GENFI (@genfi1) 's Twitter Profile
GENFI

@genfi1

Genetic Frontotemporal Dementia Initiative. We are now part of the worldwide FTD Prevention Initiative (FPI): thefpi.org

ID: 482110681

linkhttp://www.genfi.org calendar_today03-02-2012 14:55:08

165 Tweet

955 Followers

265 Following

Phoebe Foster (@phoebefoster_) 's Twitter Profile Photo

āœ Check out my latest blog post summarising the team's research highlights from #AAIC23 - lnkd.in/dcA8wB-m - covering a variety of topics such as novel biomarkers, digitalised testing, disease staging measures, advances in neuroimaging, as well as patient engagement.

āœ Check out my latest blog post summarising the team's research highlights from #AAIC23 - lnkd.in/dcA8wB-m - covering a variety of topics such as novel biomarkers, digitalised testing, disease staging measures, advances in neuroimaging, as well as patient engagement.
Simon Ducharme (@sducharme66) 's Twitter Profile Photo

New editorial out in Brain: Brain MRI research in neurodegenerative dementia: time to deliver on promises academic.oup.com/brain/article/…

FTDtalk (@ftdtalk) 's Twitter Profile Photo

Heading to MND Research #alsmndsymp in Basel to speak at the joint FTD-ALS session. Looking forward to an exciting meeting. We are looking for a new research assistant to co-ordinate the GENFI study at UCL - if you are interested come and talk to the team. #endftd

Cambridge FTD (@cambridgeftd) 's Twitter Profile Photo

Prodromal frontotemporal dementia can be tricky to identify with confidence, making the detection and study of early stages of illness especially difficult. New research diagnostic criteria for "MCBMI" have good accuracy Alberto Benussi GENFI ALLFTD alzres.biomedcentral.com/articles/10.11…

Frontotemporal Dementia and Related Disorders PIA (@ftdpia) 's Twitter Profile Photo

The DDisparitiesPIA & Frontotemporal Dementia and Related Disorders PIA are collaborating together for a webinar titled "Considering diversity and disparity in frontotemporal dementias: Clinical and epidemiological implications". šŸ“…February 29, 10 am CT. Stay tuned!

The <a href="/DDisparitiesPIA/">DDisparitiesPIA</a> &amp; <a href="/FTDPIA/">Frontotemporal Dementia and Related Disorders PIA</a> are collaborating together for a webinar titled "Considering diversity and disparity in frontotemporal dementias: Clinical and epidemiological implications".
šŸ“…February 29, 10 am CT. 
Stay tuned!
UCL Global Engagement (@ucl_global) 's Twitter Profile Photo

Frontotemporal #dementia is a rare disease that needs a global response. Rhian Convery (UCL Brain Sciences) used UCL Global Engagement Funds to set up a much needed research site in Jakarta, as part of GENFI: bit.ly/3WsOTU7

Frontotemporal #dementia is a rare disease that needs a global response. <a href="/rhianconvery/">Rhian Convery</a> (<a href="/UCLBrainScience/">UCL Brain Sciences</a>) used UCL Global Engagement Funds to set up a much needed research site in Jakarta, as part of <a href="/GENFI1/">GENFI</a>: bit.ly/3WsOTU7
Sophie Goldsmith (@sgoldsmith0) 's Twitter Profile Photo

Phoebe Foster and I had the pleasure of hosting the first annual GENFI Participant Spring Webinar šŸ’» Big thanks to our speakers and most importantly to all participants who joined & continue to participate in the GENFI study as without you this research wouldn’t be possible ā˜ŗļø

<a href="/PhoebeFoster_/">Phoebe Foster</a> and I had the pleasure of hosting the first annual GENFI Participant Spring Webinar šŸ’» Big thanks to our speakers and most importantly to all participants who joined &amp; continue to participate in the GENFI study as without you this research wouldn’t be possible ā˜ŗļø
GENFI (@genfi1) 's Twitter Profile Photo

Excited to be in Barcelona for our annual GENFI investigator meeting! >100 investigators and participants attending in person and online to hear the latest updates. 1620 participants, 4387 visits, with some participants now on their 11th visit! 80 publications, all online.

Excited to be in Barcelona for our annual <a href="/GENFI1/">GENFI</a> investigator meeting! &gt;100 investigators and participants attending in person and online to hear the latest updates. 1620 participants, 4387 visits, with some participants now on their 11th visit! 80 publications, all online.
Agnès Pérez-Millan (@agnesperezmi) 's Twitter Profile Photo

Today I presented the preliminary results of our GENFI study ā€œStructual T1 prediction of time to disease onsetā€ at the summer meeting. I survived the day after the recent foot operation! šŸŽ‰šŸ©¼ New results at International Society for Frontotemporal Dementias in Amsterdam. Unitat d’Alzheimer i altres Trastorns Cognitius IDIBAPS Hospital ClĆ­nic

Today I presented the preliminary results of our <a href="/GENFI1/">GENFI</a> study ā€œStructual T1 prediction of time to disease onsetā€ at the summer meeting. I survived the day after the recent foot operation! šŸŽ‰šŸ©¼ New results at <a href="/isftd/">International Society for Frontotemporal Dementias</a> in Amsterdam. <a href="/Alz_ClinicBCN/">Unitat d’Alzheimer i altres Trastorns Cognitius</a> <a href="/idibaps/">IDIBAPS</a> <a href="/hospitalclinic/">Hospital ClĆ­nic</a>
Cambridge FTD (@cambridgeftd) 's Twitter Profile Photo

The world’s largest genetic FTD study,⁦GENFI⁩ now with over 1600 participants and >4500 visits. And such a collaborative spirit- advancing imaging, fluiic and cognitive biomarkers for next gen clinical trials. ⁦Special thanks to Jon Rohrer⁩ and team in Barcelona

The world’s largest genetic FTD study,⁦<a href="/GENFI1/">GENFI</a>⁩ now with over 1600 participants and &gt;4500 visits. And such a collaborative spirit- advancing imaging, fluiic and cognitive biomarkers for next gen clinical trials. ⁦Special thanks to <a href="/jonrohrer/">Jon Rohrer</a>⁩ and team in Barcelona
Sophie Goldsmith (@sgoldsmith0) 's Twitter Profile Photo

Fantastic few days at the annual GENFI summer meeting in Barcelona!Great to hear about the wonderful work happening across the sites 🧬🧠 Phoebe Foster and I shared feedback from our Participant Engagement Board & now have lots to think about & implement going forward!šŸ˜€

Fantastic few days at the annual <a href="/GENFI1/">GENFI</a> summer meeting in Barcelona!Great to hear about the wonderful work happening across the sites 🧬🧠 <a href="/PhoebeFoster_/">Phoebe Foster</a> and I shared feedback from our Participant Engagement Board &amp; now have lots to think about &amp; implement going forward!šŸ˜€
Sophie Goldsmith (@sgoldsmith0) 's Twitter Profile Photo

You can now catch up on the recording of the GENFI Participant Spring Webinar using the link below šŸ˜€ really looking forward to the next one! Phoebe Foster GENFI genfi.org/participate/we…

Sophie Goldsmith (@sgoldsmith0) 's Twitter Profile Photo

New blog post on the FTDtalk website - a summary of this year’s annual fFTD support group meeting. See link below to give it a readā˜ŗļøā¬‡ļø& check out other recent blogs posts including ā€˜Day in the life of the GENFI researchers in the fluid biomarker team’ 🧠 ftdtalk.org/2024/06/the-an…

New blog post on the <a href="/FTDtalk/">FTDtalk</a> website - a summary of this year’s annual fFTD support group meeting. See link below to give it a readā˜ŗļøā¬‡ļø&amp; check out other recent blogs posts including ā€˜Day in the life of the GENFI researchers in the fluid biomarker team’ 🧠
ftdtalk.org/2024/06/the-an…
Sophie Farley (@sophiefarley31) 's Twitter Profile Photo

I had an amazing time this week at the International Society for Frontotemporal Dementias conference in Amsterdam, with the team GENFI FTDtalk. It was great meeting so many new people and hearing insightful, thought-provoking talks. Looking forward to applying what I’ve learned.

I had an amazing time this week at the <a href="/isftd/">International Society for Frontotemporal Dementias</a> conference in Amsterdam, with the team <a href="/GENFI1/">GENFI</a> <a href="/FTDtalk/">FTDtalk</a>. It was great meeting so many new people and hearing insightful, thought-provoking talks. Looking forward to applying what I’ve learned.
Alzheimer's Society (@alzheimerssoc) 's Twitter Profile Photo

šŸ’™ AgnĆØs' reaction to hearing Jordan may be able to get into clinical trials says it all for us. Investment in research brings us all hope for the future. #LoveLossAndDementia Channel 4