European Huntington Association (@eurohuntington) 's Twitter Profile
European Huntington Association

@eurohuntington

We represent Huntington's disease families and Organisations throughout Europe. Insta: @Theeurohuntington

ID: 4105128747

linkhttp://www.eurohuntington.org calendar_today03-11-2015 14:42:26

666 Tweet

972 Followers

208 Following

Prilenia (@prileniatx) 's Twitter Profile Photo

Prilenia is delighted to announce the acceptance for review of its #European Marketing Authorisation Application (MAA) for #pridopidine for the treatment of adults with #Huntingtondisease (#HD) by EU Medicines Agency. Read the Prilenia PR: tinyurl.com/3xhr99y3

Prilenia is delighted to announce the acceptance for review of its #European Marketing Authorisation Application (MAA) for #pridopidine for the treatment of adults with #Huntingtondisease (#HD) by <a href="/EMA_News/">EU Medicines Agency</a>. Read the Prilenia PR: tinyurl.com/3xhr99y3
HD-CAB (@hd_cab) 's Twitter Profile Photo

๐Ÿ™Œ HD-CAB is present at the EHDN & Enroll-HD Strasbourg 2024! We have a booth, in partnership with the European Huntington Association, International Huntington Association and HDYO, where you can spin a fortune wheel and win a small surprise ๐ŸŽ Don't forget to stop by! ๐Ÿ‘‹

European Huntington Association (@eurohuntington) 's Twitter Profile Photo

๐Ÿ”ฌ As we wrap up this year's EHDN & Enroll-HD Strasbourg, we inform the HD community on the clinical trial updates โ˜€ The results are very promising and we are hopeful for a brighter future ๐Ÿ‡ต๐Ÿ‡ฑ See you in 2026 in Krakow! ๐Ÿ‘‹ youtu.be/Ie1B3NX2Jg4

HD-CAB (@hd_cab) 's Twitter Profile Photo

๐Ÿ™Œ This past Sunday, after EHDN, HD-CAB hosted an International Round Table Discussion ๐Ÿ™ We would like to thank everyone who participated in this innovative format! Together, we created an open and inclusive environment, bringing global perspectives and diverse connections to HD

๐Ÿ™Œ This past Sunday, after EHDN, HD-CAB hosted an International Round Table Discussion
๐Ÿ™ We would like to thank everyone who participated in this innovative format! Together, we created an open and inclusive environment, bringing global perspectives and diverse connections to HD
HD-CAB (@hd_cab) 's Twitter Profile Photo

This collaborative effort is crucial in supporting industry and research partners as they advance studies, trials, and advocacy initiatives. Your contributions make a difference! ๐ŸŒ If you want to learn more about HD-CAB and our initiatives, visit hd-cab.org

This collaborative effort is crucial in supporting industry and research partners as they advance studies, trials, and advocacy initiatives. Your contributions make a difference!

๐ŸŒ If you want to learn more about HD-CAB and our initiatives, visit hd-cab.org
European Huntington Association (@eurohuntington) 's Twitter Profile Photo

๐Ÿ“ข Exciting News! FDA has granted Fast Track designation to PTC Therapeutics' PTC518, an investigational treatment for HD. This marks a major step forward in HD research, accelerating the development and review process. Read the full release here โžก๏ธ bit.ly/3ZyXuGu

๐Ÿ“ข Exciting News! FDA has granted Fast Track designation to PTC Therapeutics' PTC518, an investigational treatment for HD. This marks a major step forward in HD research, accelerating the development and review process. Read the full release here โžก๏ธ bit.ly/3ZyXuGu
European Huntington Association (@eurohuntington) 's Twitter Profile Photo

๐ŸŒWe want to hear from you! We've launched a 5-question survey for you to tell us what topics you'd like to see in the programme of the next EHA conference in 2025. We want to take into account your real needs! Find the survey in your language โžก๏ธ lnk.bio/Eurohuntington

HD-CAB (@hd_cab) 's Twitter Profile Photo

๐ŸŽฅ The Importance of HD CAB ๐ŸŒ HD-CAB operational and management team highlight the significance of having a global advisory board for HD, the role of young advocates, and the impact of advisory board meetings. Donโ€™t miss out on the discussion! ๐Ÿ’™ youtu.be/ptUNbjP-EYQ

European Huntington Association (@eurohuntington) 's Twitter Profile Photo

๐Ÿง  World Mental Health Day reminds us how essential mental health is for everyone, especially those impacted by HD. That's why we continue advocating for accessible psychological support and resources, helping individuals navigate this journey with care and understanding ๐Ÿ’™

๐Ÿง  World Mental Health Day reminds us how essential mental health is for everyone, especially those impacted by HD. 

That's why we continue advocating for accessible psychological support and resources, helping individuals navigate this journey with care and understanding ๐Ÿ’™
HD-CAB (@hd_cab) 's Twitter Profile Photo

โœ Introducing Astri Arnesen from the European Huntington Association, who plays a vital role in the Management Board of HD-CAB, leading and guiding our mission to support the HD community. Discover more about our amazing team here โžก hd-cab.org

โœ Introducing Astri Arnesen from the European Huntington Association, who plays a vital role in the Management Board of HD-CAB, leading and guiding our mission to support the HD community.

Discover more about our amazing team here โžก hd-cab.org
HD-CAB (@hd_cab) 's Twitter Profile Photo

In September, we hosted a discussion with international HD advocates to share their thoughts and experiences to an audience of industry partners, associations and researchers. Three participants, Jessica, Rob and Claudia, discuss their takeaways and impact of this discussion.

HD-CAB (@hd_cab) 's Twitter Profile Photo

๐ŸŒ One Voice for the HD Community Discover why our global members joined HD-CAB, uniting to strengthen the voice of the Huntingtonโ€™s disease community worldwide. ๐Ÿ’ฌ Their stories inspire collaboration and drive progress for research and care

HD-CAB (@hd_cab) 's Twitter Profile Photo

๐Ÿ“ข What is an Advisory Board and how can HD CAB help? HD-CAB connects the Huntingtonโ€™s Disease community with industry and researchers, ensuring the voices of those impacted by HD are heard. ๐Ÿ—“๏ธ Book your Ad board today, virtually or at the HDYO Congress, next March!

๐Ÿ“ข What is an Advisory Board and how can HD CAB help?
HD-CAB connects the Huntingtonโ€™s Disease community with industry and researchers, ensuring the voices of those impacted by HD are heard.

๐Ÿ—“๏ธ Book your Ad board today, virtually or at the HDYO Congress, next March!