ericsjourneyfoundation (@erics_journey) 's Twitter Profile
ericsjourneyfoundation

@erics_journey

Our mission is to lead, inspire and support individuals around the world impacted by rare diseases. #EricsJourney🌎 #HLH #StillsDisease #RareDisease #RareBall

ID: 1227336812806524929

linkhttp://www.EricsJourney.org calendar_today11-02-2020 21:01:25

62 Tweet

61 Followers

165 Following

The Lancet (@thelancet) 's Twitter Profile Photo

NEW—#COVID19: consider cytokine storm syndromes and immunosuppression Correspondence from Puja Mehta et al, on behalf of the HLH Across Speciality Collaboration hubs.ly/H0nzmn40

NEW—#COVID19: consider cytokine storm syndromes and immunosuppression

Correspondence from Puja Mehta et al, on behalf of the HLH Across Speciality
Collaboration hubs.ly/H0nzmn40
ericsjourneyfoundation (@erics_journey) 's Twitter Profile Photo

#Sobi will begin a short-term clinical study to evaluate the efficacy and safety of anakinra and emapalumab in the treatment of hyper-inflammatory syndrome, one of the most serious complications associated with severe COVID-19 disease. sobi.com/en/press-relea… #Italy #Covid19

#Sobi will begin a short-term clinical study to evaluate the efficacy and safety of anakinra and emapalumab in the treatment of hyper-inflammatory syndrome, one of the most serious complications associated with severe COVID-19 disease. 

sobi.com/en/press-relea…

#Italy #Covid19
The COVID-19 Global Rheumatology Alliance (@rheum_covid) 's Twitter Profile Photo

Counting down… just a few days until we launch our COVID-19 Global Rheumatology Registry early next week!!! This has been a MASSIVE effort by an amazing group of people and appreciate all of the help and support you have given us!

Counting down… just a few days until we launch our COVID-19 Global Rheumatology Registry early next week!!! 

This has been a MASSIVE effort by an amazing group of people and appreciate all of the help and support you have given us!
The COVID-19 Global Rheumatology Alliance (@rheum_covid) 's Twitter Profile Photo

We’re on track to launch TUESDAY and we’re still looking to add to the ~100 global organizations that have supported us since our launch. If you’d like to add your organization to our growing list, use this form: docs.google.com/forms/d/e/1FAI…

We’re on track to launch TUESDAY and we’re still looking to add to the ~100 global organizations that have supported us since our launch. 

If you’d like to add your organization to our growing list, use this form: docs.google.com/forms/d/e/1FAI…
American College of Rheumatology (@acrheum) 's Twitter Profile Photo

We are proud to be playing a supporting role in the COVID-19 Global Rheumatology Alliance and encourage participation in the registry to help the global effort to collect pertinent data on #COVID19 infection in rheumatic disease patients. acr.tw/3bsgytv #covid4rheum

American College of Rheumatology (@acrheum) 's Twitter Profile Photo

#COVID19 guiding principles for IL-1, IL-6 & JAK antagonists (acr.tw/2UOGWqT), and C5 inhibitors (acr.tw/39wEjPY) now available! All recommendations are based on current knowledge and are subject to revision as circumstances evolve. #covid4rheum #drugshortage

#COVID19 guiding principles for IL-1, IL-6 & JAK antagonists (acr.tw/2UOGWqT), and C5 inhibitors (acr.tw/39wEjPY) now available! All recommendations are based on current knowledge and are subject to revision as circumstances evolve. #covid4rheum #drugshortage
ericsjourneyfoundation (@erics_journey) 's Twitter Profile Photo

Help me, Protect them! Nurses & Staff at Temple Health Helped Save Me From the "cytokine storm" when I had HLH in 2012. Visit EricsJourney.org/TempleCovidSup… to help us fill a truckload of supplies for Temple Staff! #EricsJourney #Covid19 #HLH #StillsDisease #CytokineStorm

American College of Rheumatology (@acrheum) 's Twitter Profile Photo

Have you submitted your #COVID19 cases to the The COVID-19 Global Rheumatology Alliance global registry yet? Input your data today to help us find solutions for #rheum patients. acr.tw/3bsgytv #Covid4rheum

ericsjourneyfoundation (@erics_journey) 's Twitter Profile Photo

"Results from pivotal phase 2/3 study of emapalumab in patients with primary HLH published in New England Journal of Medicine" lnkd.in/gg59F_R #SOBI #HLH #EMAPALUMAB #GAMIFANT #HEMOPHAGOCYTICLYMPHOHISTIOCYTOSIS

"Results from pivotal phase 2/3 study of emapalumab in patients with primary HLH published in New England Journal of Medicine"
lnkd.in/gg59F_R
#SOBI #HLH #EMAPALUMAB #GAMIFANT #HEMOPHAGOCYTICLYMPHOHISTIOCYTOSIS
ericsjourneyfoundation (@erics_journey) 's Twitter Profile Photo

It's #GivingTuesday! Make a global impact on Histiocytosis, Still's Disease & other rare diseases by making a contribution to our Physician Association Support Program. #EricsJourney🌎 #Histiocytosis #StillsDisease facebook.com/donate/3001545…

It's #GivingTuesday! Make a global impact on Histiocytosis, Still's Disease & other rare diseases by making a contribution to our Physician Association Support Program. #EricsJourney🌎  #Histiocytosis #StillsDisease facebook.com/donate/3001545…
ericsjourneyfoundation (@erics_journey) 's Twitter Profile Photo

Join us for A Rare Ball January 20th - Featuring #DJSBU & benefiting #ZakithiNkosiHaematologyCentre RareBall.org #CollingswoodGrandBallroom #Amapiano #PhillyEvents #SouthJerseyEvents #EricsJourney🌎 #HLH #HemophagocyticLymphohistiocytosis