – Don't miss our webinar on Diagnostic Pitfalls in Wilson Disease hosted by #ERNRARELIVER! 🧠 Challenges, genetics, atypical cases & more. 🗓️ Apr 15 | 🕔 5PM CET 🎙️ Expert panel 🔗 Zoom: uke-de.zoom-x.de/j/65289423694?… #WilsonDisease #RareDiseases #Hepatology

We wrapped up the end of #Academy2025 with a packed afternoon! - Paediatric case discussions 🧬 Talks on acute liver failure, genetics & liver biopsy - Histology quiz 🤝 Small-group projects on real patient cases - Group presentations + award A great close to a great workshop!

Say hi to Hendrik Matthies, Project Manager at ERN RARE-LIVER 👋 He’s our expert in 💼 Grants & finances 📊 Evaluation & monitoring From Hamburg 🇩🇪 📷 Loves photography 🥾 Fan of long distance hikes 🧠 Background in HR, business & physio #MeetTheTeam #ERNRARELIVER #RareDisease

Save the Date! Our next ERN RARE-LIVER Online Meeting will take place on October 22, 2025. Official time and agenda will be shared on our website as we get closer to the date. If you have any questions, email us at [email protected] We look forward to connecting virtually!

We’re proud to share results from the ERN Rare Liver workshop on healthcare transition 🌍 Held in Ghent 🇧🇪 with 72 participants from 13 countries, the findings offer key recommendations to improve transfer journeys in rare liver & other rare diseases: sciencedirect.com/science/articl…

Today is #WorldLiverDay 🌍💚 ERN RARE-LIVER joins the global effort to raise awareness for liver health and rare liver diseases. This year’s theme, “Food is Medicine,” highlights the important role of nutrition in patient care. #RareLiver #FoodisMedicine World Liver Day

🎥 Missed our Dec 17 webinar with ERN RARE-LIVER? The recording is now live! We covered contraception & pregnancy planning for people with liver disease. Watch here 👉 easlcampus.eu/videos/ern-rar… #LiverHealth #RareDisease #ERNRARELIVER #Webinar

Meet Kari Klein, our newest Project Manager! 🎉 She’s your go-to for: - Working Groups - Training & Education - Youth Panel - Transition Activities From 🌴 Florida → 🏛️ Hamburg → 🇦🇺 Melbourne — Kari brings global rare disease experience & a psych background to ERN RARE-LIVER

🧬 New webinar on haemochromatosis now on EASL Campus! Learn about genetics, diagnostics (MRI & genetic testing), and the 2022 EASL guidelines. Watch here 👉 easlcampus.eu/videos/ern-rar… #LiverHealth #Haemochromatosis #EASLWebinar

ERN RARE LIVER workshop “Harmonisation of somatostatin analogue treatment for Polycystic liver disease (PLD)” in Hannover has started Frederik Nevens sets the stage discussing QoL in PLD Moving towards recommendations JHEP Reports

🆕New Patient Leaflets Available! We now have leaflets about Primary sclerosing cholangitis (PSC) for Children and Teens in Norwegian 👉 Check it out here: rare-liver.eu/patients/infor… #PatientCare #HealthAwareness #MedicalInfo #PatientSupport #HealthcareResource #NorwegianResource

😎 Just finished the ERN RARE LIVER polycystic liver disease group 📌 Hannover @mhh_life ✊ Position paper on use of somatostatin analogues 📝 Busy writing @BastianEngel ERN RARE LIVER EASLnews

Clinical Exchange Programme 2025 – Tomorrow, 30 April Deadline! Duration: Up to 2 weeks Available: Summer 2025 & 2026 Eligibility: Open to ERN RARE-LIVER member centres Learn more & apply: rare-liver.eu/training-educa… #ClinicalExchange #RareLiverDiseases #HealthcareProfessionals

A reminder to submit your applications to host the ERN RARE-LIVER ACADEMY 2026 – focused on paediatric rare liver diseases 📅 Deadline: 30 April 2025 📢 Organiser announced: June 2025 🔗 Details: rare-liver.eu/media/2025_02_… #ERNRARELIVER #RareLiverDisease #PaediatricLiverDisease

SAVE THE DATE: PBC-AIH Variant – Delphi Consensus Process 📅 20 May 2025 | 🕔 5pm CET 🔗 Zoom: uke-de.zoom-x.de/j/65367203520?… Submit questions: ec.europa.eu/eusurvey/runne… Experts will share insights from a global Delphi study on definition, diagnosis, and treatment of the PBC-AIH variant.

Help Shape Our Patient Webinar Series! We’re planning our next webinar series for patients with rare and complex liver diseases, and we want to hear from you. What topics matter most to you or your community? Share your ideas through our quick survey: ec.europa.eu/eusurvey/runne…

Meet our Project Manager, Nagham Issa! Originally from 🇱🇧Lebanon, Nagham joined in 2022 while completing an MS in Public Health. She supports R-LIVER & CPMS with her #nursing & rare disease expertise. “It’s rewarding to help improve care for people with #rare liver conditions.”

Did you miss one of our webinars from March and April? You can watch the recordings now on EASL Campus: AATD: easlcampus.eu/videos/ern-rar… VLD: easlcampus.eu/videos/ern-rar… Wilson: easlcampus.eu/videos/ern-rar… Feel free to share within your networks!

Call for Proposals – ERN RARE-LIVER Workshops 2026 We're inviting Disease Working Groups to submit ideas for on-site workshops on rare liver diseases. 📅 Deadline: 30 May 2025 🔗 Info: rare-liver.eu/news/detail/er… 📝 Form: rare-liver.eu/media/proposal… #ERNRARELIVER #RareLiverDiseases