📢Clinicians the #CPMS 2.0 Mobile App is now available on iOS and Android! 📱The #Clinical #Patient #Management #System (CPMS), the secure, GDPR-compliant platform connecting healthcare professionals across European Reference Networks (#ERNs) is now at your fingertips.

📣 Do you know about #ERDERA's Networking Support Scheme? 👇 It funds events that boost rare disease & rare cancer knowledge exchange. 👩‍⚕️ For researchers, clinicians, advocates & more. 📅 Apply by 7 Oct 2025 🔗 loom.ly/CwIvcvM #ResearchFunding #RareDiseases #RareCancers

🚀 Registration is open for the FAIR Training Program 2025! Learn how to make rare disease data more Findable, Accessible, Interoperable & Reusable. 🗓 24–26 Sept | 💻 Online | 🎓 Free Limited places—register now 👉 loom.ly/8q3ieQQ #FAIRdata #ERDERA #RareDiseases

📢 Website Update: Funding Opportunities 🔎 A new page as been added to our website where you can find funding opportunities related to rare diseases. Visit this new section to learn more: ern-skin.eu/funding-opport… #fundingopportunities #research #support #grants

📢 New 2025/2026 ERN-Skin Webinar Calendar is here! 👉 Explore the full 2025/2026 webinar calendar on our website: ern-skin.eu/webinars/ 🗓️ Topics will be announced soon but you can already mark your calendars and plan ahead! #webinar #dermatology #rareskin #erns

EADV Congress: ERN-Skin session - Join us Tomorrow at 8:30 - Room N01 🏆 2026 WCRSD free registration for the winner More information: ern-skin.eu/ern-skin-meeti… #eadv #congress #erns #dermatology #dermatologists

🎉 Quiz #Winner Announcement! Thank you everyone who participated in our quiz during our ERN-Skin session at 2025 EADV congress yesterday. 👏 Congratulations to Jade Logger! You have been awarded free entry to 2026 WCRSD Check the correct answers: ern-skin.eu/ern-skin-meeti…

👀 Did you notice? 🎓Our AIBD + ToxiTEN e-training course for residents is live on our website! ℹ️ Available only for ERN-Skin members! 📎 Access the replay here: ern-skin.eu/aibd-toxiten-e… #etraining #dermatology #pemphigoid #bullousdisease #residents

🔬 Every advance in research and care makes a difference for people living with rare skin diseases. 📅That’s why the World Congress Rare Skin Diseases, coming 1-2-3 July 2026, is such an important moment. 🔗wcrsd.com/en/

Incontinentia Pigmenti Scientific Day (Hybrid event) 📅 17th October 2025 👉 Programme & more information: ern-skin.eu/ern-skin-meeti… #scientificday #dermatology #dermatologists #patients #incontinentiapigmenti

💻 Scientific Seminar on Methotrexate or Dupilumab as maintenance therapy for patients with Bullous pemphigoid which one for whom? 📅 27th October 2025 from 5:00 – 6:00 pm CET Register now: ern-skin.eu/webinars/ #aibd #bullouspemphigoid #dermatology #webinar healourskin

Great news! 🎉 The ERN-Skin board meeting program is now online, and you have more time to register. 🗓️ The deadline is extended to 23 October! 👉 Register now: ern-skin.eu/ern-skin-meeti… #boardmeeting #dermatology #ern #eventprogram #dermatologist

Just a few days to go! 🚀 Join us this Friday for Incontinentia Pigmenti Scientific Day (online or in person). 👉 Don’t miss out, register now: ern-skin.eu/ern-skin-meeti… #scientificday #dermatology #dermatologists #patients #incontinentiapigmenti FIMARAD

🧬 Scientific publication! We’re proud to share the results from the ERN transversal working group on pregnancy and family planning. 📄 Read the full article: pubmed.ncbi.nlm.nih.gov/40065363/ #RareDisease #ReproductiveHealth #FamilyPlanning #ERN #ClinicalResearch #WomenInMedicine

The countdown is on! Our Scientific Seminar is next week, and registration is still open. We look forward to welcoming you!

💡 Did you know that EI Cure Project and EI Cure Project Research Alliance will organise their first Epidermolytic Ichthyosis Symposium on March 19-20, 2026? 📍 This 2-day Symposium will be held at the Zurich Careum Switzerland. ℹ️ More info: eicureproject.com/upcomingevents…

We are live now! Join us: ern-skin.eu/webinars/

📢 Call for Abstracts is now open – 3rd World Congress on Rare Skin Diseases #Researchers, #clinicians, #healthcare professionals, and #patient representatives are invited to share their work on rare skin diseases. 🔗wcrsd.com/en/call-for-ab… #WCRSD #CallForAbstracts

💻 ERN-Skin webinar REPLAY! Our Scientific Seminar on Methotrexate or Dupilumab as maintenance therapy for patients with Bullous pemphigoid which one for whom? is now available on our website! Available at: ern-skin.eu *For ERN-Skin members healourskin

💻 ToxiTEN #webinar coming soon! 📆 25th November 2025, 1:30 pm – 2:30 pm CET Invisible Scars: Psychological and Health-Related Quality of Life Sequelae in Severe Cutaneous Adverse Reactions (SCARs), with a Focus on SJS/TEN. 👉 Register here: ern-skin.eu/webinars/ #ernskin