Emily Earle
@emilyearle5
Mum of 3. Volunteer for CCAA (Kids with Arthritis) supporting families of children with a paediatric rheumatological condition. Views my own!
ID: 2463376188
https://www.ccaa.org.uk 25-04-2014 15:35:59
776 Tweet
292 Followers
411 Following
๐ 9 hours streamed this week so far ๐ 214 live viewers ๐ 7,000 minutes watched ๐ ยฃ200 RAISED FOR CCAA - Kids With Arthritis (JIA) Thank you! ๐ We go again tomorrow from 2pm.
Celebrating World Young Rheumatic Diseases Day (WORD Day) today! The PReS Lupus working party have made this great video on why it's so important to raise awareness on #invisibleillness like juvenile #Lupus to improve our young patients' wellbeing! ๐ฉโ๐ฌ๐๐จโ๐ฌ@working1371 Find out more at wordday.org ๐
I had a great time at #BSR24 in Liverpool volunteering for CCAA - Kids With Arthritis (JIA)! Enjoyed catching up with familiar faces & meeting new ones too. If anyone missed my talk 'Starting a JIA journey - what do families worry about...' pls get in touch & we can revisit for your team. #PaedRheum
๐จNew research! ๐ฐPublished in Lancet Rheumatology The Lancet Rheumatology ๐Switching from a TNFi originator to a #biosimilar for #JIAโ โ We found children do just as well as those who remained on the originator (i.e. didnโt switch) ๐นLearn more๐or read: thelancet.com/journals/lanrhโฆ
Calling 16-17 year old's and/or parents of children who have suffered acute pain in England in the last year & needed an ambulance, please share your experiences & sign up to the PANDA study๐communityandhealth.blogs.lincoln.ac.uk/2024/11/29/panโฆ CCAA - Kids With Arthritis (JIA) Versus Arthritis Great Ormond Street Hospital Charity Please share widely