FOXG1 Research (@foxg1research) 's Twitter Profile
FOXG1 Research

@foxg1research

FOXG1 syndrome is a childhood neurological genetic disorder and is a key to understanding many brain disorders. We are pioneering research to find a cure.

ID: 903437115727466496

linkhttp://www.foxg1syndrome.org calendar_today01-09-2017 01:59:28

403 Tweet

867 Followers

506 Following

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A new landmark study out today shows remarkable rescue of brain abnormalities using AAV9-FOXG1 gene therapy. foxg1research.org/news/2024/6/10…

A new landmark study out today shows remarkable rescue of brain abnormalities using AAV9-FOXG1 gene therapy. 
foxg1research.org/news/2024/6/10…
FOXG1 Research (@foxg1research) 's Twitter Profile Photo

Last chance to RSVP to the FOXG1 Research Center Opening Ceremony & Science Symposium at the University at Buffalo on 9/24 - mailchi.mp/foxg1research.… #foxg1

Last chance to RSVP to the FOXG1 Research Center Opening Ceremony & Science Symposium at the University at Buffalo on 9/24 - mailchi.mp/foxg1research.… #foxg1
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IMPORTANT! Change of venue for the 2024 FOXG1 Syndrome Research Parent & Caregivers Conference in Florida - Pack your sandals! mailchi.mp/foxg1research/… #foxg1 #curefoxg1

IMPORTANT! Change of venue for the 2024 FOXG1 Syndrome Research Parent & Caregivers Conference in Florida - Pack your sandals! mailchi.mp/foxg1research/… #foxg1 #curefoxg1
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We’re less than $50k away from reaching our 2024 end of year Race to a Cure goal! Please consider choosing a precious FOXG1 child’s team to support this holiday season we are getting close to a life-changing treatment! foxg1research.kindful.com/2024-race-to-2…

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We are only $9k away from hitting our end-of-year crowdfunding race to a cure goal! Help support 2024 Race to $250K! ! foxg1research.kindful.com/2024-race-to-2…

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Our 2024 Impact Report and goals for 2025 hit inboxes today! We are so grateful for all of our supporters who help make this work towards a cure for FOXG1 children possible. foxg1research.org/news/2025/1/2/…

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Calling all rare disease advocates to join a petition that urges Congress to continue their support of steady and robust federal agency leadership, federal biomedical research funding, and public health agency resources. everylifefoundation.quorum.us/campaign/111750

FOXG1 Research (@foxg1research) 's Twitter Profile Photo

Again, calling all rare disease advocates to join a petition that urges Congress to continue their support of federal agency leadership, federal biomedical research funding, and public health agency resources. Please fill out the form everylifefoundation.quorum.us/campaign/111750

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PLEASE help bring life-saving treatments to patients. Unfortunately, the Rare Pediatric Disease Priority Review Voucher Program expired on December 20, 2024. We’re not done fighting for the reauthorization of the PRV Program. everylifefoundation.quorum.us/campaign/110385

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We just published an article on parent-led drug development in action: From Zero to a Gene Therapy in 8 Years medium.com/p/from-zero-to…

We just published an article on parent-led drug development in action: From Zero to a Gene Therapy in 8 Years medium.com/p/from-zero-to…
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We're excited to share that we are now accepting dozens of the world's top cryptocurrencies through @‌TheGivingBlock, fueling our mission to bring the FOXG1 Gene Therapy to FOXG1 children everywhere. thegivingblock.com/donate/foxg1-r… #crypto #bitcoin #ethereum #cryptoisgood

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The #FOXG1 #GeneTherapy is on track for #clinicaltrials in early 2026 — bringing us closer than ever to a treatment for kids who need it. 🧬 How to help: ▪️ Donate ▪️ Share ▪️ Connect us with funders Join the “Yes, They Can!” campaign today: foxg1research.org/yes-they-can

The #FOXG1 #GeneTherapy is on track for #clinicaltrials in early 2026 — bringing us closer than ever to a treatment for kids who need it.
🧬 How to help:
▪️ Donate
▪️ Share
▪️ Connect us with funders
Join the “Yes, They Can!” campaign today: foxg1research.org/yes-they-can
FOXG1 Research (@foxg1research) 's Twitter Profile Photo

Gene therapy for FOXG1 syndrome is ready to advance. Crypto can help drive it forward. #YesTheyCan #CryptoForGood #Web3ForGood

FOXG1 Research (@foxg1research) 's Twitter Profile Photo

FOXG1 gene therapy is ready to advance to clinical trials in 2026. Your crypto can help unlock that timeline. Give now. thegivingblock.com/donate/foxg1-r… #cryptoforgood #Web3ForGood #RareDisease #foxg1