FNDHopeUK (@fndhopeuk) 's Twitter Profile
FNDHopeUK

@fndhopeuk

๐Ÿ“ฃ Raising awareness & understanding of #FunctionalNeurologicalDisorder in the UK

๐Ÿงก๐Ÿ’™ Supporting those affected

๐Ÿ”ฌ Advancing research for better care

ID: 887312643060625408

linkhttps://linktr.ee/fndhopeuk calendar_today18-07-2017 14:06:34

8,8K Tweet

5,5K Followers

1,1K Following

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**Update** We're still looking for more participants diagnosed with functional seizures. We are particularly in need of more females with the diagnosis. ... #FND #FunctionalNeurologicalDisorder #ResearchStudy #MedicalResearch #FNDAwareness

**Update**

We're still looking for more participants diagnosed with functional seizures.

We are particularly in need of more females with the diagnosis.

...

#FND #FunctionalNeurologicalDisorder #ResearchStudy #MedicalResearch #FNDAwareness
FNDHopeUK (@fndhopeuk) 's Twitter Profile Photo

Thank you to everyone who took part in our campaign By sharing your stories and our content youโ€™ve helped to raise awareness of FND which will help to Stop the Stigma! ๐Ÿงก #stoptheFNDStigma #FND #FunctionalNeurologicalDisorder

Thank you to everyone who took part in our campaign

By sharing your stories and our content youโ€™ve helped to raise awareness of FND which will help to Stop the Stigma! ๐Ÿงก

#stoptheFNDStigma

#FND

#FunctionalNeurologicalDisorder
FNDHopeUK (@fndhopeuk) 's Twitter Profile Photo

๐Ÿงก Online Movement & Wellbeing Classes ๐Ÿงก Learn more and sign up ๐Ÿ‘‰ bit.ly/3FJwvgX ๐Ÿ™ Please tag and share with people who may benefit. #fnd

๐Ÿงก Online Movement & Wellbeing Classes ๐Ÿงก

Learn more and sign up ๐Ÿ‘‰

bit.ly/3FJwvgX 

๐Ÿ™ Please tag and share with people who may benefit. 

#fnd
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Want to talk to others who understand exactly what itโ€™s like to live with FND or support someone living with FND? ๐Ÿงก Join a peer support group ๐Ÿงก Learn more and sign up ๐Ÿ‘‰ bit.ly/3RCZ4lb ๐Ÿ™ Please tag and share with people who may benefit. #fndpeersupport

Want to talk to others who understand exactly what itโ€™s like to live with FND or support someone living with FND?

๐Ÿงก Join a peer support group ๐Ÿงก

Learn more and sign up ๐Ÿ‘‰

bit.ly/3RCZ4lb  

๐Ÿ™ Please tag and share with people who may benefit. 

#fndpeersupport
FNDHopeUK (@fndhopeuk) 's Twitter Profile Photo

Honorary Professor of Neurology and FND Hope Medical Expert Committee (MEC) member, Jon Stone, shares his top tips for carers and caregivers of those living with FND: Make time for you Address the relationship Manage ups & downs Read more ๐Ÿ‘‰ bit.ly/3XXQJwJ #fnd

Honorary Professor of Neurology and FND Hope Medical Expert Committee (MEC) member, Jon Stone, shares his top tips for carers and caregivers of those living with FND:

Make time for you
Address the relationship
Manage ups & downs
Read more ๐Ÿ‘‰ bit.ly/3XXQJwJ  

#fnd
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What's it really like living with Functional Neurological Disorder? Whether youโ€™re an adult or child living with FND or a carer, hereโ€™s your chance to have your say ๐Ÿ‘‰ bit.ly/4f8hEvE #MyNeuroSurvey #FND #LivingWithFND #FunctionalNeurologicalDisorder

What's it really like living with Functional Neurological Disorder?

Whether youโ€™re an adult or child living with FND or a carer, hereโ€™s your chance to have your say ๐Ÿ‘‰ bit.ly/4f8hEvE 

#MyNeuroSurvey #FND #LivingWithFND #FunctionalNeurologicalDisorder
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Did you know that visual changes can be an FND symptom? Diplopia, known as double vision, occurs when you see objects duplicated in your vision. Photophobia, also known as sensitivity to light, is the inability to tolerate light. More ๐Ÿ‘‰ bit.ly/3zyF5Pm #fnd

Did you know that visual changes can be an FND symptom? 

Diplopia, known as double vision, occurs when you see objects duplicated in your vision.

Photophobia, also known as sensitivity to light, is the inability to tolerate light. 

More ๐Ÿ‘‰ bit.ly/3zyF5Pm
#fnd
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Is misdiagnosis possible? Yes, misdiagnosis is a probability with all illnesses. It is important that functional diagnoses derive from positive signs not negative test results. Read more about misdiagnosis: bit.ly/3ZzBpHO #fnd

Is misdiagnosis possible?

Yes, misdiagnosis is a probability with all illnesses. 

It is important that functional diagnoses derive from positive signs not negative test results. 

Read more about misdiagnosis: bit.ly/3ZzBpHO 

#fnd
FNDHopeUK (@fndhopeuk) 's Twitter Profile Photo

Thank you to University College London Hospitals who have produced a series of self-help videos for FND management. View all self-help videos ๐Ÿ‘‰ bit.ly/3KxrOIQ #selfhelp #selfhelptools #selfhelptips #selfhelpskills #fndsupport #fnd #functionalneurologicaldisorder

Thank you to University College London Hospitals who have produced a series of self-help videos for FND management.

View all self-help videos ๐Ÿ‘‰

bit.ly/3KxrOIQ  

#selfhelp #selfhelptools #selfhelptips #selfhelpskills #fndsupport #fnd #functionalneurologicaldisorder
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Need to talk? Whatever you're going through, you can call the Samaritans any time, from any phone for FREE ๐Ÿ“ฑ 116 123 Mind provides a safe space to talk about your mental health ๐Ÿ“ฑ 0300 102 1234 Explore more support services: bit.ly/3LtklMc

Need to talk?

Whatever you're going through, you can call the Samaritans any time, from any phone for FREE  ๐Ÿ“ฑ 116 123

Mind provides a safe space to talk about your mental health ๐Ÿ“ฑ 0300 102 1234

Explore more support services: bit.ly/3LtklMc
FNDHopeUK (@fndhopeuk) 's Twitter Profile Photo

Mindfulness for Positive Self-Coaching ๐Ÿ’†โ € Back by popular demand, this free mindfulness course for positive self-coaching, led by @irenerouragarcia, is designed especially for people with FND. โ € Learn more & Save your spot ๐Ÿ‘‰bit.ly/48O5TIw #fnd #mindfulness

Mindfulness for Positive Self-Coaching ๐Ÿ’†โ €

Back by popular demand, this free mindfulness course for positive self-coaching, led by @irenerouragarcia, is designed especially for people with FND. โ €

Learn more & Save your spot  ๐Ÿ‘‰bit.ly/48O5TIw 

#fnd #mindfulness
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Relaxation is essential for sleep and wellbeing, but our modern lifestyles, full of stressors, can impact our ability to relax. Have you tried 3-2-1 sleep meditation? Meditation is one of the ways we can relax our bodies and mind. Learn this technique and more. Link in bio #FND

Relaxation is essential for sleep and wellbeing, but our modern lifestyles, full of stressors, can impact our ability to relax.

Have you tried 3-2-1 sleep meditation? Meditation is one of the ways we can relax our bodies and mind.

Learn this technique and more. Link in bio #FND
FNDHopeUK (@fndhopeuk) 's Twitter Profile Photo

But we know how hard it can be, with debilitating symptoms, to make big changes to your nutrition. So, letโ€™s start small, with tea ๐Ÿต โ€ฆ Nutrition info and tea recipes, including: ๐Ÿšถโ€โ™‚๏ธ Aches & pains relieving tea ๐Ÿง  Brain-power tea ๐Ÿ˜ด Deep sleep tea In our bio #FND

But we know how hard it can be, with debilitating symptoms, to make big changes to your nutrition.

So, letโ€™s start small, with tea ๐Ÿต
โ€ฆ

Nutrition info and tea recipes, including:

๐Ÿšถโ€โ™‚๏ธ Aches & pains relieving tea 

๐Ÿง  Brain-power tea

๐Ÿ˜ด Deep sleep tea

In our bio #FND
FNDHopeUK (@fndhopeuk) 's Twitter Profile Photo

Back in November, we launched our โ„๏ธ Christmas Card Competition โ„๏ธ and encouraged the extended FND community to get involved and help us fundraise for FND Hope UK. Over the next 12 days, weโ€™ll be spotlighting the winning designs โœจ Kicking off with this bright, bold cre ...

FNDHopeUK (@fndhopeuk) 's Twitter Profile Photo

๐Ÿ“ฃ Final call for participants for @kcl_london study! They need just five more participants - one female and five males to reach the target sample size and begin the study. Can you help? Please share ๐Ÿ™

๐Ÿ“ฃ Final call for participants for @kcl_london study!

They need just five more participants - one female and five males to reach the target sample size and begin the study.

Can you help? 

Please share ๐Ÿ™
FNDHopeUK (@fndhopeuk) 's Twitter Profile Photo

As 2024 draws to a close, our volunteers at FND Hope UK are taking a well earned break over the festive period. We will be closed from 16th December 2024 until 6th January 2025. May we wish you all a Merry Christmas and a Happy New Year!

As 2024 draws to a close, our volunteers at FND Hope UK are taking a well earned break over the festive period. We will be closed from 16th December 2024 until 6th January 2025. May we wish you all a Merry Christmas and a Happy New Year!
FNDHopeUK (@fndhopeuk) 's Twitter Profile Photo

Here are some classroom-friendly calming tips to help regulate your nervous system: ๐ŸงŠ Touch: Grip a cold object. ๐ŸŒธ Smell: Essential oils. ๐Ÿง  Engage your senses: with the 54321 Exercise. ๐Ÿ‘ƒ Breathwork: Paced breathing. ๐Ÿ›‘ Step away: Take time out to give yourself space. #fnd

Here are some classroom-friendly calming tips to help regulate your nervous system:

๐ŸงŠ Touch: Grip a cold object.
๐ŸŒธ Smell: Essential oils.
๐Ÿง  Engage your senses: with the 54321 Exercise. 
๐Ÿ‘ƒ Breathwork: Paced breathing.
๐Ÿ›‘ Step away: Take time out to give yourself space.

#fnd
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There is always hope ๐Ÿงก Whilst it may not feel like it during the most challenging moments, it is possible to overcome FND. Hereโ€™s an inspiring story from Andy, one of our FND Warriors. Watch Andyโ€™s full story and others here bit.ly/3C9tFmt #fnd

FNDHopeUK (@fndhopeuk) 's Twitter Profile Photo

โ€œBe patient and kind to yourself. It can be tough, but you're tougher! ๐Ÿงกโ€ โ€ฆ We have a wonderful FND community whoโ€™ve shared their advice based on their lived experience for managing, easing symptoms, and retraining the brain. What would you add? #fnd

โ€œBe patient and kind to yourself. It can be tough, but you're tougher! ๐Ÿงกโ€
โ€ฆ

We have a wonderful FND community whoโ€™ve shared their advice based on their lived experience for managing, easing symptoms, and retraining the brain.

What would you add?

#fnd
American Academy of Neurology (@aanmember) 's Twitter Profile Photo

Review and comment on draft guideline on management of functional seizures. Comments are due by March 25: hubs.la/Q038Q6W20 #NeuroTwitter #Neurology

Review and comment on draft guideline on management of functional seizures. 

Comments are due by March 25: hubs.la/Q038Q6W20

#NeuroTwitter #Neurology