Global Healthy Living Foundation (@ghlforg) 's Twitter Profile
Global Healthy Living Foundation

@ghlforg

The Global Healthy Living Foundation is a 501(c)(3) non-profit advocacy organization improving the quality of life for people with chronic illness. #hcsm

ID: 301545381

linkhttp://ghlf.org calendar_today19-05-2011 17:08:03

6,6K Tweet

2,2K Followers

676 Following

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

At EULAR 2025, we put patient insights into action! We developed the 2-minute Rheum Check: a quick, patient-powered tool designed to boost communication and shared decision-making in rheumatic disease care. Tested by over 2,100 patients, it highlighted key trends in treatment

At EULAR 2025, we put patient insights into action!
We developed the 2-minute Rheum Check: a quick, patient-powered tool designed to boost communication and shared decision-making in rheumatic disease care. Tested by over 2,100 patients, it highlighted key trends in treatment
CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

Psoriasis affects 8M Americans, and 30% may develop psoriatic arthritis. Pharmacists support patients with symptom management, access, and long-term care. šŸ”— linktr.ee/YourSkinYourHe… #Psoriasis #PsoriaticArthritis #Walgreens #GHLF #YourSkinYourHealth

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

1ļøāƒ£ You don’t have to do it all. Your energy is limited — spend it wisely. It’s okay to say no. 2ļøāƒ£ Take the shortcut. Order in or grab pre-made food if cooking costs too much energy. Your health > homemade. 3ļøāƒ£ Eat what feels good. Holidays don’t mean ignoring your food

1ļøāƒ£ You don’t have to do it all.
Your energy is limited — spend it wisely. It’s okay to say no.

2ļøāƒ£ Take the shortcut.
Order in or grab pre-made food if cooking costs too much energy. Your health > homemade.

3ļøāƒ£ Eat what feels good.
Holidays don’t mean ignoring your food
CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

We hope you had a restful holiday weekend. As a new week begins, remember to pace yourself, listen to your body, and set gentle goals — not just tasks. You’ve got this. šŸ’™ #ChronicIllness #CreakyJoints

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

For millions of us living with arthritis, autoimmune diseases, and chronic pain, we know a Band-Aid won’t cut it — but support and community do. šŸ’Ŗ #ChronicPain #InvisibleIllness #SpoonieHumor

For millions of us living with arthritis, autoimmune diseases, and chronic pain, we know a Band-Aid won’t cut it — but support and community do. šŸ’Ŗ #ChronicPain #InvisibleIllness #SpoonieHumor
CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

Chronic illness comes with symptoms — and way too much advice you never asked for. Drop yours below and let’s remind the world: giving advice is easy — living with a chronic illness isn’t. #ChronicIllness #PatientVoices #SpoonieLife #Ableism #UnsolicitedAdvice #InvisibleIllness

Chronic illness comes with symptoms — and way too much advice you never asked for. 
Drop yours below and let’s remind the world: giving advice is easy — living with a chronic illness isn’t.
#ChronicIllness #PatientVoices #SpoonieLife #Ableism #UnsolicitedAdvice #InvisibleIllness
CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

New season, new insights! šŸ§ŖšŸŽ™ļø Let’s Get Personal returns with Ep 1: Dr. Ted Mikuls & Shelley Fritz unpack what the Rheumatoid Factor test really means in RA. Understand your labs. Ask better questions. Feel more confident. Listen: creakyjoints.org/lets-get-perso… UCB News

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

In this week’s #TheHealthAdvocates, Steven Newmark unpacks: āš–ļø A lawsuit vs. HHS Secretary RFK Jr. šŸ“‰ Record measles cases āŒ Canceled preventive care meeting 🦠 A hopeful bird flu update What it means for science, health policy, and patients: ghlf.org/the-health-adv…

A Chronic Voice (@achvoice) 's Twitter Profile Photo

ā€œ#JointPain can make it difficult to simply walk around or go up and down stairs, let alone do daily chores or exercise. #Arthritis is a leading cause of #disability, making many people..no longer able to #work": buff.ly/4eckbnV via @creakyjoints @chronicEileen #NEisVoid

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

Chronic illness teaches you that boundaries aren’t selfish — they’re survival. Whether it’s canceling plans, saying no to extra work, or not explaining your health decisions… You don’t owe anyone an apology for taking care of yourself. Saying ā€œnoā€ isn’t rude. It’s necessary.

Chronic illness teaches you that boundaries aren’t selfish — they’re survival.
Whether it’s canceling plans, saying no to extra work, or not explaining your health decisions…
You don’t owe anyone an apology for taking care of yourself.

Saying ā€œnoā€ isn’t rude. It’s necessary.
CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

Making Sense of Rheumatoid Factor (RF) What do your RF test results really mean — and how do they impact your RA diagnosis and treatment? Season 2 of our podcast Let’s Get Personal breaks it down with top experts. Explore our new infographic, bring our patient tool to your next

Making Sense of Rheumatoid Factor (RF)
What do your RF test results really mean — and how do they impact your RA diagnosis and treatment?
Season 2 of our podcast Let’s Get Personal breaks it down with top experts. Explore our new infographic, bring our patient tool to your next
CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

The best weekend plans? āœ… Saying no without guilt āœ… Resting without explaining āœ… Moving your body on your terms āœ… Surrounding yourself with people who get it Showing up for yourself is necessary and powerful. #ChronicIllnessCommunity #ArthritisAwareness #BoundariesMatter

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

ā€œDisability Pride is a chance to share our voices and be more visible in a society that often doesn’t see us.ā€ It’s Disability Pride Month, we’re reflecting on what it really means to embrace identity, challenge ableism, and take up space — even in a world that doesn’t always

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

Got questions about your Rheumatoid Factor (RF) test? In episode 2 of Let’s Get Personal, Dr. Jeff Curtis breaks down what your RF levels really mean — from diagnosis to treatment decisions. Whether you're seropositive RA, seronegative RA, or just confused by the numbers, this

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

RFK Jr. is facing a lawsuit over his COVID-19 vaccine directive — and the future of public health could hang in the balance. In a new episode of The Health Advocates, Steven Newmark explains what this legal battle means for vaccine policy, public health, and the law. Tune in: šŸ”—

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

šŸ’¬ Living with a chronic condition? 🧪 We’re looking for patients to share their voice—some opportunities are paid. āž”ļø Apply now: research.net/r/V7GLJ9T #PatientVoices #ChronicIllness #ClinicalResearch

šŸ’¬ Living with a chronic condition?
🧪 We’re looking for patients to share their voice—some opportunities are paid.
āž”ļø Apply now: research.net/r/V7GLJ9T
#PatientVoices #ChronicIllness #ClinicalResearch
CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

This is the impact of advocacy. To our community members who share, comment, or simply spend time with us on our social media: thank you. Your voice is the force behind this impact—and we’re honored to hold the space for you. One comment that says it all. This is a reminder:

This is the impact of advocacy.
To our community members who share, comment, or simply spend time with us on our social media: thank you. Your voice is the force behind this impact—and we’re honored to hold the space for you.

One comment that says it all.
This is a reminder:
CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

When night falls, chronic illness can make sleep feel impossible—pain, racing thoughts, or endless tossing and turning. If this is you tonight: you’re not alone. Here are a few things that might help: ✨ Gentle stretches or heat packs before bed ✨ Soothing sounds or white

CreakyJoints.org (@creakyjoints) 's Twitter Profile Photo

šŸŽ™ļø Patient PrepRheum S3 is here! Ep 1 dives into axial spondyloarthritis (axSpA): diagnosis & treatment. Hear from patients Cherie & Shayne on their diagnosis journeys, plus expert insights from rheumatologist Dr. Michael Yoon. šŸŽ§ Tune in: creakyjoints.org.au/patientpreprhe… #AxSpA