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So I had one more MRI with contrast. Surgery is going to be next week - Wednesday or Thursday but only ablation. And the other lession next to femoral nerve they leave it there to grow and grow. I hate this so much #endo #endometriosis #womenshealth #hospital

Do you have any tips for good books or tv shows/movies for my stay at hospital ( I usually read fantasy and sci fi) but I'm open anything good and especially cheerful. Thank you so much for tips and also your support #endo #endometriosis #Hospital

So today was full day of preoperative examinations, blood tests, ECG, USG talk with anesthesiologist. Result should handle full anesthesia, surgery is on Wednesday removing / ablating lession next to femoral vein #endo #endometriosis #womenshealth #surgery #hospital

Hi so I'm back after surgery there were some complications, I lost blood plus super drowsy from meds but femoral vein is saved for now. Unfortunately swelling worsen the pain of femoral nerve and even sciatic somehow #endo #endometriosis #surgery #hospital

Update post surgery: Trying to rest as much but yesterday my wound got infected started festering ☹️ so I had to go to ER got antibiotics and after reading possible side effects new fear unlocked ( fluoroquinolones) #endo #endometriosis #surgery #Antibiotics

endometriosis activates immune responses that aren’t limited to the immediate of lesions but affects whole body - e.g widespread mast cell activation through pelvis or other areas #endo #endometriosis #womenshealth

So three days ago I was back in the hospital because the inflammation got really bad. But since I had a lot of time to scroll, I came across Marty Sheargold and his claim that #endometriosis is 'made up.' WTF. These kinds of dismissive claims are exactly what’s stopping progress

Endometriosis is not imaginary disease. It is a scientifically recognized medical condition. The impact of endometriosis extends far beyond physical pain or “bad periods” #endo #endometriosis #womenshealth #ChronicPain

If you're around check this out #endo #endometriosis

Marty Sheargold, claiming that endometriosis is “made up.” —“Labeling women’s suffering as ‘made up’ doesn’t just fuel harmful stigma—it also spreads dangerous myths that add to the struggles women endure every day.” #endo #endometriosis #WomensHealth #chronicillness

I'm glad this week is over. I had to go to the hospital every day for wound cleaning, and let me tell you, it was not fun. I just hope it heals properly now #endo #endometriosis #surgery #hospital #WomensHealth

I think endometriosis perfectly illustrates the failure of the system, mainly because it has for long time failed to believe and listen women #endo #endometriosis #WomensHealth

Endometriosis is hard to diagnose because the symptoms are very complex. It’s not just bad periods — it can also be frequent urination, nerve pain, brain fog, or food sensitivities #endo #endometriosis #WomensHealth #nervepain

Chronically ill people don’t need insta advice like “think positively,” “do yoga,” or “take this.” What we actually need and wish for is understanding, compassion, and respect #endo #endometriosis #chronicillness #WomensHealth

Need a list of TDs who didn't support the Sinn Féin motion on #endometriosis #inmheatróis care in Ireland? Voting power goes beyond you, if everyone with #endometriosis in Ireland and their families/friends stood up it would shake their votes. oireachtas.ie/en/debates/vot…

Personal update: so my lovely wound decided not to heal it actually opened so next round of every day hospital cleaning and also battery of test to find out why after 3 weeks it refuse to heal #endo #endometriosis #surgery #hospital

My wound isn’t healing and there's daily drainage. Thanks of this I’ve had to buy special wound care supplies and now I don’t have enough money left for my health insurance payment. So maybe next month, no healthcare. Thanks, #endo for this #endometriosis #healthcare #hospital