
Emma_MacLennan
@emma_maclennan
💙 Director Eastern Alliance for Safe & Sustainable Transport - Opinions wholly my own. Lost our precious son Alex to MND. We need to #EndMND.
ID: 14687475
http://www.easst.co.uk 07-05-2008 15:07:57
13,13K Tweet
2,2K Followers
3,3K Following

It was a pleasure to welcome Liz Twist MP to our Parliamentary drop-in today to meet some of our team and hear about the Association's campaigning priorities. We look forward to working together in the future to make change for the MND community. #GlobalMNDAwarenessDay



We're very grateful to the Minister of State for Social Security and Disability Sir Sir Stephen Timms for taking the time to talk to Seckin about her journey with SOD1 MND and her fight to access tofersen. We look forward to working with Minister to ensure everyone living with MND



This week our Chair lan Byrne MP & Vice Chair Aphra Brandreth attended the MND Association's parliamentary event to mark #GlobalMNDAwarenessDay. The APPG is committed to continue shining a light on the hidden realities of #MND in parliament and beyond. #MNDHiddenRealities





Please "Prescribe Life" for Seckin & other @MNDpatients with SOD1 gene mutation on #MNDglobalawarenessday by signing this petition act.mndassociation.org/2025-prescribe… Darby Rimmer MND Foundation Ed Slater Geoff Burrow Charlotte Hawkins Mike Wilson* Lynn Pritchatt Cris Hoskin Eleanor Dalley

Today is #GlobalMNDAwarenessDay - a day to honour everyone affected by motor neurone disease. This APPG is committed to raising awareness of the challenges the #MND community face in parliament and beyond. Find information and support via the MND Association & MND Scotland websites.



Delighted to see this investment in MND Research by Darby Rimmer MND Foundation. Huge thanks to all participants in various mega-treks. This helps accelerate progress towards meaningful treatments & is a great boost to the efforts of UK MND Research Institute Kevin Darby Mike Wilson* Oliver Kay Chris Kirkland

Emma_MacLennan MND Association Darby Rimmer MND Foundation MND Scotland My Name'5 Doddie Foundation Challenging MND FightMND Neale Daniher Sam Burgess Sir Bill Beaumont MND Research Australia Thank you, Emma and David. Love to you both too. And remembering Alex, your beautiful boy. 💔🫶 #GlobalMNDAwarenessDay





Tonight, Roath Park Lighthouse will be illuminated in vibrant shades of blue and orange to mark #GlobalMNDAwarenessDay and to raise awareness for motor neurone disease. 💙 🧡 For more info, visit: orlo.uk/Z18Gq #MND MND Association | Cymru Wales MND Association



