Politicians who decided to drop the federal mask mandate for public transit better also start handing out massive disability and unemployment payments for everyone who can no longer safely get to work.

All are invited to join us for UW School of Medicine and Public Health Hot Topics in Public Health, “A Conversation on Disability Rights”, moderated by our own William Schwab, MD. The event will take place virtually on Thur, April 21 from 5:30-7 PM. intranet.med.wisc.edu/building-commu… Judy Heumann Legacy #CommunityHealth

Thank you - and ack, brain fog. It still fills me with panic. 💙

New Stanford Neurology & Neurological Sciences & Stony Brook Medicine study finds 67% of #LongCOVID patients have moderate to severe #dysautonomia. That's an estimated 38M Americans. Press release: dysautonomiainternational.org/pdf/LongCOVID_… Study link: medrxiv.org/content/10.110… Please consider donating to longcovidresearchfund.org.

May is Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) Awareness Month! Get involved: ehlers-danlos.com/may-awareness #EhlersDanlosSyndrome #HypermobilitySpectrumDisorder #MyEDSChallenge #MyHSDChallenge #NEISvoid

“No other disease in the history of modern medicine has been neglected in such a way as Ehlers-Danlos Syndrome” Prof Rodney Grahame. This quote explains so much. It’s why EDS Awareness month driven by The Ehlers-Danlos Society, Ehlers-Danlos Support UK & others around the globe are vital.

For me, MCAS is the main event. #MCAS treatment eliminated my hEDS symptoms; however, MCAS and hEDS are often treated as separate conditions. #EDS patients deserve access to MCAS testing, evaluation, and treatment. #edsawareness

How can POTS not have an ICD-10 code? As someone who has conducted research with electronic health records and administrative data, this blows my mind. As someone with #Dysautonomia, this hurts my soul. Not having a diagnostic code creates barriers to patient care and payment.

New research shows that histamine blockers reduce TNF (an inflammatory cytokine) by activating the vagus nerve. This may offer new insight into the role of autonomic/vagal dysfunction in driving mast cell dysfunction, and the role of histamine blockers in treating POTS/MCAS. 🧵/1

As much as I’d like to turn my back on politics right now, our engagement is as critical as ever! Wisconsin has a key senate seat up this Fall, so join me at the HRC in Wisconsin’s event, “US Senate Candidate Democratic Primary Forum on LGBTQ+ Issues” mobilize.us/hrcwi/event/45…

Vagus Nerve Stimulation Promotes Resolution of Inflammation. neurosciencenews.com/nerve-stimulat…

It's okay to have questions about COVID-19 vaccines for children! Elmo's dad Louie talked to their pediatrician, and learned that Elmo getting vaccinated is the best way to keep him and his whole neighborhood safe and healthy! #CaringForEachOther

The ever fascinating autonomic nervous system can make one's hair stand on end.

What does #dysautonomia feel like? Find out by watching this short clip. vimeo.com/manage/videos/…

I really appreciate the person in the video who described living with #Dysautonomia as whack-a-mole.

🚨I wrote about “brain fog”—one of the most common & disabling symptoms of long COVID (and many other pre-pandemic conditions), and one of the most misunderstood. Here’s what brain fog actually is, and what it’s like to live with it. 1/ theatlantic.com/health/archive…

“The phenotype of hEDS is messy!” -Cortney Gensemer, PhD Fabulously well stated! 🧬