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Exciting and important #teenage #hypermobility project. If anyone can help Ellen Ewer and Prof Jane Simmonds please see below for further details. #AHPsinResearch OfficialCAHPR Physiotherapy Research Society (PRS) Susan Ward

Thank you to everyone who has supported this research. The interim data is looking great..we need more young people with HSD/hEDS who have bladder problems to complete this questionnaire please Professor Lara Bloom The Ehlers-Danlos Society hypermobility.org Ehlers-Danlos Support UK Ellen Ewer Central Health Physiotherapy

**SAVE THE DATE** we’re planning a study day (virtual and F2F) on Friday 9th September on Assessment and Management of Altered Tone in Children in collaboration with Irwin Mitchell TheAPCP

Come check out our Poster at The Ehlers-Danlos Society International Scientific Symposium 2022. - via #Whova event app #ISS2022

Really enjoying the #ISS2022 so far, such great networking and fascinating presentations and posters

So proud of the spider and our wonderful Spider team! 🕷

Special thanks to physio Ellen Ewer & all #AlliedHealthProfessionals who this year have supported their patients with #EhlersDanlosSyndrome or #HypermobilitySpectrumDisorder around the world, carried out research, and joined EDS ECHO - giving hope for the future! 1/3

If you are planning to study on the UCL MSc paediatric or musculoskeletal physiotherapy or just want to hear their research sign up for this event. You will hear from fabulous alumni including Caroline Alexander Christine Douglas Ellen Ewer Elaine Chong and Becca Spear

This is a very important step in bringing the multisystem Spider measure into practice. We need young people 13-18yrs with and without hypermobility to complete this. Please share. UCL Great Ormond Street Institute of Child Health The Ehlers-Danlos Society hypermobility.org

Such an incredible experience - my first World Physio Congress! Delighted to have presented our Spider work, and to learn about all the latest Physiotherapy research. Such an inspiring weekend #WorldPhysio2023

Great talk from Carol McCrum about the rheumatology physio capabilities framework 👏 #worldphysio2023

Huge congrats to Susan Ward for winning the outstanding platform award for her presentation on her scoping review of clinical characteristics of symptomatic hypermobility at #WorldPhysio2023. So well deserved for such excellent work 👏

Fab to catch up with familiar faces at #WorldPhysio2023 UCL Physiotherapy are everywhere!

The next step of the Adult Spider validation is now live! Part 3 is also live - if you are able to complete all 3 surveys we would be so grateful. Links below 🕷️ Part 1: redcap.slms.ucl.ac.uk/surveys/?s=JEM… Part 2: redcap.slms.ucl.ac.uk/surveys/?s=KJN… Part 3: redcap.slms.ucl.ac.uk/surveys/?s=9AH… Prof Jane Simmonds

QR codes below. Scan for quick survey access. Separate surveys for adults and adolescents, 18 year olds can choose either! Prof Jane Simmonds

We are excited to share our adult hypermobility Spider validation paper. link.springer.com/content/pdf/10…. Thank everyone who participated. Thank you PPEF Ehlers-Danlos Support UK The Ehlers-Danlos Society. Brilliant research by UCL Great Ormond Street Institute of Child Health alumni Ellen Ewer and Inge De Wandele and team!

Proud to present the validation of the Spider tool for symptomatic hypermobility on behalf of our research team and patients Ellen Ewer Vicki Busby Cathy Barrett Inge De Wandele Chartered Society of Physiotherapy (CSP) #Physio24