This is what we do it for: joy, freedom, breath. 💜 At Emily’s Entourage, we’re drawing new #LinesOfProgress by funding bold research to #CrossOutCF and bringing lifesaving breakthroughs to every person with #cysticfibrosis. 🔗 Learn more: bit.ly/Final10CFSurvey #CureCF #CF

Meet Sacha Spelier, PhD, who’s transforming #cysticfibrosis care at UMC Utrecht with personalized treatments using patient-derived cells. 🎥 Watch >>> youtu.be/JdfzqFACnu4 Thanks to our #SciencEE sponsors: Viatris, Baxter International, ReCode Therapeutics, Boehringer Ingelheim, & 4DMT

🔎 #FactFriday: In 2023, 60.4% of people with #CysticFibrosis were adults—up from 32.8% in 1992. Progress like this fuels our drive to #CrossOutCF, once and for all, so everyone with #CF has the chance to grow old. 💜 #CureCF #CFAwarenessMonth

As #CFAwarenessMonth ends, we want to say THANK YOU for standing with us to #CrossOutCF. 💜 Your support fuels our hope and mission. May is ending, but our work is far from over—not until breakthroughs reach every single person with #CF, all over the world, once & for all. 💪❌

🚨 New virtual event! Join us Tues, July 15 at 8 PM ET for a free #webinar: “Gene Therapy Updates in CF.” Get the latest from the 2025 EE Scientific Symposium + live Q&A with top experts. 🧬 🔗 Open to all—register today: bit.ly/4jNurVS #CysticFibrosis #CureCF

Huge and heartfelt thanks to 4DMT, a 2025 Tier 3 Annual Sponsor, for helping us power breakthroughs for the final 10% of people with #cysticfibrosis. Your support brings hope—and saves lives. 💜 🔗 Learn more: 4dmoleculartherapeutics.com #CureCF #CF #CFResearch

More than 10% of people with #cysticfibrosis are still waiting for breakthroughs. Huge thanks to ReCode Therapeutics for supporting Emily's Entourage in the race to ensure no one with #CF is left behind. Your support is instrumental & means more than we can possibly express! 💜 #CureCF

We’re so grateful to Krystal Biotech, ArcturusRx, and sionna_tx for being 2025 Tier 4 Annual Sponsors—and for fueling EE’s mission and accelerating breakthroughs for the final 10% of the #cysticfibrosis community. Thank you from the bottom of our hearts! 💜 #CureCF #CF

For the final 10% of people with #CF who can’t benefit from current therapies, time matters. Huge thanks to Vertex Pharmaceuticals, a 2025 Tier 1 Annual Sponsor of Emily's Entourage, for going all in to help speed breakthroughs for the final 10%.💜 Learn more: vrtx.com

🚨 BREAKING: EE awards 4 bold new #cysticfibrosis #research grants to accelerate breakthroughs for the final 10% of the #CF community still waiting. From #geneediting to #phage therapy—this is momentum in motion. 🔗 Learn more: bit.ly/3J3R7ok #CureCF #CF

👁️‍🗨️ The future isn’t blurry anymore. It’s sharp. Urgent. Electric. And it’s coming into view on October 11 @ the 2025 Emily’s Entourage Gala: a night to blow open what’s possible for the final 10% of those with #CF. 🎟️ Tickets now available: emilysentourage.org/phillygala25 #CureCF

📸✨Only 1 hour until the 2025 EE Gala, High-Res comes into focus! If you can't be with us in Philly, join us virtually at 7pm EST! Be part of this night full of impact % clarity for the #CF community! >> us02web.zoom.us/webinar/regist… #EEinRes #CureCF #CysticFibrosis

👓✨ The show is about to begin… Are you ready to see what comes into focus next? Join our virtual livestream now and experience every High-Res moment, from wherever you are! 💻 Watch here: us02web.zoom.us/webinar/regist… . . . #EEinHighRes #CureCF

And now, celebrity comedian, actor, writer, and content creator Anna Roisman takes the stage to emcee our #EEinHighRes gala! 👓✨ Catch her big intro and laughs live — join the virtual livestream now >> us02web.zoom.us/webinar/regist… #CureCF

Introducing the Dr. Carolyn Denning Trailblazer Award! The inaugural award will be presented at the EE reception during #NACFC in Seattle in 2 weeks. Honoring a legacy of #CF innovation! 💜  . . . #EEinHighRes #CureCF

💜🌟 Our own Emily Kramer-Golinkoff is taking the mic!  Watch this inspiring moment unfold in High-Res >> us02web.zoom.us/webinar/regist… #EEinHighRes #CureCF

🪩✨Now is the moment! TOGETHER, LET’S BRING A FUTURE FREE FROM #CF INTO HIGH-RES! 👓 Text: CURECF to 44-321 Or donate here >> secure.givelively.org/donate/emily-s…

#CysticFibrosis is hard to treat with gene therapy because it can be caused by many different combinations of mutations. A new gene editing tech from UT Austin, using genetic elements borrowed from bacteria, might change that. Full story: cns.utexas.edu/news/research/…

At Emily’s Entourage, we’re driven by an unshakable belief in a future where no one with #CF is left behind. We are profoundly grateful to Vertex Pharmaceuticals, 2025 Tier 1 EE Annual Sponsor for their commitment to making this vision a reality. 💜 Learn more: vrtx.com

If you or a family member has been diagnosed w/a #raredisease, you're invited to participate in a survey looking at the impact of rare disease experience on identity & daily life, conducted by researchers at Emory University. Learn more & participate >> qualtricsxmth5ggx5z8.qualtrics.com/jfe/form/SV_1G…