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Bingham - HNF1B and pancreatic disease. Weight loss diarrhoea and abdominal pain can respond to creon #UKKW2018 RaDaR

Bingham - HNF1B is now considered a multi system disorder #UKKW2018 RaDaR

Over 30 patients and family members - adults and children - have registered to come to our roadshow in Manchester on Saturday. Still time to let us know if you would like to come along. A great chance to meet others affected by #ahus x.com/NationalaHUS/s…

The second National aHUS Service roadshow underway in Manchester with ~ 30 #aHUS patients and their families with talks from David Kavanagh joanne stout

Great excitement today as the aHUS Alliance visits the National aHUS Service in Newcastle #ahus

Looking forward to welcoming aHUS Alliance and sharing our work with them x.com/RenalResearchU…

Our new animation video 'What is aHUS?' can now be viewed on the patient information area of our website. We hope you find it informative and thanks to Three Motion for all their hard work. atypicalhus.co.uk/ahus-2/what-is…

The National aHUS Service 's new video explains how Newcastle Hospitals and ICM Newcastle 's ground breaking research is revolutionising patients' lives atypicalhus.co.uk/ahus-2/what-is… @JackieDanielNHS Sir John Burn @IGMengageNCL Great Exhibition of the North 2018

Pls give Ian Logan a follow & a RT. On 11th August Ian will be doing the Mallorca 312 OK Mobility with me supporting him on the OQServiceCourse scooter to raise the awareness of #organtransplants GBTransplantCyclists Gurch Randhawa NHS Organ Donation💗🫀🫁 sandra currie Sally Johnson Kidney Research UK

Tomorrow I am giving back to Northern Counties Kidney Research Fund! Please read my page and donate if you can. ⁦NCKRF⁩ justgiving.com/Edwin-Wong2?ut…

Our first #C3G patient roadshow will take place in London on Sunday 3rd March. More info at atypicalhus.co.uk/c3g-patient-ro… or email [email protected] to register your attendance MPGN/DDD ANDY LONGFELLOW RaDaR Kidney Research UK

All ready for 4th #ahusroadshow in London. #aHUS aHUS Alliance Action Complement Kidney TMA UK

The #ahusroadshow with joanne stout discussing the @pickereurope aHUS patient experience survey. Complement Kidney TMA UK aHUS Alliance Action

The #ahusroadshow with Neil Sheerin discussing the #SETSaHUS trial. Can we safely withdraw eculizumab?

Day 2 in London & getting ready to go with our first #C3GRoadshow joanne stout Gill Curry Jalibani Ndebele Edwin Wong Sally Johnson claire harris

Treatment options for #C3G could change. Clinical trials for patients with C3G are opening globally including several in the UK!! clinicaltrials.gov/ct2/results?co…

Hope that Neil Sheerin has got his Twitter handle at the ready ahead of his talk at #GNFrontiers RenalResearch

Great news that patients throughout the UK can be referred for potential new treatments for #C3G and #DDD at the National C3G Service #clinicaltrials

Ever had that heart sink call about a seriously sick patient who may or may not need urgent PEX, who isn’t even in your hospital yet?! Come to the Clarence Suite at 14.10 to get some diagnosis and management tips! Marie Condon kate bramham Stephen McAdoo Edwin Wong #ukkw2019

Great to see so many folk Kidney Research UK #NewcastleBridgesWalk including john sayer sandra currie Angela Watt telling us about some of the fantastic achievements in kidney research #TeamKidney