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Daily #RT #Share & #Support Let's unite in solidarity & fight systemic discrimination! Help me get the chance to my right to education UCC Ireland gofund.me/bef970d6 Stay updated as Disabled Artists & Disabled Academics Dr Tom Clonan fight for #HumanRights & #unionofequality #EducationForAll #Disability

It's Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) Awareness Month! [Thread] What is #EDS? The Ehlers-Danlos syndromes (EDS) are a group of 13 individual genetic conditions, all of which affect the body’s connective tissue: ehlers-danlos.org/what-is-eds/

ICYMI #LongCovid AND #hypermobility ? Really ? Find out more May 19th Sunday from 3.30 pm BST #dizziness #fatigue #pain sedsconnective.org theguardian.com/society/2024/m…

Great awareness for #EhlersDanlosSyndrome and #Hypermobility in The Guardian today, including why our GP toolkit and the school toolkit are so needed, and why we need to keep momentum with our #EnoughIsEnough campaign for a pathway for care in the UK. theguardian.com/society/articl…

It's Official: The Disability Pride and Power Festival & Parade will return this year with our second parade on Saturday 20th July, 2pm in Dublin City Centre. More Details to Follow. Join the movement to celebrate disabled culture and identity, pride & power! #LastOneOnTheTrain

✊Proud to Progress my Disability (Rights) Misc Provisions Bill. This Bill Creates Legal Rights for #Disabled Citizens to Therapies, Interventions & Independent Supports within an Assessment of Need - Within the Therapeutic Window. We Must Not Flinch from Fundamental Human Rights

The Rise of Clinician-Associated Trauma in the Doctor-Patient Relationship - the fourth part of our medical trauma series buff.ly/44DW8ed #EDS #hEDS #Hypermobility #HSD #CPP #Pain #MedEd #Doctors #Nurses #NEISvoid #Spoonies #Zebras #patients #EhlersDanlosSyndrome

I have debated about posting this because I don't know if I'm the right person to talk about the scoliosis surgery waiting lists but I feel like I do need to say something because its not fair on the people who are affected by this. I just took my camera and splurged my thoughts

#REDS4VEDS is just four days away. Don't forget to send us a pic of you in red either in the replies or to [email protected], and we'll share it from the Foundation as a show of global support for our friends at Annabelles Challenge Vascular EDS Charity. #VEDS

“We don’t want to express the physical #pain all the time and when you live in constant pain, there is little point in doing so. Exhibiting your high pain levels only serves to make others uncomfortable”: buff.ly/2tIVGuT by @apainprincess #ChronicPain #InvisibleIllness

I know many of us with Ehlers Danlos either have ME or have had post infection ME in the past. Either way we know what it is like to also not have any consultant here in Ireland. Please sign.

May is #EhlersDanlosAwarenessMonth. I’m 39, still fighting to obtain a public rheum here in Ireland so that I don’t have to travel privately to UK. My story is unfortunately not unique. Whole families are being left to rot. If you are press, please reach out to [email protected]

Daily #RT #Share & #Support Let's unite in solidarity & fight systemic discrimination! Help me get the chance to my right to education UCC Ireland gofund.me/bef970d6 Stay updated as Disabled Artists & Disabled Academics Dr Tom Clonan fight for #HumanRights & #unionofequality #EducationForAll #Disability

Dysautonomia, also called autonomic dysfunction, is a group of disorders that affect the autonomic nervous system. Many people with Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD) also have a type of dysautonomia. There are different types of dysautonomia

“I was diagnosed with Ehlers-Danlos syndrome (EDS) after my ophthalmologist noted some specific issues with my eyes and insisted that they be investigated. Despite being diagnosed at a major research university hospital with supporting cardiac, ophthalmologic, dermatologic and

If you missed our "life changing" Minding Autistic Minds Conference then now it's your time to see what all the fuss was about! An amazing, powerful, Autistic rights-led conference Available here ausometraining.com/anytime-autism…

Popular People With Ehlers-Danlos Syndrome - the list steadily grows... buff.ly/3N5EQz8 #EDS #hEDS #Hypermobility #HSD #Fibro #MS #Spoonies #NEISvoid #Celebrities #ChronicIllness

Not all stripes are black and white 🌈🦓 The Ehlers-Danlos Society recognizes and celebrates Pride Month this June with the LGBTQIA+ members of our dazzle! 🏳️‍🌈 Our Let’s Chat: LGBTQIA+ group is for LGBTQIA+ community members who have been diagnosed with, or suspect they may

WE NO LONGER USE THIS PLATFORM - FIND US ON IG, FB and TikTok #EDS4IRE #HSD4IRE eds4ire.ie