Fighting the Rare
@fightingtherare
A documentary on the importance of research on rare diseases. Un documental sobre la recerca en malalties minoritàries.
ID: 1574881889222946818
http://www.fightingtherare.com 27-09-2022 22:02:29
76 Tweet
58 Followers
75 Following
Very proud of DrJordiDuran in choosing our disease and organisation for their first rare documentary. Congratulations on the nomination 👏🏻
The #FightingTheRare documentary is a must-watch and a great opening to #LaforaSymposium23 Fighting the Rare
What a great pleasure to see again @nikimarkk and Jenifer, the stars of Fighting the Rare, at the Lafora Disease Science Symposium! How inspiring has been getting to know them! #LaforaSymposium2023
Aquest dissabte 16 betevé emetrà el nostre documental ‘Lluitant en minoria’ (Fighting the Rare) Fundació FCRI IQS Barcelona U. Ramon Llull (URL) IRB Barcelona
📹Documental "Lluitant en Minoria": 🗣️La investigació de la malaltia de #Lafora a través dels ulls d'investigadors, pacients i familiars, amb la participació de científics de l'#IRBBarcelona. ▶️bit.ly/3TnGUpP Joan J. Guinovart DrJordiDuran Fundació FCRI IQS Barcelona
🎥On #RareDiseaseDay, join us at the screening of the documentary "Fighting the Rare"👇 📅Thu, 29 Feb 🕛12 h 📍Parc Científic de Barcelona 💬Presented by DrJordiDuran (#IRBalumni, IQS Barcelona). ▶️ youtube.com/watch?v=3w2Uic… If you are not a member of the Parc Científic de Barcelona community, register here
🎥 Join us on #RareDiseaseDay for the screening of Fighting the Rare!🎬 📅 Thu, 29 Feb 🕛 12 PM 📍 Parc Científic de Barcelona 💬 Presented by DrJordiDuran (#IRBalumni, IQS Barcelona) ▶️ Watch trailer: youtube.com/watch?v=3w2Uic… Non-Parc Científic de Barcelona members, register here: ➡️ shorturl.at/lnOQZ
El dijous 29/2, dia mundial de les #malaltiesminoritaries, projectarem el nostre documental 'Lluitant en minoria' (Fighting the Rare) a l'IRB Barcelona/Parc Científic de Barcelona, versió dual en català i anglès. Registre: shorturl.at/lnOQZ Fundació FCRI IQS Barcelona U. Ramon Llull (URL)
📽️El dijous 29 de febrer, Dia Mundial de les #malaltiesminoritaries, projectarem el documental "Lluitant en minoria" (Fighting the Rare). 🗣️Versió dual en català i anglès 🎙️Amb DrJordiDuran (#IRBalumni, IQS Barcelona) 🎬Apunta-t'hi!👉shorturl.at/lnOQZ #RareDiseaseDay
🎥Join us on #RareDiseaseDay for the screening of the documentary Fighting the Rare! 🗓️Thu, 29 Feb 🕛12 h CET 📍Parc Científic de Barcelona 🎙️With DrJordiDuran (#IRBalumni-IQS Barcelona) 🗣️Dual version English/ Catalan Register now👩💻bit.ly/42BFiv8 #MalaltiesRares #Lafora Fundació FCRI
Totally grateful for this documentary Fighting the Rare! 💚 #RareDiseaseDay2024 #DMMM #MalaltiesMinoritàries
🗣️Encetem un debat sobre les #MalaltiesMinoritàries després de la projecció de Fighting the Rare, amb el DrJordiDuran (#IRBalumni-IQS Barcelona), el Dr. Jaume Duran (director del documental) i francesc cayuela (president d'FECAMM). #RareDiseaseDay #RareDisease #Lafora
Looks like a great event! Fighting the Rare explores pathways to treatment for #LaforaDisease and is a must-watch for the #RareDisease community. Take 30min and watch it this #RareDiseaseDay !
New conference at the Campus Clínic UB, Universitat de Barcelona and Institut de Neurociències de la UB of the University of Barcelona. Tuesday, April 9th at 12h, Dolors Aleu i Riera Room. Jordi Duran will present his work and the documentary Fighting the Rare. Come and discuss with the author! More info 🧵
Aquesta setmana betevé emetrà el nostre documental ‘Lluitant en minoria’ (Fighting the Rare) 📅 Dissabte 20/04 🕒 14:55 youtu.be/mouHEEnJ-uE Fundació FCRI IQS Barcelona U. Ramon Llull (URL) IRB Barcelona
Angelina, one of the #Laforadisease patients who shared her story in our documentary Fighting the Rare, has passed away. Her story will stay with us. Her fight will continue to inspire our work. Rest in peace, Angelina #Lafora #RareDisease Chelsea's Hope Lafora Children Research Fund
