Fondation Ipsen - Rare but not Alone
@fondationipsen
Our mission is to improve #Raredisease diagnosis and patient's day-to-day lives. Discover our program, books, webinars, videos or podcasts.
ID: 3046270266
http://www.fondation-ipsen.org 27-02-2015 11:40:25
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#RT aHUS Alliance Action: RT Rare Disease Day: Looking to start a conversation on rare diseases with young people? With our School Toolkit, you can use: 👨🏫 2 lesson plans 📗 2 books, Merlin, the Little Feline & A Friendship Story 💜colourable poster ✨ U…
RARE à l'écoute Buzzesante MaRIH Fondation Maladies Rares NeuroSphinx Filière TETECOU Filière de santé FAI²R Fondation Ipsen - Rare but not Alone MedShake Studio Festival de la Communication Santé En parallèle, découvrez les 🎧 #podcasts de notre Plateforme d'Expertise #MaladiesRares (PEMR - AP-HM) 👨🏻💻 fr.ap-hm.fr/site/maladiesr…) AP-HM Story : ➡️ podcasts.apple.com/fr/podcast/pod… (à retrouver également dans Spotify, Deezer et Google Podcasts)
Kudos to the team Fondation Ipsen - Rare but not Alone - for terrific work: Can alternative funding mechanisms help R&D and access for #Rarediseases ? linkedin.com/posts/amrit-ra…
🎉Great news! Our free online course on Medical Entomology has just been open for registration. Sign up now and level up your skills! bit.ly/Medical_Entomo… France Université Numérique IRD.fr Institut Pasteur, since 1887 Fondation Ipsen - Rare but not Alone #Entomology #healthworker #arboviruses #mosquito
.Portia Gabor TV3 was the 2022 "Journalist of the Year" with the #Ghana Journalists Assoc. She vowed to increase awareness of #raredisease and help ease stigma & access to care for patients & families. Fondation Ipsen - Rare but not Alone #TV3GH fb.watch/jpjmZIltkP/?mi…
Projection #Onzedelégende au Ministère de la Santé et de l'Accès aux soins CLAIRE COMPAGNON Geneviève Darrieussecq @FondationPSG AuTableauProductions Caroline Delage Ville de Clamart Fondation Ipsen - Rare but not Alone tous concernés #inclusion
Ville de Clamart Jean-Didier Berger Caroline Delage AuTableauProductions Patrice Roncari Iman EL BAKALI @FondationPSG CANAL+ Moment inoubliable avec les enfants et @FondationPSG Fondation Ipsen - Rare but not Alone @BailaTorres Céline Poulet du Comité Interministériel du Handicap Xavier IACOVELLI pour #Onzedelégende de AuTableauProductions Caroline Delage Tom Rag #autisme #Inclusion Jean-Didier Berger Ville de Clamart violeta_runners👏
Join #ScienceWebinars as we present our series on Advocacy in #RareDisesases with Fondation Ipsen - Rare but not Alone Broadcasting on 4 May at 12p ET: Surveying the landscape Register today and join us on 4 May! fal.cn/3xC8p #webinar #advocacty
On 4 May #ScienceWebinars presents the first in this year's series on Advocacy in #RareDisesases with Fondation Ipsen - Rare but not Alone Surveying the landscape Register today and join us on 4 May! fal.cn/3xGgS #Webinar #Advocacy
Join #ScienceWebinars as we present our series on Advocacy in #RareDisesases with Fondation Ipsen - Rare but not Alone Broadcasting on 4 May at 12p ET, we present Surveying the landscape Register today and join us on 4 May! fal.cn/3xMKm #Webinar
Rare diseases are common. 350 million people have a #RareDisease but each may impact only a handful of people. Watch advocacy experts discuss strategies for success in combatting rare disease in this #ScienceWebinar supported by Fondation Ipsen - Rare but not Alone Register: fal.cn/3xVYn
Every person deserves access to effective treatments for rare diseases Precision medicine offers hope for those in need by providing targeted and personalized care. Lets continue to prioritize research and innovation in the fight against rare diseases. Fondation Ipsen - Rare but not Alone Durhane Wong-Rieger
Join #ScienceWebinars for our next #ScienceAndLife webinar brought to you by Fondation Ipsen - Rare but not Alone Broadcasting at 12p ET on 8 June - Advocacy in rare disease: Crafting the public narrative Register today at: fal.cn/3ymo0 #Webinar #Advocacy
Join #ScienceWebinars next week for our next #ScienceAndLife webinar brought to you by Fondation Ipsen - Rare but not Alone Broadcasting at 12p ET on 8 June: Advocacy in rare disease: Crafting the public narrative Register today at: fal.cn/3yELI #Webinar #RareDisease
