🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Join us this September in Atlanta. Our symposium and family conference will be held on September 24. Now is your chance to hear from leading experts and make connections with other Hao-Fountain Syndrome families. Register today: usp7.salsalabs.org/2024Symposiuma… #haofountainsyndrome #usp7

Recently diagnosed? Sign up for our New Family Orientation and Information Zoom Session on June 2! We will record the session so if you can't attend you'll be able to watch it later, but make sure to sign up so you can receive the recording. Sign up here: usp7.salsalabs.org/newfamilyorien…

Imagine. #hafous #usp7 #haofountainsyndrome #raredisease

Calling all Hao-Fountain Syndrome families in the United States! Are you interested in learning more about your child's disease while also helping advance scientific research? Consider donating your child’s blood sample to an anonymous biorepository. usp7.salsalabs.org/researchopport…

Our Lunch and Learn is on the calendar! Join us on June 17 for an amazing session all about precision medicine. Click the link to learn more and to sign up today! You won't want to miss it! usp7.salsalabs.org/lunchandlearnj… #usp7 #hafous #haofountainsyndrome #lunchandlearn

Be part of something amazing! Join us for our 2024 Hao-Fountain Syndrome Symposium and Family Conference in Atlanta on September 24. Register today! usp7.salsalabs.org/2024Symposiuma… #HAFOUS #raredisease #HaoFountainSyndrome #USP7 #symposium #familyconference #atlanta

Just launched in our merch shop - 2024 Hao-Fountain Syndrome conference shirts and tote bag! Order today. #symposium #familyconference #usp7 #haofountainsyndrome bonfire.com/store/foundati…

One of our beautiful Hao-Fountain Syndrome Warriors, an amazing young woman from Australia is running a 10k in honor of Hao-Fountain Syndrome and raising funds for research. Show her your support by making a donation today: usp7.salsalabs.org/tanaefundraiser #usp7 #hafountainsyndrome

Our conference is just around the corner! Make sure to register today and book your room before September 2nd to ensure you get our exclusive room rate of just $209 per night! We can't wait to see you at the Grand Hyatt Atlanta on September 24th. usp7.org/2024-symposium

Attending our Symposium and Family Conference on September 24? If so, make sure to book your hotel room by tomorrow, September 2nd, to get our exclusive rate of just $209 per night! Book now to take advantage of this exceptional rate. hyatt.com/en-US/group-bo… #familyconference

We still have sponsorship opportunities available for our upcoming Hao-Fountain Syndrome Symposium and Family Conference. Sponsorships will directly contribute to the success of this event. We are offering five levels of sponsorship. Visit lnkd.in/ekZNBTqT

Riley’s Journey is written from her mother's perspective, chronicling the journey to Riley's diagnosis of Hao-Fountain Syndrome. Visit usp7.org/blog/rileysjou… #raredisease #usp7 #haofountainsyndrome

Save the date! Our 2025 Symposium and Family Conference will be held September 18-19 in Nashville. Registration will open in February. #usp7 #hafous #symposium #familyconference

new international collaborative work incl our group on Hao-Fountain syndrome and the mechanisms underlying USP7 published in Genes & Development #raredisease #USP7 #epigenetics #drosophila #neurons Jeffrey van Haren Yaser Atlasi, Peter Verrijzer, Kristina Hao-Fountain Syndrome Erasmus MC

Registration for our 2025 Hao-Fountain Syndrome Symposium and Family Conference is open. usp7.org/register #hafous #usp7 #conference

Very happy to share our new collaborative paper describing a key role for USP7-PRC1.1 in neural differentiation, now in Genes & Development And congratulations to the PhD student, Axelle, on her 1st research paper. #USP7 #epigenetics #neural  Hao-Fountain Syndrome m.genesdev.cshlp.org/content/early/…

We can’t thank our researchers enough! We love you! Texas Tech School of Veterinary Medicine @klementinafontacer #RareDiseaseDay2025 #haofountainsyndrome #RareDiseaseDay #usp7