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There are too few truly gentle, kind people on this earth. Today, kidney disease took our dear friend. Now I have to find the words to gentle break Charlie's heart. Rest in peace, our beautiful friend.

The UK’s leading kidney patients support #charity Kidney Care UK @kidneycareuk.bsky.social has developed their #PIP Helper, an online tool to #support people to apply for Personal Independence Payment benefit, often described as a ‘grueling and daunting process’. Read more ⬇️ britishgasenergytrust.org.uk/latest-news/

BBC News - More families refusing to donate relatives' organs - BBC News bbc.co.uk/news/articles/…

Why is #OrganDonation important? Because being alive doesn't mean Iiving life. This #organDonationWeek take 2 minutes to register, amend, or withdraw your decision. organdonation.nhs.uk/register-your-… #shareyourwishes with family & #leavethemcertain Time isn't infinite 💔

The incredibly talented Jane Sarah Matthews who has immortalised Charlie (waiting for a #kidney #transplant) as a mouse pumpkin🐭 🎃 & Harry (waiting for a #liver #transplant) as a mouse spider 🐭🕷 One day, we will join you on the other side ❤️ #nhsorgandonation #GiftOfLife

I feel that we have thankfully dodged something potentially big this week. Living on #dialysis, waiting for a #transplant, can seem like living on a knife edge. There is no bigger message here other than we got through another week & for that, I'm grateful 🙏 #kidneydisease

Heroes walk amongst us 💜

Father who donated kidney to daughter implores others to ignore religious misinformation about organ donation. "If anyone saves a life, it is as if he saves the lives of all humankind’ and ultimately donating an organ is doing just that" mft.nhs.uk/2024/09/25/fat…

Well said 👏 Please encourage and nurture this attitude 🙏

The truth of childhood kidney failure is far too much for most to bear We are united to delay kidney failure & get children time off dialysis #UKKidneyEcosystem LifeArc Kidney Research UK Melina

A day of school work in hospital today as we take a giant & exciting step towards #nocturnaldialysis.  If all goes well, we will soon be official members of the nocturnal club. Charlie, as always, looking to optimise & normalise living life on #dialysis due to #kidneydisease

The big conversation. Building a health care service fit for the future. An opportunity to have your say, your finger prints on the future of the NHS. Join together to make #kidneydisease heard. Kidney Research UK Kidney Care UK @kidneycareuk.bsky.social change.nhs.uk/en-GB/

Lights, camera, action 🎬 Filming with Kidney Care UK @kidneycareuk.bsky.social for #kidneykitchen bringing together age-inclusive #familyfavourite recipes. Under the watchful supervision of Paul Ripley & @bda_renal

The revolution to slow ckd is amazing however it excludes our youngest kidney patients. We must do better **Kids get kidney failure too**

Josh is a much loved player for Clŵb Pêl-Droed Trawsblaniad Cymru. After receiving a lifesaving transplant in 2022 he was put on medication for his body to accept the new organ. Unfortunately these drugs can induce cancers😞 Josh is fighting a whole new battle now and we are with him every step 🏴󠁧󠁢󠁷󠁬󠁳󠁿🥊

"I stand by advocating for children & young adults. We deserve equal treatment in all areas of healthcare, & that includes our diet, too. #kidneykitchen enables children & young adults to participate in & enjoy, the, often daunting, diet necessitated by #kidneydisease " Charlie

👨‍🍳 We had a special visitor to #KidneyKitchen last week! Charlie is just 14 & is currently on the waiting list to receive a new kidney. He's been working with us to create some #KidneyFriendly family favourite recipes 🤝 A huge thanks to him & his mum Melina who came to see us!

Charlie was diagnosed with a rare #KidneyDisease - #Nephronophthisis - at the age of 8 and has been waiting for the #gift of a #kidney for nearly 3 years. Charlie's mum Melina updates us about the last 12 months and we share Charlie's story ❤️ facebook.com/share/p/1XY24c…

See you there! x

While many people this year will be making space for a Christmas tree, presents, or an extra place setting at the table, some will be making room for their dialysis machine. This is the reality for 14-year-old Charlie who has nephronophthisis, a genetic kidney condition that