Empowering Patients,LLC • Alison (@empoweringpts9) 's Twitter Profile
Empowering Patients,LLC • Alison

@empoweringpts9

👋🏼#Autoimmune pt advo (1°#IBD/#ostomy) • ALWAYS learning #healthcare system while fighting own disease • Clinicians🤝patients • Sports~Bucks🌰,Reds,Bengals

ID: 559953318

linkhttp://www.facebook.com/PatientAdvocacy calendar_today21-04-2012 21:17:39

44,44K Tweet

4,4K Followers

4,4K Following

Empowering Patients,LLC • Alison (@empoweringpts9) 's Twitter Profile Photo

#IBD/#Ostomy Surgery countdown 🖐️ 5 days 🙌🏼 2wks to obtain 24h TPN (shortage of IV bags!), but being an informed patient with a GI who won’t give up can really come in handy. Authenticity: port access & this was a 3 stick-er (it shouldn’t really hurt) #PortsArentTheEasyWayOut

Mark Lewis, MD, FASCO (@marklewismd) 's Twitter Profile Photo

Furthermore, in early-onset colorectal cancer patients, I see a fundamental misunderstanding between the role of screening vs. diagnostic procedures You do NOT have to wait until a preordained age (whether the cutoff is 45 or 50) to see a gastroenterologist if you are bleeding!

Empowering Patients,LLC • Alison (@empoweringpts9) 's Twitter Profile Photo

🗓️ 3 months of immense planning & coordination 🧑‍⚕️ Attentive HCP’s ✈️ Flight to NYC 🔪 Extensive #IBD/#ostomy surgery 🏥 5 days in ICU 📆 7 days surgical floor 🕰️ Additional careful planning 🏡 Officially continuing very slow advance of diet at my sister & BIL’s

🗓️ 3 months of immense planning & coordination

🧑‍⚕️ Attentive HCP’s

✈️ Flight to NYC

🔪 Extensive #IBD/#ostomy surgery

🏥 5 days in ICU

📆 7 days surgical floor

🕰️ Additional careful planning

🏡 Officially continuing very slow advance of diet at my sister & BIL’s
Empowering Patients,LLC • Alison (@empoweringpts9) 's Twitter Profile Photo

Update: Making progress sloooowly advancing my diet finding the line between allowance vs my brain. Advancing is slower to include foods I haven’t had in years or I’d be writhing in pain &/or vom Bonus⬇️immune sys: bronchitis has now added hacking/coughing to freshly cut abdomen

Update:
Making progress sloooowly advancing my diet finding the line between allowance vs my brain. Advancing is slower to include foods I haven’t had in years or I’d be writhing in pain &/or vom

Bonus⬇️immune sys: bronchitis has now added hacking/coughing to freshly cut abdomen
Empowering Patients,LLC • Alison (@empoweringpts9) 's Twitter Profile Photo

Huge gratitude to Andrea at 180 Medical!! The part “you handhold for others, it’s allowing me to do this for you” still sitting in my heart. My very small circle tries, but unless they’re deep in the field, it’s hard to fully grasp/know all intricacies we need to align for care

Empowering Patients,LLC • Alison (@empoweringpts9) 's Twitter Profile Photo

Few details -ADVOCATE as hard as you can even when you can barely breathe; stay involved/informed on your body’s state -SPEAK UP to anyone; never know who’s listening -Intro self to David M. Schwartzberg, MD. He dislikes me saying: This man & his mentor FR have saved my life >4 times 2025

Few details
-ADVOCATE as hard as you can even when you can barely breathe; stay involved/informed on your body’s state
-SPEAK UP to anyone; never know who’s listening
-Intro self to <a href="/SchwartzbergMD/">David M. Schwartzberg, MD</a>. He dislikes me saying: This man &amp; his mentor FR have saved my life &gt;4 times 2025
Empowering Patients,LLC • Alison (@empoweringpts9) 's Twitter Profile Photo

Where have I been since IBD surgery? I broke my back - ICYMI - Yes, you read that right and it’s still so weird to say, but today I need to outright say it. 🦴Osteomyelitis + recovering from abdominal major surgery is unreal. 🦠🩻