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💙🖤😪 Do not go gentle into that good night, Old age should burn and rave at close of day; Rage, rage against the dying of the light. Though wise men at their end know dark is right, Because their words had forked no lightning they Do not go gentle into that good night. Good

When I think about the neurologist offering me palliative care at 22 after offering nothing to me except mestinon and bblockers… laughing when I asked for plasmapheresis and showed him a recommendation letter Where is humanity How many young and beautiful spirits are gonna die?

“Many parents were concerned to speak on the record because they feared retaliation”…… Health Care. #longcovidcare #longcovidkids

Sehr geehrter Herr Prof. Lauterbach Prof. Karl Lauterbach wie Sie möglicherweise mitbekommen haben, ist Sarah inzwischen verstorben. In einem Ihrer Tweets hatten Sie Ihre Unterstützung angeboten – leider kam diese Hilfe für Sarah zu spät. Dennoch möchte ich Ihre Bereitschaft

I lost my house, my job, my capacity to walk to the fucking bathroom; every day on here it’s thousands of people in the most horrific dire situations bc of their long COVID and supposed leftists who think this will never happen to them fucking mock us for not wanting to die

This is the first in decades in the field of postviral illnesses. Bateman Horne Center has created a guideline for HCPs on how to manage the symptoms. This is not just a guideline. It could be a turning point if we make enough noise about it. I don’t usually ask for donations for anyone

Contrast Dye/MRI/Oxalic Acid New research suggests a possible reason why some patients experience serious side effects after receiving gadolinium-based contrast dye during MRI scans. Gadolinium is a heavy metal used in these dyes to improve MRI images, but it can sometimes cause

This is who you REALLY are. You are not a reflection in a mirror. There are no liposuction or fillers to prevent your neurons from showing your actual age. Support basic scientific research so that one day we may learn how to grow new neurons in the brain. #FluorescenceFriday

Distressed father appears emotional after revealing the General Manager of Cumberland Mall in Atlanta told him his wheelchair bound son with cerebral palsy had to leave the mall. “You had the general manager of the mall tell us that my son cannot be in the mall with us this

It wasn’t until the mid 19th century that doctors realized going straight from an autopsy to the maternity ward was not a good idea.

Dear long Covid patient, Don’t tell us about how you’re feeling or what’s not working, unless you’ve got new symptoms. It sucks you can’t eat, drink, wee or poo, but you’ve been like that for a while now, and so we’ve kinda stopped caring. It’s your new normal (see what we did

PACO It’s maddening. Not being believed is one of my biggest triggers, & the last 5 years of begging for care from doctors who have had 5 Covid infections & haven’t read a single study since 2021 (when the pandemic ended in their minds) has been my worst nightmare.

Paul, you obviously have no concerns that the lead authors of the fraudulent PACE study were in bed with health/disability insurers for years and did not disclose this to patients in the study--thereby violating their promise to adhere to the Declaration of Helsinki.

Good to see good people recognised.

Long Covid is rapidly becoming one of the biggest chronic illnesses in children and young people in the UK. In some countries, it's now overtaken asthma as the most prevalent chronic condition in childhood. This has happened in just over five years.🧵 1/10

It's 14mths ago that Isla died. I felt powerless trying to get help for Isla when she became so ill & feel powerless now. There's no support or help for us with our battle against bureaucracy & zero understanding/help from professionals dealing with grieving daughter with ME.

Jammer *Purchases a one piece cat suit and pretends to be an animal in order to get dignified medical treatment*

Failure to trial any mast cell targeting therapeutics on Long Covid patients is one of the greatest, if not the greatest, failures of Long Covid research. The aberrant mast cell activity that is behind a great deal of Long Covid problems has been near-completely ignored.

Clearly these cats need better yoga classes.

Proud to know them, proud to be one.